About - DC Action | HealthUnlocked
About DC Action
We are a peer support group for people and families affected by telomeropathies and dyskeratosis congenita (DC).
DC Action aims to improve diagnosis, treatment and health services. DC is rare but other telomeropathies may be more common and can be confused with other conditions. Specialist care is essential but can be difficult to find.
Please share your experiences. We are a small group so it's really important that our voices are heard to help improve access to specialist care and treatment.
Post about diagnosis, treatment, access to health services, share problems, ask questions and offer solutions.
Polls and questionnaires will help us to lobby for better NHS services.
