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what do I do
We had a little boy 21/06/22 who has neonatal lupus and congenital heart block, he had a
pacemaker
fitted 24/04/23 so things have been hard. My partners flares are getting worse each time, we did a kidney home test and it came back positive.
We had a little boy 21/06/22 who has neonatal lupus and congenital heart block, he had a
pacemaker
fitted 24/04/23 so things have been hard. My partners flares are getting worse each time, we did a kidney home test and it came back positive.
JamesF87
in
LUPUS UK
1 year ago
Advice required about lead extraction ops please
I know fitting
pacemaker
is easier and that doesnt worry me. What worries me is the risk factor as it appears quite an intensive operation to remove and repair any damage. Also will the
pacemaker
regulate my heart sufficiently to get me off the meds?
I know fitting
pacemaker
is easier and that doesnt worry me. What worries me is the risk factor as it appears quite an intensive operation to remove and repair any damage. Also will the
pacemaker
regulate my heart sufficiently to get me off the meds?
Frequentshocker
in
AF Association
1 year ago
Atrial Flutter with node ablation
as Ive just had my
pacemaker
check up and Ive been told that I had periods last year, 15% of the time..that my my upper chambers were beating too quickly
as Ive just had my
pacemaker
check up and Ive been told that I had periods last year, 15% of the time..that my my upper chambers were beating too quickly
bushy2016
in
AF Association
1 year ago
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Perhaps I wouldn't mind so much if I considered myself to be ill, but my heart failure was treated by an ablation and
pacemaker
and I don't feel at all restricted in my day-to-day life.
Perhaps I wouldn't mind so much if I considered myself to be ill, but my heart failure was treated by an ablation and
pacemaker
and I don't feel at all restricted in my day-to-day life.
IanMK
in
British Heart Foundation
5 months ago
pacemaker site feeling warm under the skin
Every so often I get a very hot sensation around where my pm is , there’s no swelling g or redness but feels so warm under the skin . Just wondered if anyone else ever gets this too ? I’ve had my pm since 2020 so haven’t had any recent procedures . Thank you
Every so often I get a very hot sensation around where my pm is , there’s no swelling g or redness but feels so warm under the skin . Just wondered if anyone else ever gets this too ? I’ve had my pm since 2020 so haven’t had any recent procedures . Thank you
Westie2012
in
British Heart Foundation
1 year ago
AV node ablation with pacemaker implant
However, he advised me that it is with some risks, the procedure, and also with a
pacemaker
implanted. I'm on Atenolol, 12 mg once a day, and Digoxin, 75 mg. I feel unwell and without energy. Any similar circumstance to comment on, thanks for reading.😪
However, he advised me that it is with some risks, the procedure, and also with a
pacemaker
implanted. I'm on Atenolol, 12 mg once a day, and Digoxin, 75 mg. I feel unwell and without energy. Any similar circumstance to comment on, thanks for reading.😪
queseyo
in
AF Association
1 year ago
Thuds
I have a
pacemaker
fitted and recently have been unwell with some kind of virus/infection... still having tests. I take edoxaban but not beta blockers anymore, the last few nights have sometimes been woken up with a thud in the chest area, does anyone know what this is please ?
I have a
pacemaker
fitted and recently have been unwell with some kind of virus/infection... still having tests. I take edoxaban but not beta blockers anymore, the last few nights have sometimes been woken up with a thud in the chest area, does anyone know what this is please ?
tabletphobic
in
AF Association
1 year ago
pacemaker and av ablation update
hi good people Update Av node was due to be ablated 13 June 2023 But at recent pre assessment and
pacemaker
check it was discovered the lead has displaced Seems to have dropped out two days after installation according to pm data so Tuesday 23 June is now the day of my repositioning No one
hi good people Update Av node was due to be ablated 13 June 2023 But at recent pre assessment and
pacemaker
check it was discovered the lead has displaced Seems to have dropped out two days after installation according to pm data so Tuesday 23 June is now the day of my repositioning No one
Hardjuice
in
Atrial Fibrillation Support
1 year ago
Pacemaker Pending
Pacemaker
to be implanted early next month. Have AFIB, mostly controlled the last year + but before then 3 Ablations and a few Cardioversions. Metronics monitor occasionally reports a slower than normally slow pulse. What should I anticipate and be aware of after this procedure? Thanks
Pacemaker
to be implanted early next month. Have AFIB, mostly controlled the last year + but before then 3 Ablations and a few Cardioversions. Metronics monitor occasionally reports a slower than normally slow pulse. What should I anticipate and be aware of after this procedure? Thanks
SnidleyW
in
British Heart Foundation
1 year ago
Post Pace and Ablate
But had the most awful night last night fast heart beat about 90 I couldn’t get much of a pulse …I thought the new
pacemaker
would kick in …but it didn’t …I know that it works if the heart beat gets too slow….
But had the most awful night last night fast heart beat about 90 I couldn’t get much of a pulse …I thought the new
pacemaker
would kick in …but it didn’t …I know that it works if the heart beat gets too slow….
Lamplight37
in
AF Association
1 year ago
Horrid painful cough , no voice and chest pains
I’ve noticed since having a
pacemaker
the slightest cough and cold really affects me , last time this happened I developed an rti.
I’ve noticed since having a
pacemaker
the slightest cough and cold really affects me , last time this happened I developed an rti.
Westie2012
in
British Heart Foundation
1 year ago
pace and ablate
I have just had the node ablation after a
pacemaker
fitting I stayed in hospital four days because I was so breathless and I still am. Can anyone advise me when this will abate ….i am86 so I am sensible to realise that my recovery will be longer than someone younger
I have just had the node ablation after a
pacemaker
fitting I stayed in hospital four days because I was so breathless and I still am. Can anyone advise me when this will abate ….i am86 so I am sensible to realise that my recovery will be longer than someone younger
Lamplight37
in
British Heart Foundation
1 year ago
Weekly episodes, trigger ideas?
I have a
pacemaker
and take metoprolol for Tachy-Brady and now flecainide for aFib. I used to take flecainide (75 daily)to control my it…until it didn’t. So, in 2006, I had an ablation, which worked beautifully and eventually allowed me to go off my flecainide completely.
I have a
pacemaker
and take metoprolol for Tachy-Brady and now flecainide for aFib. I used to take flecainide (75 daily)to control my it…until it didn’t. So, in 2006, I had an ablation, which worked beautifully and eventually allowed me to go off my flecainide completely.
Hallju
in
AF Association
1 year ago
Bicuspic Aortic Valve Experience
I signed a form before surgery which stated that there would be minimal risks of various complications one of which was to have a
pacemaker
fitted, as it was only 1% I took no notice. During the operation the surgeon damaged my AV node causing a complete heart block..
I signed a form before surgery which stated that there would be minimal risks of various complications one of which was to have a
pacemaker
fitted, as it was only 1% I took no notice. During the operation the surgeon damaged my AV node causing a complete heart block..
Completeheartblock
in
British Heart Foundation
1 year ago
Perfusion Scan
A Perfusion Scan - based on how my EF comes out will decide if (a) my
Pacemaker
batteries are replaced as planned in the next few months or (b) referred to Newcastle Freeman for a CRT-D device to be fitted.
A Perfusion Scan - based on how my EF comes out will decide if (a) my
Pacemaker
batteries are replaced as planned in the next few months or (b) referred to Newcastle Freeman for a CRT-D device to be fitted.
Hidden
in
British Heart Foundation
1 year ago
update to the return of AF/tachycardia and long talk with EP
Pacemaker
leads couldn’t be inserted in usual side due to shoulder injury and crushed veins so abandoned. New EP said he would attempt another ablation. In the event had 2 but no more possible due to extensive scarring.
Pacemaker
leads couldn’t be inserted in usual side due to shoulder injury and crushed veins so abandoned. New EP said he would attempt another ablation. In the event had 2 but no more possible due to extensive scarring.
dedeottie
in
AF Association
1 year ago
Af pacemaker
Going to high with medication for AF
pacemaker
medication, was changed to a lower dose I felt lousy for three months reason without knowing why, until
pacemaker
was having a yearly check up.Has anyone had experience and how was it it treated?
Going to high with medication for AF
pacemaker
medication, was changed to a lower dose I felt lousy for three months reason without knowing why, until
pacemaker
was having a yearly check up.Has anyone had experience and how was it it treated?
Overeating
in
AF Association
1 year ago
Uk hot weather and chest pains
I’m also getting pain around my
pacemaker
after I’ve reached to lift or move something and it’s only since the hot weather started . Just wondered if anyone can relate to the hot weather causing pain to start up.
I’m also getting pain around my
pacemaker
after I’ve reached to lift or move something and it’s only since the hot weather started . Just wondered if anyone can relate to the hot weather causing pain to start up.
Westie2012
in
British Heart Foundation
1 year ago
Good News Today
Everything is breaking down but as long as it’s not my heart and
pacemaker
, I think I’m very happy. For those that didn’t know, there was no
pacemaker
for me until recently when it was released by the FDA. I also have heart failure, so things were not looking good. Talk about a turnaround.
Everything is breaking down but as long as it’s not my heart and
pacemaker
, I think I’m very happy. For those that didn’t know, there was no
pacemaker
for me until recently when it was released by the FDA. I also have heart failure, so things were not looking good. Talk about a turnaround.
DawnTX
in
Atrial Fibrillation Support
1 year ago
need to have pacemaker fitted
Hi I have had Diffuse Systemic Sclerosis for about 14 years and been told very recently I need a
pacemaker
. Just wondered if anyone here has had one fitted and what their story is, i.e., why
pacemaker
had to be fitted, , how was the procedure and how they are now. Thanks in advance 😊
Hi I have had Diffuse Systemic Sclerosis for about 14 years and been told very recently I need a
pacemaker
. Just wondered if anyone here has had one fitted and what their story is, i.e., why
pacemaker
had to be fitted, , how was the procedure and how they are now. Thanks in advance 😊
Eden1234
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
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