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Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
akhilsalwan
in
My Ovacome
5 months ago
How do you get past the what ifs?
Hey Everyone, Best wishes for 2024. Apologies this is a negative post I'm only 7 months into this awful journey and I keep thinking of the what ifs. What if this is my last Christmas with my family ( youngest is only 10) When their birthdays come around I think what if this is the last one I'll have
Hey Everyone, Best wishes for 2024. Apologies this is a negative post I'm only 7 months into this awful journey and I keep thinking of the what ifs. What if this is my last Christmas with my family ( youngest is only 10) When their birthdays come around I think what if this is the last one I'll have
Pixiepurple
in
My Ovacome
5 months ago
Elahere AND Avastin
Anyone on BOTH Elahere and Avastin? How are you doing?
Anyone on BOTH Elahere and Avastin? How are you doing?
9667
in
SHARE Ovarian Cancer Support
5 months ago
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avastin side effects
hi. I’m currently receiving avastin immunotherapy infusions every 3 weeks. I’m wondering if others are on this and what side effects you might be experiencing.
hi. I’m currently receiving avastin immunotherapy infusions every 3 weeks. I’m wondering if others are on this and what side effects you might be experiencing.
Healingvibes400
in
SHARE Ovarian Cancer Support
5 months ago
Carbo/caelyx 2nd line
Hi all, I am about to start my 2nd line of chemo, carbo/caelyx, having done carbo/taxol/avastin first time round. I was hoping to just get to immunotherapy tbh but it looks like you need to do at least 2 series of chemo first to be eligible... so, anyone else had a similar treatment plan? Did it
Hi all, I am about to start my 2nd line of chemo, carbo/caelyx, having done carbo/taxol/avastin first time round. I was hoping to just get to immunotherapy tbh but it looks like you need to do at least 2 series of chemo first to be eligible... so, anyone else had a similar treatment plan? Did it
Lochawe
in
My Ovacome
6 months ago
Avastin
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal / tube cancer in 2021 stage 3c
Rosehannah7
in
My Ovacome
6 months ago
Any body else like me?
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Emmacrispins
in
My Ovacome
6 months ago
I have questions about Tamoxifen, aka Hormonal Therapy
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
gta03
in
SHARE Ovarian Cancer Support
6 months ago
Update
Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as I defaulted to my usual stance of avoidance. If I don’t talk about it or read about it, it will go away. I’m in a better head space now and want to share the update, in the hope of some positive stories from anyone with
Hi ladies. I haven’t posted or even looked at this site for a few weeks now, as I defaulted to my usual stance of avoidance. If I don’t talk about it or read about it, it will go away. I’m in a better head space now and want to share the update, in the hope of some positive stories from anyone with
Beaver54
in
My Ovacome
6 months ago
is there any hope for me
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
Summergold2
in
My Ovacome
6 months ago
Stay positive
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Guenivere
in
My Ovacome
6 months ago
Caelyx side effects and duration of treatment plus follow up with target therapy or immunotherapy.
Dearest,Thank you for this great forum. Sorry to bug you again with questions about Caelyx...is that I've been reading all your post and some information does not match with my doctor told me ( tomorrow I'm going for a third opinion) >First my doctor told me the side effects from Caelyx are minimum
Dearest,Thank you for this great forum. Sorry to bug you again with questions about Caelyx...is that I've been reading all your post and some information does not match with my doctor told me ( tomorrow I'm going for a third opinion) >First my doctor told me the side effects from Caelyx are minimum
Pumpkininja
in
My Ovacome
7 months ago
Recurrence symptoms
Hello everyone, If you've had a recurrence (or two or three) can you please tell me what your symptoms were the second/third time around and how they differed from your initial diagnosis? I've had to go off one of my PARPS (Lynparza) because of complications and I hate how every little thing is
Hello everyone, If you've had a recurrence (or two or three) can you please tell me what your symptoms were the second/third time around and how they differed from your initial diagnosis? I've had to go off one of my PARPS (Lynparza) because of complications and I hate how every little thing is
FlowerRose
in
My Ovacome
7 months ago
Caelyx and hair loss
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more chemo...stayed in avastin and then olaparib as maintenance until had a reocurrence in February 2022, spread to collarbone lymph nodes and tummy.Lost for the
Pumpkininja
in
My Ovacome
7 months ago
parp for hrd positive?
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
Lind58
in
My Ovacome
8 months ago
Recap and update
hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was not attempted due to significant disease remaining in mesentry. I’ve had 6 rounds of chemo now and was hoping to have debulking at this stage. However my MDT, having looked at scan have said no. I was still responding to treatment
hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was not attempted due to significant disease remaining in mesentry. I’ve had 6 rounds of chemo now and was hoping to have debulking at this stage. However my MDT, having looked at scan have said no. I was still responding to treatment
Beaver54
in
My Ovacome
8 months ago
Rash when taking avastin
Has anyone experienced an itchy rash while taking this medication.
Has anyone experienced an itchy rash while taking this medication.
Tealgirl7
in
My Ovacome
8 months ago
What should I do next?
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
Mardes
in
SHARE Ovarian Cancer Support
8 months ago
First recurrence
Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, Mullerian primary, Ovarian cancer. Had 6 chemo treatments and debulking surgery. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, Mullerian primary, Ovarian cancer. Had 6 chemo treatments and debulking surgery. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Driebergen
in
My Ovacome
8 months ago
3rd recurrence
Hi ladies, need advice on my mother's current situation. She's 3c high grade carcinoma ovarian cancer patient. She was diagnosed first in 2016 then 2019 then 2022. Her CA markers are up again. It has shoot up to 17 from 10. Same pattern was there last time 10,12,17,35,68,140.... Doctors are not going
Hi ladies, need advice on my mother's current situation. She's 3c high grade carcinoma ovarian cancer patient. She was diagnosed first in 2016 then 2019 then 2022. Her CA markers are up again. It has shoot up to 17 from 10. Same pattern was there last time 10,12,17,35,68,140.... Doctors are not going
HealthyBeing
in
My Ovacome
8 months ago
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