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Dry eyes ,disrupted tear film, ?Sjogrens
I believe we have a few members who have posted about this in the past. I'm a PMR long termer diagnosed in Nov 2017 and currently taking 2.5mg Prednisolone. In June 2023 I had a revision of refractive surgery to both eyes at a world leading specialist centre in London. The procedure is known to affect
I believe we have a few members who have posted about this in the past. I'm a PMR long termer diagnosed in Nov 2017 and currently taking 2.5mg Prednisolone. In June 2023 I had a revision of refractive surgery to both eyes at a world leading specialist centre in London. The procedure is known to affect
PMRnewbie2017
in
PMRGCAuk
19 days ago
adrenal insufficiency and reduced renal function
hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrenals struggling. I am experiencing fatigue and some tummy symptoms, occasional diarrhoea and quite often nausea. I have regular blood tests (eGFR) for kidney function and my last one showed my kidney function to have dropped
hi, I am now on 3.5mg of prednisolone and suffering with some symptoms of adrenals struggling. I am experiencing fatigue and some tummy symptoms, occasional diarrhoea and quite often nausea. I have regular blood tests (eGFR) for kidney function and my last one showed my kidney function to have dropped
Koalajane
in
PMRGCAuk
20 days ago
Rif help
Hi all, I have recently discovered I have RIF as a result of uNK cells. I've had 15 miscarriages at implantation now. I am looking for a Dr who will prescribe prednisolone as my NHS Dr says its off license for this and she doesn't know the dosage. Any Dr's or clinics that will prescribe this would be
Hi all, I have recently discovered I have RIF as a result of uNK cells. I've had 15 miscarriages at implantation now. I am looking for a Dr who will prescribe prednisolone as my NHS Dr says its off license for this and she doesn't know the dosage. Any Dr's or clinics that will prescribe this would be
Hearts25
in
Fertility Network UK
22 days ago
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Prednisolone and weight
My husband has been taking steroids for his encephalitis brought on by Hashimoto's Encephalopathy since March 2024. The dose is tapering down, but his weight loss doesn't seem to be tapering. He was a skinny thing all his life until now, so putting on 10kg in 4 months has been quite a shock to him.Is
My husband has been taking steroids for his encephalitis brought on by Hashimoto's Encephalopathy since March 2024. The dose is tapering down, but his weight loss doesn't seem to be tapering. He was a skinny thing all his life until now, so putting on 10kg in 4 months has been quite a shock to him.Is
RachmaninovFan
in
Encephalitis International
22 days ago
I haven't posted for a while....
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Hello everyone, I haven't posted for a while, but have been reading the daily updates coming into my email account. I'm not too good at the moment, lots going on that I won't bore you with, a quick summary: After paying for MRIs which showed florid synovitis, bone erosions and more I was switched
Mmrr
in
NRAS
25 days ago
Tapering
Forgot to mention in my last post that results from the blood test for my Thyroid ie TSH and FT4 came back as abnormal meaning they were outside the reference range so have had to have my thyroxine medication increased, so decrease of prednisolone and Thyroid levels not being ideal could be reason I
Forgot to mention in my last post that results from the blood test for my Thyroid ie TSH and FT4 came back as abnormal meaning they were outside the reference range so have had to have my thyroxine medication increased, so decrease of prednisolone and Thyroid levels not being ideal could be reason I
Blodders2
in
PMRGCAuk
27 days ago
Should I increase my dose of Prednisolone?
Good morning. I have been on 2mg for quite a while now. Earlier this year I didn't feel quite as well but resisted increasing my dose because I had been put under constant pressure to start taking Methotrexate by my rheumatologist and was arguing that the low dose was working well. In the late spring
Good morning. I have been on 2mg for quite a while now. Earlier this year I didn't feel quite as well but resisted increasing my dose because I had been put under constant pressure to start taking Methotrexate by my rheumatologist and was arguing that the low dose was working well. In the late spring
Siena62
in
PMRGCAuk
27 days ago
Biopsy
Friday was a long day. I was in the hospital at 12 and the biopsy was done at 4 , it took an hour and am hopeful that it made the lab before closing at 5. I then had to wait an hour to check on bleeding and get meds so was home before 7pm. I couldn't believe how much hair he shaved of the side of my
Friday was a long day. I was in the hospital at 12 and the biopsy was done at 4 , it took an hour and am hopeful that it made the lab before closing at 5. I then had to wait an hour to check on bleeding and get meds so was home before 7pm. I couldn't believe how much hair he shaved of the side of my
Izb1
in
Lung Conditions Community Forum
27 days ago
Sudden nasty flare at 5mg for 6 weeks.
I have tapered very slowly to 5mg prednisolone, was comfortable for 6 weeks, now horrible pain and stiffness started about a week ago. Felt ok to stay on 5mg for at least two/three months before next slow taper, but this pain and stiffness is quite hard to handle. Please, what should I do? Paracetamol
I have tapered very slowly to 5mg prednisolone, was comfortable for 6 weeks, now horrible pain and stiffness started about a week ago. Felt ok to stay on 5mg for at least two/three months before next slow taper, but this pain and stiffness is quite hard to handle. Please, what should I do? Paracetamol
waltztherapy
in
PMRGCAuk
27 days ago
Tapering
Good morning all. I have been on a starter dose of prednisolone 15mg for three weeks which has made me feel absolutely amazing no aches or pains, reduced last Thursday to 12.5mg as instructed to by my GP started getting pains and stiffness in fingers also pain in my right hip this morning do I carry
Good morning all. I have been on a starter dose of prednisolone 15mg for three weeks which has made me feel absolutely amazing no aches or pains, reduced last Thursday to 12.5mg as instructed to by my GP started getting pains and stiffness in fingers also pain in my right hip this morning do I carry
Blodders2
in
PMRGCAuk
28 days ago
Should I increase prednisolone before arthroscopy?
I’m down to 3.5 mg pred and feeling better than I have since I started with PMR. I’m having an arthroscopy in 2 weeks for a torn meniscus. Should I stay on present dose, continue with next taper or increase dose prior to the operation? I’ll be out of hospital the same day but have been warned I will
I’m down to 3.5 mg pred and feeling better than I have since I started with PMR. I’m having an arthroscopy in 2 weeks for a torn meniscus. Should I stay on present dose, continue with next taper or increase dose prior to the operation? I’ll be out of hospital the same day but have been warned I will
Mfaepink1973
in
PMRGCAuk
28 days ago
Methotrexate tapering.
Evening all, hope you are enjoying a nice weekend 🤗I am currently tapering my Prednisolone since Jan this year. I'm tapering from 10mg using the DSNS tapering plan over weeks. Currently on week 3 of taper from 8.5mg to 8mg. In that time I have been up and down a bit, some small flares and always some
Evening all, hope you are enjoying a nice weekend 🤗I am currently tapering my Prednisolone since Jan this year. I'm tapering from 10mg using the DSNS tapering plan over weeks. Currently on week 3 of taper from 8.5mg to 8mg. In that time I have been up and down a bit, some small flares and always some
lkcreedon
in
PMRGCAuk
28 days ago
Methotrexate tapering?
Evening all, hope you are enjoying a nice weekend 🤗I am currently tapering my Prednisolone since Jan this year. I'm tapering from 10mg using the DSNS tapering plan over weeks. Currently on week 3 of taper from 8.5mg to 8mg. In that time I have been up and down a bit, some small flares and always
Evening all, hope you are enjoying a nice weekend 🤗I am currently tapering my Prednisolone since Jan this year. I'm tapering from 10mg using the DSNS tapering plan over weeks. Currently on week 3 of taper from 8.5mg to 8mg. In that time I have been up and down a bit, some small flares and always
lkcreedon
in
Arthritis Ireland
28 days ago
Fluid retention from prednisolone
any pointers on how to lose the fluid retention caused by pred? Besides of course reducing the dose . I’m on 12.5 mg now
any pointers on how to lose the fluid retention caused by pred? Besides of course reducing the dose . I’m on 12.5 mg now
Udupik
in
PMRGCAuk
29 days ago
Stuck at 6.5 Prednisolone
Hi Folks, Reduced from 7mg to 6.5 using 5 week slow reduction. All was fine until last 2days when I felt both shoulders aching again. However I decided to keep going with the 6.5 for the next 5 weeks, that is until now. During the last 5 weeks it has been only the left shoulder that has bothered me
Hi Folks, Reduced from 7mg to 6.5 using 5 week slow reduction. All was fine until last 2days when I felt both shoulders aching again. However I decided to keep going with the 6.5 for the next 5 weeks, that is until now. During the last 5 weeks it has been only the left shoulder that has bothered me
Malaga47
in
PMRGCAuk
30 days ago
Gochujan
My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an ambulance to be thoroughly checked and went through CT San, MRI etc, seen by Hepatologist and Rheumatologist who suspected Myositis and after muscle biopsy on my thigh, she confirmed I have Mhositis. Since then, I have been
My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an ambulance to be thoroughly checked and went through CT San, MRI etc, seen by Hepatologist and Rheumatologist who suspected Myositis and after muscle biopsy on my thigh, she confirmed I have Mhositis. Since then, I have been
Gochujan
in
Myositis UK
30 days ago
aching legs while tapering Prednisolone
I have been successfully tapering my Prednisolone dose by 1mg a month since October last year. My CRP scores have not got beyond 2 for the past 8 months and I have no symptoms of GCA. Hurrah. But in the last 3-4 weeks I have suffered aches in both legs, front and back, day and night, and I get very tired
I have been successfully tapering my Prednisolone dose by 1mg a month since October last year. My CRP scores have not got beyond 2 for the past 8 months and I have no symptoms of GCA. Hurrah. But in the last 3-4 weeks I have suffered aches in both legs, front and back, day and night, and I get very tired
Handloomweaver
in
PMRGCAuk
1 month ago
prednisolone and excess sweating
I find myself really struggling on humid days; even when it’s not particularly hot. I know that this may be a side-effect of prednisolone but I’m on a very small dose of 3 mg daily. However, I did have a booster shot of steroids about four weeks ago due to a long term flair. The jab is really helping
I find myself really struggling on humid days; even when it’s not particularly hot. I know that this may be a side-effect of prednisolone but I’m on a very small dose of 3 mg daily. However, I did have a booster shot of steroids about four weeks ago due to a long term flair. The jab is really helping
Bobbikins
in
NRAS
1 month ago
G C A/ Temporal artery biopsy
Good morning all,I was diagnosed with RA, PMR, and ILD in January 2021 and have had 5 bouts of pneumonia requiring hospital treatment since then, the last one in April of this year. I am taking 7mgs prednisolone and using DL's DSNS method. Just to add to my misery I have recently had symptoms of GCA
Good morning all,I was diagnosed with RA, PMR, and ILD in January 2021 and have had 5 bouts of pneumonia requiring hospital treatment since then, the last one in April of this year. I am taking 7mgs prednisolone and using DL's DSNS method. Just to add to my misery I have recently had symptoms of GCA
Oscardoggy
in
PMRGCAuk
1 month ago
Diabetes
Just wondering what other members made of this. I have been on prednisolone for 10yrs now for GCA starting at 60mg tapering down slowly to 2.5mg but always had flare so had to keep going up to 40mg and start to.come down again.My sugar levels varies between 42 -48 on most occasions,but once went to 52
Just wondering what other members made of this. I have been on prednisolone for 10yrs now for GCA starting at 60mg tapering down slowly to 2.5mg but always had flare so had to keep going up to 40mg and start to.come down again.My sugar levels varies between 42 -48 on most occasions,but once went to 52
Teddy23
in
PMRGCAuk
1 month ago
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