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Vental hernia
Hello all. Had a cat scan yesterday. Report shows "huge" vental hernia. Dr.said largest he had seen. Has anyone else had this experience. They are planning surgery when I am off avastin 6 weeks.
Hello all. Had a cat scan yesterday. Report shows "huge" vental hernia. Dr.said largest he had seen. Has anyone else had this experience. They are planning surgery when I am off avastin 6 weeks.
chocolatemilk44
in
My Ovacome
6 months ago
carbo/gem
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
NewtonEmma1900
in
My Ovacome
6 months ago
Normal/not normal?
Just a question? I'm back worrying about little niggling aches in my pelvis, and I'm peeing again in the night about 3 times. My Ca-125 is still at 7. I'm also getting really strange brain fog where I feel really heavy headed! I've got 2 more avastin to go and I'm on lynpraza still. I haven't had a
Just a question? I'm back worrying about little niggling aches in my pelvis, and I'm peeing again in the night about 3 times. My Ca-125 is still at 7. I'm also getting really strange brain fog where I feel really heavy headed! I've got 2 more avastin to go and I'm on lynpraza still. I haven't had a
Newbery3
in
My Ovacome
7 months ago
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Anybody self funding Bevacizumab/Avastin treatment?
This was mentioned by my oncologist as an option for second line treatment. I’ve heard that it’s super expensive, but in searching for info’ it seems that some are finding it less expensive than it was. Does anybody have any experience of self funding avastin?
This was mentioned by my oncologist as an option for second line treatment. I’ve heard that it’s super expensive, but in searching for info’ it seems that some are finding it less expensive than it was. Does anybody have any experience of self funding avastin?
Emmacrispins
in
My Ovacome
7 months ago
XB0002-101 trial ( jewel??)
Ladies, anyone with any info or on this trial? Have just attended appt for this and offered it. It would be the solo drug for me, not the other arms of the trial which includes avastin and nivolumab in conjunction with trial drug. Thanks
Ladies, anyone with any info or on this trial? Have just attended appt for this and offered it. It would be the solo drug for me, not the other arms of the trial which includes avastin and nivolumab in conjunction with trial drug. Thanks
Laz66
in
My Ovacome
7 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
7 months ago
Lowered CA125 and a nugget of hope 🙏
After 2 chemo sessions of carbo & taxol plus Avastin, my blood test level has reduced from 750 to 586 which is the first positive news I have received since diagnosis mid December 👏 it has given me a huge boost! My CT scan is Tuesday 20 Feb to see if my huge mass has shrunk enough for surgery, if so
After 2 chemo sessions of carbo & taxol plus Avastin, my blood test level has reduced from 750 to 586 which is the first positive news I have received since diagnosis mid December 👏 it has given me a huge boost! My CT scan is Tuesday 20 Feb to see if my huge mass has shrunk enough for surgery, if so
Kazzh
in
My Ovacome
7 months ago
Gemcitabine and Avastin (no Carbo)
Hi everyone! For my mom's second recurrence, the doctor suggested Gemcitabine and Avastin without Carbo, as she got kidney issues and potential liver mets with the last regimen with Carbo+Caelyx. Has anyone used Gem and Avastin without Carbo? Was it effective? Did you have any side effects? Thank
Hi everyone! For my mom's second recurrence, the doctor suggested Gemcitabine and Avastin without Carbo, as she got kidney issues and potential liver mets with the last regimen with Carbo+Caelyx. Has anyone used Gem and Avastin without Carbo? Was it effective? Did you have any side effects? Thank
Centaur17
in
My Ovacome
7 months ago
Post 2nd line chemo options
Hi everyone. I was hoping I could ask for some information. I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago, initially thought was stage 3c and as it had affected a lymph node it was then upgraded to stage 4. She was treated with Paclitaxel and carboplatin
Hi everyone. I was hoping I could ask for some information. I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago, initially thought was stage 3c and as it had affected a lymph node it was then upgraded to stage 4. She was treated with Paclitaxel and carboplatin
SupportingmyMum
in
My Ovacome
7 months ago
Wet AMD and Dry AMD
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
wanttosee
in
Macular Society
8 months ago
AMD in one eye
Hi everyone, I was just diagnosed with AMD 3 weeks ago. My mother has it for 35 years now and I have been getting yearly exams. My doctor noticed drusen for the past 30 years but they never changed. 3 weeks ago I got up and the casement lines around my windows were all wavy...and my eyesight is blurry
Hi everyone, I was just diagnosed with AMD 3 weeks ago. My mother has it for 35 years now and I have been getting yearly exams. My doctor noticed drusen for the past 30 years but they never changed. 3 weeks ago I got up and the casement lines around my windows were all wavy...and my eyesight is blurry
wanttosee
in
Macular Society
8 months ago
Leo 2327
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Leo2327
in
My Ovacome
8 months ago
HGSC 3B
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
0151tmac69
in
My Ovacome
8 months ago
prolaspe
I am using
ovestin
and doing kegels. I also have a slight problem with constipation.
I am using
ovestin
and doing kegels. I also have a slight problem with constipation.
Hidden
in
Pelvic Pain Support Network
1 year ago
PV and AMD?
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
sbs_patient
in
MPN Voice
9 months ago
possible recurrence…
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
sarah040866
in
My Ovacome
9 months ago
Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
akhilsalwan
in
My Ovacome
9 months ago
How do you get past the what ifs?
Hey Everyone, Best wishes for 2024. Apologies this is a negative post I'm only 7 months into this awful journey and I keep thinking of the what ifs. What if this is my last Christmas with my family ( youngest is only 10) When their birthdays come around I think what if this is the last one I'll have
Hey Everyone, Best wishes for 2024. Apologies this is a negative post I'm only 7 months into this awful journey and I keep thinking of the what ifs. What if this is my last Christmas with my family ( youngest is only 10) When their birthdays come around I think what if this is the last one I'll have
Pixiepurple
in
My Ovacome
9 months ago
Elahere AND Avastin
Anyone on BOTH Elahere and Avastin? How are you doing?
Anyone on BOTH Elahere and Avastin? How are you doing?
9667
in
SHARE Ovarian Cancer Support
9 months ago
avastin side effects
hi. I’m currently receiving avastin immunotherapy infusions every 3 weeks. I’m wondering if others are on this and what side effects you might be experiencing.
hi. I’m currently receiving avastin immunotherapy infusions every 3 weeks. I’m wondering if others are on this and what side effects you might be experiencing.
Healingvibes400
in
SHARE Ovarian Cancer Support
9 months ago
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