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Experiences with
Primary ciliary dyskinesia (PCD)
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PTT FUS in Switzerland - One month later
Not so detailed as Marc, but here is my fellings. After the surgery i was like new. No tremor, no dysknesia, no dystonia, no slowness. Then one week after i had two hard days, like withdraw symptoms, witch i assume it was of cutting meds to fast, especially C/L. I had also a lack of balance on the first
Not so detailed as Marc, but here is my fellings. After the surgery i was like new. No tremor, no dysknesia, no dystonia, no slowness. Then one week after i had two hard days, like withdraw symptoms, witch i assume it was of cutting meds to fast, especially C/L. I had also a lack of balance on the first
Markbit
in
Cure Parkinson's
3 years ago
CYSTITIS CYSTICA HELP
Cystitis Cystica (painful bladder cysts) inflammation, foul smelling urine, frequent trips to the toilet! Amongst many other things I've had this for many years. I would like to know what herbs or natural remedies anyone has had that has relieved or even better cured? Conventional medicine of 6 months
Cystitis Cystica (painful bladder cysts) inflammation, foul smelling urine, frequent trips to the toilet! Amongst many other things I've had this for many years. I would like to know what herbs or natural remedies anyone has had that has relieved or even better cured? Conventional medicine of 6 months
TinaBa
in
Thyroid UK
3 years ago
Exercise poll
Dear Fellow PWPs, How many times per week do you exercise? What do you do, bike, walk, run, swim, weights etc? What level of intensity? My neurologist showed me an article about the theracycle and doing 60-80rpms for 45 minutes three times per week. Doctors said it had the same benefit as PD meds
Dear Fellow PWPs, How many times per week do you exercise? What do you do, bike, walk, run, swim, weights etc? What level of intensity? My neurologist showed me an article about the theracycle and doing 60-80rpms for 45 minutes three times per week. Doctors said it had the same benefit as PD meds
Hidden
in
Cure Parkinson's
3 years ago
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Endo, interstitial cystitis and IBS - anyone else?
Hello! I was finally diagnosed with endometriosis back in 2017 after a laparoscopy and in October I was diagnosed with interstitial cystitis after another operation. I also have suspected PCOS (polycystic ovary syndrome). Yesterday, after years of symptoms and a few weeks of tests, I have been diagnosed
Hello! I was finally diagnosed with endometriosis back in 2017 after a laparoscopy and in October I was diagnosed with interstitial cystitis after another operation. I also have suspected PCOS (polycystic ovary syndrome). Yesterday, after years of symptoms and a few weeks of tests, I have been diagnosed
siobhanlrs
in
Endometriosis UK
3 years ago
Has anyone taken Vinpocetine with Rasagiline and Amantadine?
If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
Hidden
in
Cure Parkinson's
3 years ago
The importance of vitamin B6 against Parkinson's. The end of a meaningless prejudice since 1975.
A restriction or prohibition that has survived almost 50 years (1975-2020) without any scientific reason since levodopa was linked to carbidopa or benserazide. by Jesus Marquez Rivera Project "Parkinsons Here and Now" (2012-2021) "What is Science? Learn from Science that you must doubt of the experts
A restriction or prohibition that has survived almost 50 years (1975-2020) without any scientific reason since levodopa was linked to carbidopa or benserazide. by Jesus Marquez Rivera Project "Parkinsons Here and Now" (2012-2021) "What is Science? Learn from Science that you must doubt of the experts
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Antibiotics and levothyroxine
I’ve developed an extremely painful Cystitis and ended up at walk in centre it got so bad. I now have antibiotics to take 2xday and I wondered if I can take them at the same time as my levothyroxine. There was no way I could avoid antibiotics & it came on so over just a few hours. Never had it before
I’ve developed an extremely painful Cystitis and ended up at walk in centre it got so bad. I now have antibiotics to take 2xday and I wondered if I can take them at the same time as my levothyroxine. There was no way I could avoid antibiotics & it came on so over just a few hours. Never had it before
StillEverHopeful
in
Thyroid UK
3 years ago
Life starts again
Once again my Devon hedgerows are coming to life. Swathes of snowdrops ,bright cheerful daffodils ( how do they get there ) and the first primroses , the great mass which carpet the banks yet to follow . In these difficult and dark times nature is unperturbed and carries on as though the world is just
Once again my Devon hedgerows are coming to life. Swathes of snowdrops ,bright cheerful daffodils ( how do they get there ) and the first primroses , the great mass which carpet the banks yet to follow . In these difficult and dark times nature is unperturbed and carries on as though the world is just
Georgepa
in
PSP Association
3 years ago
What levodopa teaches us...
"What is science? Learn from science that you must doubt the experts ... Science is the belief in the ignorance of the experts. Every generation that discovers something from its experience must pass it on, but it must do so with a delicate balance between respect and disrespect..." Richard Feynman,
"What is science? Learn from science that you must doubt the experts ... Science is the belief in the ignorance of the experts. Every generation that discovers something from its experience must pass it on, but it must do so with a delicate balance between respect and disrespect..." Richard Feynman,
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Artane for Dyskinesia
I have been taking Amantadine but it is not very effective for the severe dyskinesia I have been experiencing every morning. Someone in the forum mentioned Artane. Can you please tell me something about your experience with it?
I have been taking Amantadine but it is not very effective for the severe dyskinesia I have been experiencing every morning. Someone in the forum mentioned Artane. Can you please tell me something about your experience with it?
ladyaudree
in
Cure Parkinson's
3 years ago
Azilect - When do you take it?
My mom was taking azilect with her second dose of sinemet then she switched to rytary and took it with her first dose of rytary. Now she is back on sinemet (rytary side effects were too much) and taking azilect with second sinemet dose but that leads to lots of dyskinesia about 3 hours later. Thinking
My mom was taking azilect with her second dose of sinemet then she switched to rytary and took it with her first dose of rytary. Now she is back on sinemet (rytary side effects were too much) and taking azilect with second sinemet dose but that leads to lots of dyskinesia about 3 hours later. Thinking
jcavana
in
Cure Parkinson's
3 years ago
Immediate-Release Versus Controlled-Released Carbidopa-Levodopa
The question of immediate release versus controlled-release carbidopa levodopa is a frequent topic here, so it is high time to have a post specifically addressing this issue. Chart source: https://www.ingentaconnect.com/contentone/ben/ccp/2007/00000002/00000003/art00006?crawler=true With reference
The question of immediate release versus controlled-release carbidopa levodopa is a frequent topic here, so it is high time to have a post specifically addressing this issue. Chart source: https://www.ingentaconnect.com/contentone/ben/ccp/2007/00000002/00000003/art00006?crawler=true With reference
park_bear
in
Cure Parkinson's
3 years ago
Doxycycline
Hi everyone, For about five months now I have had symptoms (trapped urine/always feeling like i needed to pee/irregular bleeding especially after sex). My doctor prescribed me nitrofurantoin for a uti which didn't help at all. I was tested for a uti a couple of weeks later and the test came back negative
Hi everyone, For about five months now I have had symptoms (trapped urine/always feeling like i needed to pee/irregular bleeding especially after sex). My doctor prescribed me nitrofurantoin for a uti which didn't help at all. I was tested for a uti a couple of weeks later and the test came back negative
BatGal
in
Women's Health
3 years ago
Levodopa vs. Mucuna Pruriens, How Similar Are They And Which One Is More Effective?
These two are discussed quite frequently on the forum so I decided to do some reading about them. Some members have reported better effects with Mucuna Pruriens (MP) while others are quite happy with Levodopa (L-Dopa) and see no need to to try anything else. Some on this forum have mentioned previously
These two are discussed quite frequently on the forum so I decided to do some reading about them. Some members have reported better effects with Mucuna Pruriens (MP) while others are quite happy with Levodopa (L-Dopa) and see no need to to try anything else. Some on this forum have mentioned previously
chartist
in
Cure Parkinson's
4 years ago
Amantadine sulphate
Amantadine sulphate - I was diagnosed with PD a few months ago (45 yo) and have been on Sifrol, (Mirapex), Azilect and Dekinet (Biperiden)Due to cognitive memory issues my doctor reduced the level of dekinet and it helped. It also slowly led to a regression of tremors and right hand weakness. I am
Amantadine sulphate - I was diagnosed with PD a few months ago (45 yo) and have been on Sifrol, (Mirapex), Azilect and Dekinet (Biperiden)Due to cognitive memory issues my doctor reduced the level of dekinet and it helped. It also slowly led to a regression of tremors and right hand weakness. I am
Yb252
in
Cure Parkinson's
4 years ago
Effects on Parkinson's disease patients chronically treated with L-dopa
L-dopa is the most effective drug used to date for management of Parkinson's disease symptoms. Unfortunately, long-term administration of L-dopa often results in development of motor disorders, including dyskinesias. Despite extensive research on L-dopa-induced dyskinesia, its pathogenesis remains poorly
L-dopa is the most effective drug used to date for management of Parkinson's disease symptoms. Unfortunately, long-term administration of L-dopa often results in development of motor disorders, including dyskinesias. Despite extensive research on L-dopa-induced dyskinesia, its pathogenesis remains poorly
Farooqji
in
Cure Parkinson's
4 years ago
Niacin and Butyrate: Nutraceuticals Targeting Dysbiosis and Intestinal Permeability in Parkinson’s Disease
Niacin PD patients are found to have significantly decreased niacin levels compared to age-matched healthy controls [52]. This has been attributed to both the disease itself and the medication used to attenuate motor symptoms [58]. Sinemet, the most commonly used PD medication, includes carbidopa, which
Niacin PD patients are found to have significantly decreased niacin levels compared to age-matched healthy controls [52]. This has been attributed to both the disease itself and the medication used to attenuate motor symptoms [58]. Sinemet, the most commonly used PD medication, includes carbidopa, which
Farooqji
in
Cure Parkinson's
4 years ago
When is it supposes medication have an effect?
By middle of November 2020 I was diagnosed with a “clinical picture suggestive of PSP”, being freezing of gait (FoG) my claim. This is the end of a long road of claims (inbalance, neck pain, radiculopathies, a.s.o.) after being submitted in November 2015 to a ACDF surgery to decompress my spinal cord
By middle of November 2020 I was diagnosed with a “clinical picture suggestive of PSP”, being freezing of gait (FoG) my claim. This is the end of a long road of claims (inbalance, neck pain, radiculopathies, a.s.o.) after being submitted in November 2015 to a ACDF surgery to decompress my spinal cord
BluesHealer
in
PSP Association
4 years ago
Starting Mucuna
reposted You will forgive me if this information has already been disseminated. I am a PWP, diagnosed 2 years ago, after 2 years of misdiagnosis. I currently take Amantadine 3x/day as my only PD med. My neurologist has been "pushing" me to start c/l. I have been reluctant , up until
reposted You will forgive me if this information has already been disseminated. I am a PWP, diagnosed 2 years ago, after 2 years of misdiagnosis. I currently take Amantadine 3x/day as my only PD med. My neurologist has been "pushing" me to start c/l. I have been reluctant , up until
docjleonard55
in
Cure Parkinson's
4 years ago
Starting Mucuna
You will forgive me if this information has already been disseminated. I am a PWP, diagnosed 2 years ago, after 2 years of misdiagnosis. I currently take Amantadine 3x/day as my only PD med. My neurologist has been "pushing" me to start c/l. I have been reluctant , up until now. With worsening tremor
You will forgive me if this information has already been disseminated. I am a PWP, diagnosed 2 years ago, after 2 years of misdiagnosis. I currently take Amantadine 3x/day as my only PD med. My neurologist has been "pushing" me to start c/l. I have been reluctant , up until now. With worsening tremor
docjleonard55
in
Cure Parkinson's
4 years ago
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