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Permanent atrial fibrillation
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update
last November i was diagnosed with Afib which had appeared overnight - possible covid induced?. I found this site and was so reassured by people I thought i would give an update. So on 23rd November i went to af clinic, we are automatically referred here when diagnosed. I had echocardiogram first, then
last November i was diagnosed with Afib which had appeared overnight - possible covid induced?. I found this site and was so reassured by people I thought i would give an update. So on 23rd November i went to af clinic, we are automatically referred here when diagnosed. I had echocardiogram first, then
Dudtbin
in
Atrial Fibrillation Support
1 year ago
Stopped Flecainide, update
I have been off Flecainde now for almost a month. Had two short episodes of Afib the end of the first week. Then nothing. I also noticed that the weird off balance feeling, I have had for at least a year, has gone. So I believe it was caused by the Flecainide. Last night I had a short half hour
I have been off Flecainde now for almost a month. Had two short episodes of Afib the end of the first week. Then nothing. I also noticed that the weird off balance feeling, I have had for at least a year, has gone. So I believe it was caused by the Flecainide. Last night I had a short half hour
Budken
in
AF Association
1 year ago
60 DAYS IN, QUICK UPDATE ON TODAY'S DR VISIT huCAR-T 19 IL-18 4th GENERATION CLINICAL TRIAL
60 days have gone by since I received my new T- Cells. I have been neutropenic, average ANC of about 1.0 for the last 2 months and my Fibrinogen levels have been consistently low. I have had to do twice weekly blood checks at Penn Medicine, and most of those tests have resulted in a CRYO infusion
60 days have gone by since I received my new T- Cells. I have been neutropenic, average ANC of about 1.0 for the last 2 months and my Fibrinogen levels have been consistently low. I have had to do twice weekly blood checks at Penn Medicine, and most of those tests have resulted in a CRYO infusion
steve5441
in
CLL Support
8 months ago
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Also in Persistent Afib
I am in continous afib with a slower than normal heart rate (brachycardia). I experience no symtoms. I'm on the blood thinner Eliquis, 5 mg, 10 AM and 10PM to prevent my having a stroke. My cardiologist (who performs many ablations per year) recommended I do an ablation. I consulted with another cardiologist
I am in continous afib with a slower than normal heart rate (brachycardia). I experience no symtoms. I'm on the blood thinner Eliquis, 5 mg, 10 AM and 10PM to prevent my having a stroke. My cardiologist (who performs many ablations per year) recommended I do an ablation. I consulted with another cardiologist
theluckyone
in
AF Association
1 year ago
Rapid heart rate on Ozempic
Has anyone had to go off of Ozempic due to rapid heart rate? I had an ablation a year and a half ago for AFib and now when I started Ozempic after 3 days I woke up with my heart raving at 162 bpm. It felt like AFib anc then after deep breathing it started to go down to 157 then 128 and tachycardic
Has anyone had to go off of Ozempic due to rapid heart rate? I had an ablation a year and a half ago for AFib and now when I started Ozempic after 3 days I woke up with my heart raving at 162 bpm. It felt like AFib anc then after deep breathing it started to go down to 157 then 128 and tachycardic
Itsanafiblife
in
AF Association
1 year ago
Wolff-Parkinson-White Syndrome
My brother (age 65) has had occasional afib episodes (and tachy episodes) for years. He was diagnosed a while back with WPW. Is being sent for ablation tomorrow. Anyone else have WPW? And was ablation curative for you, if so? Any advice for ablation recovery? Do's and dont's? My brother is not one
My brother (age 65) has had occasional afib episodes (and tachy episodes) for years. He was diagnosed a while back with WPW. Is being sent for ablation tomorrow. Anyone else have WPW? And was ablation curative for you, if so? Any advice for ablation recovery? Do's and dont's? My brother is not one
PlanetaryKim
in
AF Association
1 year ago
Webinar:What role does our immune system play in the development of AMD?
Professor David Kavanagh from Newcastle University joins us for our next My Macular and Me webinar to discuss his three-year research project, which aims to find a treatment for age-related macular degeneration (AMD). Prof. Kavanagh’s research looks at a specific part of the immune system called the
Professor David Kavanagh from Newcastle University joins us for our next My Macular and Me webinar to discuss his three-year research project, which aims to find a treatment for age-related macular degeneration (AMD). Prof. Kavanagh’s research looks at a specific part of the immune system called the
Carol_MacularSociety
Partner
in
Macular Society
8 months ago
Update on trametinib (Mekinist) for low grade serous ovarian cancer
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an off-label treatment option for adults with recurrent or progressive low grade serous ovarian cancer (LGSOC). This is for people who have received
OvacomeSupport
My Ovacome Team
in
My Ovacome
8 months ago
Persistent afib
I thought I was okay now I'm in persistent afib ( since September 2022) but looking at the posts from yesterday's health unlocked (estesbubba post) people are saying it's not good to be in persistent afib as it causes the heart to work harder and then become enlarged and that can lead to heart failure
I thought I was okay now I'm in persistent afib ( since September 2022) but looking at the posts from yesterday's health unlocked (estesbubba post) people are saying it's not good to be in persistent afib as it causes the heart to work harder and then become enlarged and that can lead to heart failure
Swimsyroke
in
AF Association
1 year ago
Tantaanna needs support
My history: Afib since 2014- cardio version, (symptomatic)Flecanide pill in pocket-2015-2017. After getting three episodes in one week I had my First ablation- 2017- had two more ablations 2018-19. (Afib free ten- eleven months I better) unable to take more flecanide because of long qt on ekg 2020
My history: Afib since 2014- cardio version, (symptomatic)Flecanide pill in pocket-2015-2017. After getting three episodes in one week I had my First ablation- 2017- had two more ablations 2018-19. (Afib free ten- eleven months I better) unable to take more flecanide because of long qt on ekg 2020
Tantaanna
in
AF Association
1 year ago
Pride comes before a fall! Anticoagulant thoughts.
Good evening everyone, Well there I was, floating on my little cloud of self-satisfaction, thinking I’d kicked the AF monster good and proper once I got my sleep apnoea under control. My nightly AF episodes became a thing of the past - bliss! You all know what’s coming next though, don’t you. That
Good evening everyone, Well there I was, floating on my little cloud of self-satisfaction, thinking I’d kicked the AF monster good and proper once I got my sleep apnoea under control. My nightly AF episodes became a thing of the past - bliss! You all know what’s coming next though, don’t you. That
Threecats
in
AF Association
1 year ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
8 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
New clinical trial BNT152+153.
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
kklott01
in
Advanced Prostate Cancer
8 months ago
AFIB and CBD use????
I am 57 and in relatively good shape. I have serious restless leg syndrome and on January 2nd started taking a full spectrum CBD gummy at night for sleep help. After about 2 weeks I noticed that the RLS had significantly subsided and I was getting better and better sleep. Then right after 2 weeks
I am 57 and in relatively good shape. I have serious restless leg syndrome and on January 2nd started taking a full spectrum CBD gummy at night for sleep help. After about 2 weeks I noticed that the RLS had significantly subsided and I was getting better and better sleep. Then right after 2 weeks
Michaelwmd
in
AF Association
1 year ago
An update on new therapy clinical trial enrollment Phase I/II TheraPb clinical trial of ²¹²Pb-ADVC001 to treat PSMA-positive mCRPC
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
Maxone73
in
Advanced Prostate Cancer
8 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
8 months ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
8 months ago
clinical trials and dropped off a cliff
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Johnkelsey
in
Advanced Prostate Cancer
8 months ago
Do you live with advanced liver disease? Are you interested in attending an in-person workshop in Bristol or Liverpool this month?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
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