Not so detailed as Marc, but here is my fellings. After the surgery i was like new. No tremor, no dysknesia, no dystonia, no slowness. Then one week after i had two hard days, like withdraw symptoms, witch i assume it was of cutting meds to fast, especially C/L. I had also a lack of balance on the first 15 days. Now my dystonia has came back, not so strong, but has come back, and i had recently three days with improved slowness, witch i think it was due to stoping amantadine (forgot to go to farmacy, because i was just feeling fine) and trying to decrease again C/L at the same time, i've uped again and more stable now and got amantadine back. So, my tremor now one month after the procedure is about 90% gone on treated side, is more noticeable on stress situations, zero dyscnesias, still low fine motricity (especially on fine manual works, but much better, can dress and undress normally now). Some things i have noticed after, i can turn my head now for both sides without pain, i don't need to turn my whole body when driving to see the traffic, no more on-off periods (always on, sometimes just need to stop for a couple minutes, especially at the end life of meds. Urinary urgency was gone, has come back i think a little worse then before, but now is vanishing slowly again, it is about 50% better than before. Rolling over in bed difficulties were vanish and came back a little, such as sexual drive.
46y Dx 2009, first symptoms one year before, current 3x 25/100 sinemet, 2x 100 amantadine, and some other vitamines( D3, B1 and C).
I fell like going to start house in monopoly game, the disease it's still here, but most symptoms are gone or reduced, so i can keep playing, but it stills here, still bothering, but much more alleviated. But it is not gone, this is not a cure, but my life quality is much improved, and according to doctors, will still improving during the next year. And i am here to watch. And share. Almost reached 10 kms in my last morning run, I'll try to reach it tomorrow...
DBS for Non-Tremor PD?
