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Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
8 months ago
Gabapentin and Oxycodone
Hi I'm back, looking for more advice from the wise ones on HealthUnlocked. I recently came off Pramipexole and persuaded my (UK NHS) neurologist to prescribed Oxycodone/Nalazone. I take 10mgs in the morning and 20 about 7.00pm (any later and it doesn't work). This led to an improvement, but my sleep
Hi I'm back, looking for more advice from the wise ones on HealthUnlocked. I recently came off Pramipexole and persuaded my (UK NHS) neurologist to prescribed Oxycodone/Nalazone. I take 10mgs in the morning and 20 about 7.00pm (any later and it doesn't work). This led to an improvement, but my sleep
RLSHell
in
Restless Legs Syndrome
8 months ago
RLS and neuropathy?
hey all, hope you’re doing well. Although I’ve been on Oxycodone consistently enough to keep the RLS at bay, I have noticed new symptoms of what seems to be peripheral neuropathy. in addition to the feelings of electrocution, which is what my RLS feels like, I have burning in my extremities. My
hey all, hope you’re doing well. Although I’ve been on Oxycodone consistently enough to keep the RLS at bay, I have noticed new symptoms of what seems to be peripheral neuropathy. in addition to the feelings of electrocution, which is what my RLS feels like, I have burning in my extremities. My
Marlayna67
in
Restless Legs Syndrome
8 months ago
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Buprenorphine and Naloxone 2mg/0.5 mg sublingual film
I need help from the members who have taken it or the brand name Suboxone. The oxycodone I have been taking since 2015 has lost effect therefore Doctor B prescribed Buprenorphine and Naloxone for me. The first day I experienced horrendous side effects, severe vertigo, nausea and vomting and anxiety
I need help from the members who have taken it or the brand name Suboxone. The oxycodone I have been taking since 2015 has lost effect therefore Doctor B prescribed Buprenorphine and Naloxone for me. The first day I experienced horrendous side effects, severe vertigo, nausea and vomting and anxiety
halperinchen
in
Restless Legs Syndrome
8 months ago
Help with DA augmentation recovery
I have had a considerable amount of help from Joolsg and several others on this topic but I would now like to tell everyone where I am up to currently and ask for help going forward. I stopped DAs 3 months ago after suffering from augmentation. After a period following neurologist's advice to use higher
I have had a considerable amount of help from Joolsg and several others on this topic but I would now like to tell everyone where I am up to currently and ask for help going forward. I stopped DAs 3 months ago after suffering from augmentation. After a period following neurologist's advice to use higher
davchar23
in
Restless Legs Syndrome
8 months ago
Dentist diagnosis
Hi all, I have suffered with Rheumatoid Arthritis and Lupus for over 40 years. I started having a really dry mouth when I was put on OxyCodone for pain relief. I thought it was just a side effect but my dentist says I have Sjogrens. My eyes can be quite dry by the dry mouth is relentless! I find the
Hi all, I have suffered with Rheumatoid Arthritis and Lupus for over 40 years. I started having a really dry mouth when I was put on OxyCodone for pain relief. I thought it was just a side effect but my dentist says I have Sjogrens. My eyes can be quite dry by the dry mouth is relentless! I find the
NanaFifi
in
Sjogren's Support
8 months ago
total iron blood work
I recently got my blood work done. I am a bit confused as some numbers looks”normal”, 1 low and 1 high. Iron is 15.13 (N) Unsaturated iron binding capacity is 45.5 (H) total iron binding capacity is 60.63 (N) percent saturation is 25 (N) ferritin is 21.1 For those who know a lot about the blood
I recently got my blood work done. I am a bit confused as some numbers looks”normal”, 1 low and 1 high. Iron is 15.13 (N) Unsaturated iron binding capacity is 45.5 (H) total iron binding capacity is 60.63 (N) percent saturation is 25 (N) ferritin is 21.1 For those who know a lot about the blood
Lespenney
in
Restless Legs Syndrome
9 months ago
switching meds
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin when I was on the DAs and felt super doped up in the morning. I ended up stopping taking it. After I got of the DAs I tried without meds hoping
senders
in
Restless Legs Syndrome
9 months ago
40 years of RLS
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for pramipexol, I have augmented and spent the past year still trying to get off this. I am under a sleep specialist and on 50mg of oxycodone per
Trish8433
in
Restless Legs Syndrome
9 months ago
How to escape Augmentation?
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various doctors have prescribed all the general medicines starting with antidepressants (amitriptyline, mirtazapine, imipramine, and citralopram), dopramine
davchar23
in
Restless Legs Syndrome
9 months ago
FenBen Protocol: Risky Interactions
Hi, really hoping anyone has some info about interactions between the FenBen protocol and the conservative medical treatment my father in law is receiving. Could anything on the FenBen Protocol list below potentially clash with the Doctor’s Treatment list below? How badly? FenBen Protocol: Fenbendazole
Hi, really hoping anyone has some info about interactions between the FenBen protocol and the conservative medical treatment my father in law is receiving. Could anything on the FenBen Protocol list below potentially clash with the Doctor’s Treatment list below? How badly? FenBen Protocol: Fenbendazole
Amosi
in
Advanced Prostate Cancer
9 months ago
Looking for advice, yet again, please.
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
Mulberry100
in
Restless Legs Syndrome
9 months ago
Revitive Pro Health Circulation Booster. (RLS)
Hi to all. I am trying to come off pramipexole and I am on Oxycodone and I am having a very bad time trying to come off pramipexole. My wife wants me to buy a machine from Boots the chemist. It is called "REVITIVE PRO HEALTH Circulation Booster" for about £150. It does not say it is for RLS and I don't
Hi to all. I am trying to come off pramipexole and I am on Oxycodone and I am having a very bad time trying to come off pramipexole. My wife wants me to buy a machine from Boots the chemist. It is called "REVITIVE PRO HEALTH Circulation Booster" for about £150. It does not say it is for RLS and I don't
JoeR
in
Restless Legs Syndrome
9 months ago
why docs don’t want to prescribe opioids for RLS….😔
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
Kakally
in
Restless Legs Syndrome
9 months ago
Lepto meningeal involvement. No further treatment. Palliative radiation?
Spouse 10 weeks post Pluvicto and about to embark on a Hail Mary trial of androgen receptor degrader. But yesterday's brain MRI showed spread to dura and leptomeninges. So my lovely light and love of my life is coming to the end of the road we have walked, too briefly, together. Oncologist has already
Spouse 10 weeks post Pluvicto and about to embark on a Hail Mary trial of androgen receptor degrader. But yesterday's brain MRI showed spread to dura and leptomeninges. So my lovely light and love of my life is coming to the end of the road we have walked, too briefly, together. Oncologist has already
Biobro
in
Advanced Prostate Cancer
10 months ago
Augmentation and Pramipexole
I am trying to come off pramipexole and I am down to 2 a day 88mcq tablets. Is the last part the hardest to do because I feel I need this to end as soon as possible. How long do I stay on 2 a day and then 1 a day? My replacement medicine is 20mg tabs Oxycondone twice a day. At present, I feel absolutely
I am trying to come off pramipexole and I am down to 2 a day 88mcq tablets. Is the last part the hardest to do because I feel I need this to end as soon as possible. How long do I stay on 2 a day and then 1 a day? My replacement medicine is 20mg tabs Oxycondone twice a day. At present, I feel absolutely
JoeR
in
Restless Legs Syndrome
10 months ago
opioid not working at all
Hi, I’m after some advice after years of Ropinirole use I have recently changed to Shortec 5mg Oxycodone. I have slowly increased the amount to the maximum recommended of 20mg per night which I take an hour before bed. Two months in I have never been so exhausted, I’m regularly falling asleep from
Hi, I’m after some advice after years of Ropinirole use I have recently changed to Shortec 5mg Oxycodone. I have slowly increased the amount to the maximum recommended of 20mg per night which I take an hour before bed. Two months in I have never been so exhausted, I’m regularly falling asleep from
Allatonce
in
Restless Legs Syndrome
10 months ago
Pluvicto side effects…
… are kicking my butt. I have my third round next week. I’m more fatigued than with chemo, bone pain, can’t eat, constipation — all the stuff. I’m even more concerned now because I was Rx-ed oxycodone and have increasingly been turning to that for temporary physical relief. I’m starting to think maybe
… are kicking my butt. I have my third round next week. I’m more fatigued than with chemo, bone pain, can’t eat, constipation — all the stuff. I’m even more concerned now because I was Rx-ed oxycodone and have increasingly been turning to that for temporary physical relief. I’m starting to think maybe
Arel8
in
Advanced Prostate Cancer
10 months ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
10 months ago
Visit to sleep clinic
I attended clinic (all geared up) to see consultant. Well it turned out that the appointment was with a triage nurse - not made clear on appointment papers. He was very professional and apologetic for the confusion. It soon became clear that he has the ear of the consultant who prescribes buprenorphine
I attended clinic (all geared up) to see consultant. Well it turned out that the appointment was with a triage nurse - not made clear on appointment papers. He was very professional and apologetic for the confusion. It soon became clear that he has the ear of the consultant who prescribes buprenorphine
Flora-Rose
in
Restless Legs Syndrome
11 months ago
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