Search
Search
About
Log in
Join
Experiences with
Occupational lung conditions
Posts
Communities
32,782 public posts
Filter results
EGFR p.L747_T751de
Hi, Dad’s oncologist has stopped the Erlotinib as last scan in Jan showed tumour growth. Private Liquid biopsy result just back, mutation EGFR p.L747_T751de. No treatment offered by NHS, oncologist thinks will be more harmful to dad but how does he know for sure? I read some PubMed data that restarting
Hi, Dad’s oncologist has stopped the Erlotinib as last scan in Jan showed tumour growth. Private Liquid biopsy result just back, mutation EGFR p.L747_T751de. No treatment offered by NHS, oncologist thinks will be more harmful to dad but how does he know for sure? I read some PubMed data that restarting
Adaughter
in
The Roy Castle Lung Cancer Foundation
4 months ago
Please join us next Tuesday, March 19th for our Small Cell Lung Cancer Treatment Landscape Living Room
Hello, Please join us in our San Carlos office next Tuesday March 19th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jared Weiss, MD, Professor of Medicine, Section Chief of Thoracic and Head/Neck Oncology at University
Hello, Please join us in our San Carlos office next Tuesday March 19th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jared Weiss, MD, Professor of Medicine, Section Chief of Thoracic and Head/Neck Oncology at University
Michelezeh
Partner
in
Lung Cancer Support
4 months ago
Spinal injection
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Hi everyone how are we all today ? Well I've now asked Painmanagement for a spinal injection physio just not helping and I cant cope with anymore piriformis and sciatica so speak to them in 2 weeks. I had one in 2014 but it wasnt very successful but that was then this is now. What is your thought on
Betsy50
in
Pain Concern
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Immunotherapy
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
Gingergus
in
The Roy Castle Lung Cancer Foundation
4 months ago
neck tightness
hi all, I don’t know if this is an asthma symptom but the front of my neck feels really tight and like stretching pain. It just feels so tight it’s making me panic
hi all, I don’t know if this is an asthma symptom but the front of my neck feels really tight and like stretching pain. It just feels so tight it’s making me panic
Hiddenhidden224
in
Asthma Community Forum
9 months ago
DAO Supplement + Lung Transplant.
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
mrblue12
in
Lung Conditions Community Forum
4 months ago
Colomycin
Hello everyone. Is there anyone else on here that is taking Colomycin via a nebuliser? I have had it often but not for the last 6 months. I restarted it on Thursday 19th October and since have been suffering badly with asthma, congestion and crackling, particularly at night when I lay down. I've
Hello everyone. Is there anyone else on here that is taking Colomycin via a nebuliser? I have had it often but not for the last 6 months. I restarted it on Thursday 19th October and since have been suffering badly with asthma, congestion and crackling, particularly at night when I lay down. I've
PAP48
in
Lung Conditions Community Forum
9 months ago
Lung Transplant + Fermented Foods
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
mrblue12
in
Lung Conditions Community Forum
4 months ago
Are you in London? Next Information Day 13/3
Hello all, If you have had a diagnosis or are supporting someone with lung cancer you might be interested in joining our next Information Day. This will be held from 9.45 - 15.30 in London at the AFC Wimbledon club SW17 0NR. The day will have updates on targeted therapies, surgery and other treatments
Hello all, If you have had a diagnosis or are supporting someone with lung cancer you might be interested in joining our next Information Day. This will be held from 9.45 - 15.30 in London at the AFC Wimbledon club SW17 0NR. The day will have updates on targeted therapies, surgery and other treatments
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
4 months ago
Treatment stopped
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
Adaughter
in
The Roy Castle Lung Cancer Foundation
5 months ago
Radiotherapy
Hello,I'm a 51 yrs old woman that has just very recently been diagnosed with advanced lung cancer. Just reaching out and trying to understand from others.
Hello,I'm a 51 yrs old woman that has just very recently been diagnosed with advanced lung cancer. Just reaching out and trying to understand from others.
Raggety
in
The Roy Castle Lung Cancer Foundation
5 months ago
Media request - London biopsy experience
Hello We have had this request from a producer at Sky news "This is Eleonora, Specialist Producer at Sky News, We’re planning to do a story about this technology trialled by Imperial researchers to detect lung cancer and were trying to speak with some people affected by lung cancer in London who
Hello We have had this request from a producer at Sky news "This is Eleonora, Specialist Producer at Sky News, We’re planning to do a story about this technology trialled by Imperial researchers to detect lung cancer and were trying to speak with some people affected by lung cancer in London who
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
5 months ago
Events for people affected by lung cancer
Hello all, We are starting a series of Information Days in a few weeks. These events which run from 9.45 - 3.30 are designed to offer information about managing diagnosis, treatment and services that can offer practical and emotional support. There is time for talking to other people and asking questions
Hello all, We are starting a series of Information Days in a few weeks. These events which run from 9.45 - 3.30 are designed to offer information about managing diagnosis, treatment and services that can offer practical and emotional support. There is time for talking to other people and asking questions
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
5 months ago
Please join us tomorrow, Tuesday February 20th, for our Living Room Discussion on Women and Lung Cancer
Hello, Please join us in our San Carlos office tomorrow, Tuesday February 20th in person or if you don’t live in the area, you can always join us virtually on GO2's YouTube Live channel. Our program topic will be Women and Lung Cancer. Our guest speaker is Narjust Florez, MD, Associate Director of
Hello, Please join us in our San Carlos office tomorrow, Tuesday February 20th in person or if you don’t live in the area, you can always join us virtually on GO2's YouTube Live channel. Our program topic will be Women and Lung Cancer. Our guest speaker is Narjust Florez, MD, Associate Director of
Michelezeh
Partner
in
Lung Cancer Support
5 months ago
Side effects of nefopam sweats
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Jackieginger44
in
Pain Concern
4 months ago
FDA Approves Tepmetko (tepotinib) for People with Metastatic Non-Small Cell Lung Cancer with MET-Exon 14 Mutation
On Feb. 15, 2024, the U.S. Food and Drug Administration (FDA) granted traditional approval of Tepmetko (tepotinib) for people living with metastatic non-small cell lung cancer (NSCLC) with a MET-Exon 14 mutation. Tepmetko (tepotinib) initially received accelerated approval in 2021 based on initial results
On Feb. 15, 2024, the U.S. Food and Drug Administration (FDA) granted traditional approval of Tepmetko (tepotinib) for people living with metastatic non-small cell lung cancer (NSCLC) with a MET-Exon 14 mutation. Tepmetko (tepotinib) initially received accelerated approval in 2021 based on initial results
Miranda_GO2
Partner
in
Lung Cancer Support
5 months ago
Clinical trials?
At the oncology appointment yesterday my husband was given what I believe is an amazing opportunity, he has the option of starting standard care ( immunotherapy pembrolizumab ) or participating in clinical trials where they will be also adding a second drug for a two pronged approach. Whilst I know
At the oncology appointment yesterday my husband was given what I believe is an amazing opportunity, he has the option of starting standard care ( immunotherapy pembrolizumab ) or participating in clinical trials where they will be also adding a second drug for a two pronged approach. Whilst I know
Flay75
in
The Roy Castle Lung Cancer Foundation
5 months ago
Virtual website advisory board for US Residents
*This is post was approved by GO2 for Lung Cancer Admin* A healthcare company is seeking patients who are 18 years and older who have been diagnosed with lung, ovarian, breast, endometrial or other solid tumor cancers to participate in a virtual Website Advisory Board in early 2024. The objective of
*This is post was approved by GO2 for Lung Cancer Admin* A healthcare company is seeking patients who are 18 years and older who have been diagnosed with lung, ovarian, breast, endometrial or other solid tumor cancers to participate in a virtual Website Advisory Board in early 2024. The objective of
Miranda_GO2
Partner
in
Lung Cancer Support
5 months ago
Any tips for recovery please
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
xinte60
in
The Roy Castle Lung Cancer Foundation
5 months ago
Intersitial Lung Disease and Lung Cancer
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Clairebrocks
in
The Roy Castle Lung Cancer Foundation
5 months ago
1
...
3
4
5
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
IBS Network
2901 results
Thyroid UK
2330 results
Lung Conditions Community Forum
1618 results
View top 10 communities
Sort by
Most Relevant
Newest