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Advice please.
I started my PMR and GCA journey June and July 2018. I am down to 5 .5mg prednisolone. Over the last10 days, I have had Temple area discomfort, and niggly bits of headache. Headache medication doesn't help with the headache. I was unable to lay on either side of my head during last night, and this morning
I started my PMR and GCA journey June and July 2018. I am down to 5 .5mg prednisolone. Over the last10 days, I have had Temple area discomfort, and niggly bits of headache. Headache medication doesn't help with the headache. I was unable to lay on either side of my head during last night, and this morning
pmrgcavictim
in
PMRGCAuk
2 months ago
Advice re Tapering and Stressful Holiday to Japan
Hi lovely members, I’ve been more or less successfully tapering down to 7.5 / 7 mg of Prednisolone for GCA ( diagnosed last July). I am due to go to Japan for three weeks at the end of this month. I know I currently need a daily sleep and frequent tests to cope with life. Is it wise to keep up
Hi lovely members, I’ve been more or less successfully tapering down to 7.5 / 7 mg of Prednisolone for GCA ( diagnosed last July). I am due to go to Japan for three weeks at the end of this month. I know I currently need a daily sleep and frequent tests to cope with life. Is it wise to keep up
Leafsong66
in
PMRGCAuk
2 months ago
prednislone & sertraline & hydroxy together? is it safe?
Hiya please could anyone tell me if they have taken prednisolone a rescue course whilst taking sertraline 50/100mg daily and hydroxycloroquine 200mg daily ? all these drugs have the potential to cause heartbeat problems.. I am scared of mixing too much at the same time.. many thanks
Hiya please could anyone tell me if they have taken prednisolone a rescue course whilst taking sertraline 50/100mg daily and hydroxycloroquine 200mg daily ? all these drugs have the potential to cause heartbeat problems.. I am scared of mixing too much at the same time.. many thanks
lindyloo2018
in
NRAS
2 months ago
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2nd 'rescue' course of prednisolone in 6 months for RA?
Hiya my cons has finally said that the 3 week 15mg, 10mg, 5mg) course I did in november was not long enough, I could have told him that- it did not help much. however mtx now raised from 15 to 17.5 and hydroxy 200mg daily restarted 3 months ago. My hands are still bad but there are many things wrong
Hiya my cons has finally said that the 3 week 15mg, 10mg, 5mg) course I did in november was not long enough, I could have told him that- it did not help much. however mtx now raised from 15 to 17.5 and hydroxy 200mg daily restarted 3 months ago. My hands are still bad but there are many things wrong
lindyloo2018
in
NRAS
2 months ago
Alendronic Acid
Hi I have been getting heartburn after taking Alendronic Acid recently. Am on weekly dose. Have been taking for 3 months. My Dexa scan came back normal and the Rheumy says to stay on until Prednisolone stops which would be at least next March. I want to stop now as would rather risk fractures
Hi I have been getting heartburn after taking Alendronic Acid recently. Am on weekly dose. Have been taking for 3 months. My Dexa scan came back normal and the Rheumy says to stay on until Prednisolone stops which would be at least next March. I want to stop now as would rather risk fractures
Havanahula
in
PMRGCAuk
2 months ago
actemra, kevzara, tocillizumab, sarilumab
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Dorset lady advised me to open a new post regarding the yes/ no’s/ maybe s of actemra, kevzara, tocillizumab and sarilumab as medications for PMR. In stead of prednisolone/ prednison. Thanks Dorset lady. may I ask to add comments re. methotrexate too…. i am embarrassed to say that I did nt even
Kaaswinkel72
in
PMRGCAuk
2 months ago
Experience of Covid Vaccines and Adrenals
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
I know the covid vaccines are a hot topic here. I don’t know if mum’s experience is helpful to share. Last years jabs were both a nightmare - led to weakness, temperature, light headedness loss of mobility and a significant down step in her dementia. Despite being a real advocate for the jabs I was
RT18
in
PMRGCAuk
2 months ago
Ongoing BCR case. Advices are appreciated.
Episode of Ramsey Hunt syndrome (2021) with
prednisone
use caused (probably) sharp PSA rise in a month from 0.20 to 0.34 and back to 0.22. Episode of Covid made similar PSA spike. Last meeting with MO was 03/23/2023 and I have got six months until next meeting.
Episode of Ramsey Hunt syndrome (2021) with
prednisone
use caused (probably) sharp PSA rise in a month from 0.20 to 0.34 and back to 0.22. Episode of Covid made similar PSA spike. Last meeting with MO was 03/23/2023 and I have got six months until next meeting.
MSTI
in
Advanced Prostate Cancer
11 months ago
Eye problems following catheter ablation
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
Karendeena
in
Atrial Fibrillation Support
2 months ago
Update
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
Good morning everyone. Still warm and breathing, was locked out of my account and only just got back in. When I was first diagnosed with GCA I was on HRT I was told by the Rheumatologist that I should stay on it to protect my bones from the Prednisolone. My DEXA showed normal density probably due
EdithWales
in
PMRGCAuk
2 months ago
Is it OK to take hydrolytes when you have PMR?
We live in Cyprus and are currently going through a heatwave with temperatures reaching 40C. I've had PMR since August 2020 and have been on 7.5mg of prednisolone since October 2020. In the past I've taken hydrolytes in very hot weather as I suffer badly from head sweating. Strangely enough, nowhere
We live in Cyprus and are currently going through a heatwave with temperatures reaching 40C. I've had PMR since August 2020 and have been on 7.5mg of prednisolone since October 2020. In the past I've taken hydrolytes in very hot weather as I suffer badly from head sweating. Strangely enough, nowhere
Pr0jection
in
PMRGCAuk
2 months ago
Covid treatment with kidney transplant
Hi all! I have a kidney transplant since years. Currently taking 1mg Prograf twice a day, 0.5mg Cellcept twice a day and 5mg 3/4 tablet Prednisolone once a day. Before yesterday my whole body ached and I had temperature 38C. I took it down with Parcetamol and called ambulance. They've checked everything
Hi all! I have a kidney transplant since years. Currently taking 1mg Prograf twice a day, 0.5mg Cellcept twice a day and 5mg 3/4 tablet Prednisolone once a day. Before yesterday my whole body ached and I had temperature 38C. I took it down with Parcetamol and called ambulance. They've checked everything
TheLittleSquirrel
in
Kidney Transplant
2 months ago
synacthen test
I’m to have a synacthen test next week. I am taking 5 mg of prednisolone daily and have been told to stop the pred 3days before the test. Will this be ok. As have been told never to stop steroids suddenly ?
I’m to have a synacthen test next week. I am taking 5 mg of prednisolone daily and have been told to stop the pred 3days before the test. Will this be ok. As have been told never to stop steroids suddenly ?
Creamtea
in
PMRGCAuk
2 months ago
PMR and CK
I have GCA but am now off
prednisone
completely. However, am now having pain: shoulder, knees, thighs.
I have GCA but am now off
prednisone
completely. However, am now having pain: shoulder, knees, thighs.
Cobalt2sister
in
PMRGCAuk
1 year ago
D&V what to do with prednisole
I came back from holiday Tuesday morning . Took prednisolone at 4 am. In the afternoon I started with D&V. It stopped in the evening .I took usual dose of prednisolone on Wednesday and again today. My question is , have I taken the correct amount or should I increase slightly. I’m still in bed at the
I came back from holiday Tuesday morning . Took prednisolone at 4 am. In the afternoon I started with D&V. It stopped in the evening .I took usual dose of prednisolone on Wednesday and again today. My question is , have I taken the correct amount or should I increase slightly. I’m still in bed at the
Sheeplegs
in
PMRGCAuk
2 months ago
Need to Rant. Worried my upcoming Valve Surgery may be cancelled due to getting Bronchitis .
Hi Everyone,I got my date for my Mitral Valve repair for 21st June. I was so pleased that my Surgeon moved me up the waiting list! However after getting my haircut 13 days ago and the Junior who washed my hair and made me tea had a cold ! I dropped the next day . Started my rescue pack of steroids
Hi Everyone,I got my date for my Mitral Valve repair for 21st June. I was so pleased that my Surgeon moved me up the waiting list! However after getting my haircut 13 days ago and the Junior who washed my hair and made me tea had a cold ! I dropped the next day . Started my rescue pack of steroids
Kiki54
in
British Heart Foundation
2 months ago
Gastro Resistant Prednisolone
Am on 4.5 mg Pred currently. If I ask for 2.5 mg to help make up my dose my GP prescribes Gastro Resistant pills. I think this is because for some reason 2.5 coated are cheaper. They wont prescribe the coated 1mg to go along with it! I have been reluctant to take this split dose of coated and non
Am on 4.5 mg Pred currently. If I ask for 2.5 mg to help make up my dose my GP prescribes Gastro Resistant pills. I think this is because for some reason 2.5 coated are cheaper. They wont prescribe the coated 1mg to go along with it! I have been reluctant to take this split dose of coated and non
jaycee444
in
PMRGCAuk
2 months ago
Hip replacement and prednisolone
I’m currently awaiting a hip replacement and am taking 5 mg a day prednisolone. Can I have the surgery on this level of steroids ?
I’m currently awaiting a hip replacement and am taking 5 mg a day prednisolone. Can I have the surgery on this level of steroids ?
Katsmam
in
NRAS
2 months ago
Returning temporal headaches after stopping Tocilizumab, what to do ?
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache). 65mg Prednisolone prescribed daily for 2 weeks, then to reduce by 5mg per month. A couple of "flares" (just headaches) in the following 12 months
ghost123uk
in
PMRGCAuk
2 months ago
Mycophenolate Mofetil Anyone?
I saw a different Rheumatologist in the clinic recently. He appeared satisfied that I was on long term 5.5 Prednisolone (I had previously run into trouble at 5mg) but his follow up letter indicated a plan to offer me Mycophenolate Mofetil as a DMARD to get me off steroids. Has anyone had experience of
I saw a different Rheumatologist in the clinic recently. He appeared satisfied that I was on long term 5.5 Prednisolone (I had previously run into trouble at 5mg) but his follow up letter indicated a plan to offer me Mycophenolate Mofetil as a DMARD to get me off steroids. Has anyone had experience of
Katiecatweazel
in
PMRGCAuk
2 months ago
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