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As easy as riding a bike
One of the most striking aspects of Parkinson's disease is the capacity for cerebral compensation. By that I mean that alternative pathways and strategies are found to ensure that function is preserved. We already know for instance that between 80 and 90% of all striatal dopamine must be lost before
One of the most striking aspects of Parkinson's disease is the capacity for cerebral compensation. By that I mean that alternative pathways and strategies are found to ensure that function is preserved. We already know for instance that between 80 and 90% of all striatal dopamine must be lost before
JonStamford
in
Cure Parkinson's
13 years ago
I have to fight the Beast
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
Hidden
in
Cure Parkinson's
13 years ago
Has anyone else had this problem?
This is absolutely not psychogenic and 2. you have a form of Parkinson's disease or a form of
parkinsonism
. We just don't know which one yet." He increased my medicine but didn't put anything in the notes, that I could see anyway.
This is absolutely not psychogenic and 2. you have a form of Parkinson's disease or a form of
parkinsonism
. We just don't know which one yet." He increased my medicine but didn't put anything in the notes, that I could see anyway.
LauraDunn
in
Cure Parkinson's
13 years ago
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Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Some need more help now...
To whom this may concern: I am writing this letter to send to the Parkinson’s Disease Foundations and other groups. Frankly, I am upset with all the Parkinson’s cruises and parties and other “fun” activities that are advertised. Granted, Parkinson’s foundations need fund raisers to raise cash to
To whom this may concern: I am writing this letter to send to the Parkinson’s Disease Foundations and other groups. Frankly, I am upset with all the Parkinson’s cruises and parties and other “fun” activities that are advertised. Granted, Parkinson’s foundations need fund raisers to raise cash to
1shakennotstirred
in
Cure Parkinson's
13 years ago
Fox Trial Finder - sign up for a webinar
Recruitment into Clinical Trials is one of the largest challenges in developing new therapies and, ultimately, a cure for Parkinson’s disease. Yet, over 80% of clinical trials fail to recruit enough participants. You have the ability to play a pivotal role in overcoming one of the largest challenges
Recruitment into Clinical Trials is one of the largest challenges in developing new therapies and, ultimately, a cure for Parkinson’s disease. Yet, over 80% of clinical trials fail to recruit enough participants. You have the ability to play a pivotal role in overcoming one of the largest challenges
CPT_Helen
Administrator
in
Cure Parkinson's
13 years ago
Is there a logical way to choose medication(s) other than trial and error?
I was diagnosed in October,2010. Since my Neurologist indicated that current meds treat symptoms,but do not slow progression of the disease, I opted, initially, to go without. After 4 months we tried C-dopa/L-dopa but found the resultant nausea outweighed any gain. Tried Pramipexole = alergic reaction
I was diagnosed in October,2010. Since my Neurologist indicated that current meds treat symptoms,but do not slow progression of the disease, I opted, initially, to go without. After 4 months we tried C-dopa/L-dopa but found the resultant nausea outweighed any gain. Tried Pramipexole = alergic reaction
ronn
in
Cure Parkinson's
13 years ago
My journey through PSP
Beginning in 2007 I was diagnosed as having Atypical
Parkinsonism
. At that time I fell backwards a few times. Then I was diagnosed in 2008 as having Progressive Supranuclear Palsy (PSP). I continued to fall backwards and realized I would have to protect my head and other parts of my body.
Beginning in 2007 I was diagnosed as having Atypical
Parkinsonism
. At that time I fell backwards a few times. Then I was diagnosed in 2008 as having Progressive Supranuclear Palsy (PSP). I continued to fall backwards and realized I would have to protect my head and other parts of my body.
IsraelZehavi
in
PSP Association
13 years ago
Help with rigidity and severe stiffness problems. Any advice?
My husband was diagnosed with PSP very early in 2008.At the moment we are having severe problems with upper body rigidity. Head and neck are very extended most of the time and getting him seated is like trying to sit a plank of wood.We are trying to alter some medication to see if that will help. Does
My husband was diagnosed with PSP very early in 2008.At the moment we are having severe problems with upper body rigidity. Head and neck are very extended most of the time and getting him seated is like trying to sit a plank of wood.We are trying to alter some medication to see if that will help. Does
HGE2844
in
PSP Association
13 years ago
How about an exercise bike?
I 've read that its recommended for parkinson's patients.Since psp is an atypical
Parkinsonism
,do you think it's a good idea?
I 've read that its recommended for parkinson's patients.Since psp is an atypical
Parkinsonism
,do you think it's a good idea?
john_z
in
PSP Association
12 years ago
"Who's Listening"
As humans sometimes we think what we have to say is not important because no one seems to be listening anyway. For they only wait patiently for the pause in your voice before they begin filling the air with their own words, their own importance. It becomes a tug of war, a game of
As humans sometimes we think what we have to say is not important because no one seems to be listening anyway. For they only wait patiently for the pause in your voice before they begin filling the air with their own words, their own importance. It becomes a tug of war, a game of
jupiterjane
in
Cure Parkinson's
12 years ago
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