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Plaquenil
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plaquenil - good fr clots?
Just enquiring to know whether this medication is good for clots, as was told that it is, what experience do you have?????
Just enquiring to know whether this medication is good for clots, as was told that it is, what experience do you have?????
daisy11
in
LUPUS UK
12 years ago
Awaiting definitive diagnosis?
She said the final indicator (APS or Lupus or both, not sure) would be if the
Plaquenil
she has prescribed works. She also mentioned putting me on anticoagulants. I don't understand how medication can form a diagnosis for APS.
She said the final indicator (APS or Lupus or both, not sure) would be if the
Plaquenil
she has prescribed works. She also mentioned putting me on anticoagulants. I don't understand how medication can form a diagnosis for APS.
aussiesue
in
Hughes Syndrome APS Forum
12 years ago
I am about to start Orencia, anyone with experience of it? I would welcome your comments good or bad.
I am on mtx, about to beg. inj. also
plaquenil
, plus bits and bobs, I had a limited success with enbrel and rtx. and funding is just being applied for me to have orencia. It involves me travelling, an hour each way for infusions, but if it works well it will be worth it.
I am on mtx, about to beg. inj. also
plaquenil
, plus bits and bobs, I had a limited success with enbrel and rtx. and funding is just being applied for me to have orencia. It involves me travelling, an hour each way for infusions, but if it works well it will be worth it.
Zeen
in
NRAS
12 years ago
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Plaquenil
I have heard quite a few references to this drug from people that have PBC and other auto immune issues. I have also read that its not really liver friendly. Would be interested in hearing from people that take it and if they feel it has helped their condition and whether they have found it is ok with
I have heard quite a few references to this drug from people that have PBC and other auto immune issues. I have also read that its not really liver friendly. Would be interested in hearing from people that take it and if they feel it has helped their condition and whether they have found it is ok with
zipitydoo
in
PBC Foundation
12 years ago
hi, I've been under a consultant for 3 years now and as my illness overlaps several
also been put on
Plaquenil
and wanted to know if anyone had an experience with this? thanks x
also been put on
Plaquenil
and wanted to know if anyone had an experience with this? thanks x
jenni85
in
LUPUS UK
12 years ago
another drug bites the dust, what next?
Had to come off
plaquenil
10 days ago due to terrible itching and a fetching little rash which wouldn't win me any beauty contests.
Had to come off
plaquenil
10 days ago due to terrible itching and a fetching little rash which wouldn't win me any beauty contests.
Pollywollydoodle
in
NRAS
12 years ago
Low dose steroids & other meds - pros and cons
Does anyone have experience of low dose steroids (Prednisolone) for inflammation associated with Scleroderma and also
Plaquenil
for same inflammation?
Does anyone have experience of low dose steroids (Prednisolone) for inflammation associated with Scleroderma and also
Plaquenil
for same inflammation?
Suze932
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Plaquenil/Hydroxychloroquine - which eye tests do you need and when?
I'm aware that I need regular eye tests on hydroxychloroquine and my consultant did briefly mention it (very briefly!) that I needed to go to the opticians every year. I rang up her secretary to ask which test I needed at the opticians and she said it was the same one as for glaucoma with the little
I'm aware that I need regular eye tests on hydroxychloroquine and my consultant did briefly mention it (very briefly!) that I needed to go to the opticians every year. I rang up her secretary to ask which test I needed at the opticians and she said it was the same one as for glaucoma with the little
Jennie_103
in
LUPUS UK
12 years ago
Throat swelling medication
I am on
Plaquenil
but nothing else long-term as yet. Many thanks for any thoughts.
I am on
Plaquenil
but nothing else long-term as yet. Many thanks for any thoughts.
ChocolateTeapot
in
LUPUS UK
12 years ago
Getting a diagnosis
I've already tried
plaquenil
and it gave me terrible side effects. At this point, I'm desperate and willing to pay to see a specialist in SLE. I'm just outside central London and will be planning to give the London Lupus Centre a call.
I've already tried
plaquenil
and it gave me terrible side effects. At this point, I'm desperate and willing to pay to see a specialist in SLE. I'm just outside central London and will be planning to give the London Lupus Centre a call.
Hidden
in
LUPUS UK
12 years ago
MSD RA Patient Survey - Message From Clare Jacklin
Please note that you will only be able to participate if you have, or are taking, Disease Modifying Antirheumatic Drugs (DMARDs) (such as methotrexate (Rheumatrex®), leflunomide (Arava®), hydroxychloroquine (
Plaquenil
®) and sulfasalazine (Azulfidine®).
Please note that you will only be able to participate if you have, or are taking, Disease Modifying Antirheumatic Drugs (DMARDs) (such as methotrexate (Rheumatrex®), leflunomide (Arava®), hydroxychloroquine (
Plaquenil
®) and sulfasalazine (Azulfidine®).
Hidden
in
NRAS
12 years ago
Latest News from Prof Hughes! Yep! Lupus-Sjogrens-Hypothyroid dis. My hip. AND the cold weather hurts me.!!
Have been prescribed
Plaquenil
and Levothyroxine. Also having other scans, pelvic and heart. Been passed over to the St.Thomas Lupus clinic too for yearly support. The Prof wants to see me again in June too. Anyhow, dunno about you peeps, but this minus zero weather hurts me.
Have been prescribed
Plaquenil
and Levothyroxine. Also having other scans, pelvic and heart. Been passed over to the St.Thomas Lupus clinic too for yearly support. The Prof wants to see me again in June too. Anyhow, dunno about you peeps, but this minus zero weather hurts me.
faeryfey
in
LUPUS UK
12 years ago
Does your INR level affect the way you feel?
After that just aspirin,
plaquenil
and other bits and pieces. I had a TIA just after Christmas so they thought maybe I should be on warfarin long term. I felt fuzzy headed and dizzy for two weeks after the TIA until my INR got up over 3. Suddenly I felt better than I had in years!
After that just aspirin,
plaquenil
and other bits and pieces. I had a TIA just after Christmas so they thought maybe I should be on warfarin long term. I felt fuzzy headed and dizzy for two weeks after the TIA until my INR got up over 3. Suddenly I felt better than I had in years!
tassie
in
Hughes Syndrome APS Forum
12 years ago
Hi all i"m new to this
I have been put on methotrexate ,
plaquenil
i was given a steriod injection and take co-codmol for the pain. I'm so glad i have found this site as i have been feeling so alone. My family are good but i sometimes feel like a burden.
I have been put on methotrexate ,
plaquenil
i was given a steriod injection and take co-codmol for the pain. I'm so glad i have found this site as i have been feeling so alone. My family are good but i sometimes feel like a burden.
marce
in
NRAS
12 years ago
Sjogrens-just how dry can your mouth get?
Is this degree of dry throat and mouth common for Sjogrens and does
plaquenil
help/ Many Thanks in anticipation.
Is this degree of dry throat and mouth common for Sjogrens and does
plaquenil
help/ Many Thanks in anticipation.
tim47
in
Hughes Syndrome APS Forum
12 years ago
Hi I'm newish on here
I've been on
Plaquenil
for a year or so but it wasn't fully working so last Oct I started Sulfazalaziine & after a few weeks that started to work. I also take co codamol the highest dose, Meloxicam & amytriptiline for pain.
I've been on
Plaquenil
for a year or so but it wasn't fully working so last Oct I started Sulfazalaziine & after a few weeks that started to work. I also take co codamol the highest dose, Meloxicam & amytriptiline for pain.
Hidden
in
NRAS
12 years ago
Hospital update and Cognitive Deficits in Patients With Antiphospholipid Syndrome
I told him I think
Plaquenil
may be helping but as I had been resting over xmas Im not sure if its the rest or
plaquenil
that has been helping me. Happy New Year everyone
I told him I think
Plaquenil
may be helping but as I had been resting over xmas Im not sure if its the rest or
plaquenil
that has been helping me. Happy New Year everyone
TJSTICKYBLOOD
in
Hughes Syndrome APS Forum
12 years ago
MTX versus RA
Only fully diagnosed in july and already had
plaquenil
which was awful. On folic acid 3 times a week and arcoxia. So fed up at moment. Sorry for going on just dont know when i will finally accept this.
Only fully diagnosed in july and already had
plaquenil
which was awful. On folic acid 3 times a week and arcoxia. So fed up at moment. Sorry for going on just dont know when i will finally accept this.
BossyB
in
NRAS
12 years ago
Professor Hughes' blog October 2011
The improvement of patients with this clinical combination after starting
Plaquenil
and anticoagulation is often striking. The disappearance of the livedo is something we often see following successful warfarin anticoagulation.
The improvement of patients with this clinical combination after starting
Plaquenil
and anticoagulation is often striking. The disappearance of the livedo is something we often see following successful warfarin anticoagulation.
Hidden
in
Hughes Syndrome APS Forum
12 years ago
Prof Hughes' December 2011 blog - last blog!
Her doctors started her on aspirin and
Plaquenil
. What is this patient teaching us? Firstly, of the many alternative diagnoses this patient received – migraine, epilepsy, multiple sclerosis, fibromyalgia, celiac, Sjogrens etc, some were helpful, some not.
Her doctors started her on aspirin and
Plaquenil
. What is this patient teaching us? Firstly, of the many alternative diagnoses this patient received – migraine, epilepsy, multiple sclerosis, fibromyalgia, celiac, Sjogrens etc, some were helpful, some not.
Hidden
in
Hughes Syndrome APS Forum
12 years ago
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