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Ocaliva
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6-week update on ocaliva
Started
Ocaliva
11/13. I was very nervous about it. Was really itchy weeks 2-4, it’s better now. ALP from 274 to 191 ( high of 375) ALT from 89 to 67 (high of 207) AST from 52 to 39 (high of 139) Still a ways to go but I’m feeling very hopeful and grateful.
Started
Ocaliva
11/13. I was very nervous about it. Was really itchy weeks 2-4, it’s better now. ALP from 274 to 191 ( high of 375) ALT from 89 to 67 (high of 207) AST from 52 to 39 (high of 139) Still a ways to go but I’m feeling very hopeful and grateful.
Ottley3
in
PBC Foundation
7 years ago
Ocaliva and weight gain.
I started
ocaliva
3 months ago and already gained 10 pounds. As anyone else had this problem and what did you do to change it. It's mostly in my stomach, I'm pretty worried since this medication has caused death in 19 people so far.
I started
ocaliva
3 months ago and already gained 10 pounds. As anyone else had this problem and what did you do to change it. It's mostly in my stomach, I'm pretty worried since this medication has caused death in 19 people so far.
Debrann62
in
PBC Foundation
7 years ago
Starting Ocaliva
I am starting on
Ocaliva
next week as I am not responding to URSO after 9 months. Anyone have any pointers for me as I start this new drug
I am starting on
Ocaliva
next week as I am not responding to URSO after 9 months. Anyone have any pointers for me as I start this new drug
happy0507
in
PBC Foundation
7 years ago
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Take 1 or 2
I thought by starting
ocaliva
I could stop Urso? From what I've read I am supposed to take both. Looking for help here. Also I feel I've gained weight but no other problems.
I thought by starting
ocaliva
I could stop Urso? From what I've read I am supposed to take both. Looking for help here. Also I feel I've gained weight but no other problems.
Debrann62
in
PBC Foundation
7 years ago
Dragging my feet on starting ocaliva
Because my blood test had plateau’ed, my hepatologist recommends that I start on
Ocaliva
. I was prepared to do it - have the pills and all, but am suddenly nervous about side effects of
Ocaliva
(i have none with Urso) and potential damage when I am in very early stages.
Because my blood test had plateau’ed, my hepatologist recommends that I start on
Ocaliva
. I was prepared to do it - have the pills and all, but am suddenly nervous about side effects of
Ocaliva
(i have none with Urso) and potential damage when I am in very early stages.
Ottley3
in
PBC Foundation
7 years ago
Generic URSO & Effectiveness
ALP started going up and up and up and my doc wanted to put me on
Ocaliva
. I put that off as long as possible - and I actually asked him about different brands - if that could be the case (he had never heard of that happening).
ALP started going up and up and up and my doc wanted to put me on
Ocaliva
. I put that off as long as possible - and I actually asked him about different brands - if that could be the case (he had never heard of that happening).
Ktltel
in
PBC Foundation
7 years ago
Ocaliva side effects does it improve?
Interested to understand if anybody has had side effects taking
Ocaliva
.
Interested to understand if anybody has had side effects taking
Ocaliva
.
AB12
in
PBC Foundation
7 years ago
Intercept Patient Update for Ocaliva
At month 12, the reduction from baseline in mean HDL-C level was 19% in the
Ocaliva
10 mg arm, 12% in the
Ocaliva
titration arm and 2% in the placebo arm.
At month 12, the reduction from baseline in mean HDL-C level was 19% in the
Ocaliva
10 mg arm, 12% in the
Ocaliva
titration arm and 2% in the placebo arm.
Jo_Br
in
PBC Foundation
7 years ago
Obeticholic Acid, aka OCA or Ocaliva
https://www.pbcfoundation.org.uk/news/latest-news/statement-from-the-medical-advisory-committee-of-pbc-foundation Please see the link above to the statement from the Medical Advisory Board of the PBC Foundation. It has been on the site for a while but I wasn't sure if you had managed to find it. I
https://www.pbcfoundation.org.uk/news/latest-news/statement-from-the-medical-advisory-committee-of-pbc-foundation Please see the link above to the statement from the Medical Advisory Board of the PBC Foundation. It has been on the site for a while but I wasn't sure if you had managed to find it. I
PBCRobert
Administrator
in
PBC Foundation
7 years ago
This was on a U. S. A. PBC Forum
https://ocalivahcp.com/_assets/_pdfs/
Ocaliva
-Dear-HCP-Letter-9.8.17.pdf Intercept is reminding physicians about the proper use of
Ocaliva
in people with PBC with advanced cirrhosis.
https://ocalivahcp.com/_assets/_pdfs/
Ocaliva
-Dear-HCP-Letter-9.8.17.pdf Intercept is reminding physicians about the proper use of
Ocaliva
in people with PBC with advanced cirrhosis.
Ktltel
in
PBC Foundation
7 years ago
Ductopenic Variant anybody?
By aggressive if Urso is not working and
Ocaliva
not being used, I am presuming transplant. I just want to wake up like I did last year and feel itchy and tired and put it down to 24-hour care for Granny and menopause. Tagging PBCRobert I feel I need to bend your ear again?
By aggressive if Urso is not working and
Ocaliva
not being used, I am presuming transplant. I just want to wake up like I did last year and feel itchy and tired and put it down to 24-hour care for Granny and menopause. Tagging PBCRobert I feel I need to bend your ear again?
Jo_Br
in
PBC Foundation
7 years ago
FDA Drug Safety Communication: FDA warns about serious liver injury with Ocaliva (obeticholic acid) for rare chronic liver disease
It sounds alarmist, it seems mainly to be incorrect dosage given and as a patient being considered for it or taking it I would want to know. https://www.fda.gov/Drugs/DrugSafety/ucm576656.htm
It sounds alarmist, it seems mainly to be incorrect dosage given and as a patient being considered for it or taking it I would want to know. https://www.fda.gov/Drugs/DrugSafety/ucm576656.htm
Jo_Br
in
PBC Foundation
7 years ago
Ocaliva and side effects
I've been offered to change to
Ocaliva
or to take part in a clinical trial. I'm concerned about the side effects of
Ocaliva
but I'm interested to hear how those of you who are or did take it found the side effects.
I've been offered to change to
Ocaliva
or to take part in a clinical trial. I'm concerned about the side effects of
Ocaliva
but I'm interested to hear how those of you who are or did take it found the side effects.
Fifibee11
in
PBC Foundation
7 years ago
Recent labs
Wondering if they've gone the opposite direction this time due to the alternation of
Ocaliva
5mg &
Ocaliva
10mg. Pluscvs would anyone thank it could be due to my varicies bleeding again? I see my heptologist at Indiana university on Sept 25th.
Wondering if they've gone the opposite direction this time due to the alternation of
Ocaliva
5mg &
Ocaliva
10mg. Pluscvs would anyone thank it could be due to my varicies bleeding again? I see my heptologist at Indiana university on Sept 25th.
Shulsey
in
PBC Foundation
7 years ago
Feeling confused, frustrated and worried.
She said that she had been communicating with Addenbrookes and I was to be given Fenofibrate as
Ocaliva
can increase the itch. I was relieved to hear.
She said that she had been communicating with Addenbrookes and I was to be given Fenofibrate as
Ocaliva
can increase the itch. I was relieved to hear.
Jo_Br
in
PBC Foundation
7 years ago
Short Lived responder to Urso
She had had a chat with George Mells at Addenbrookes and he will be trying me on Fenofibrate, she said
Ocaliva
would be unwise because of my itch and even though it is not always the case that is the plan.
She had had a chat with George Mells at Addenbrookes and he will be trying me on Fenofibrate, she said
Ocaliva
would be unwise because of my itch and even though it is not always the case that is the plan.
Jo_Br
in
PBC Foundation
7 years ago
Intercept Dives On Warning Of Drug-Related Injuries, Deaths
http://www.investors.com/news/technology/intercept-dives-on-warning-of-drug-related-injuries-deaths/ Additionally, Intercept's Letter to Health Care Providers can be found here: https://ocalivahcp.com/_assets/_pdfs/
Ocaliva
-Dear-HCP-Letter-9.8.17.pdf but not here: https://ocaliva.com/ If you just browse
http://www.investors.com/news/technology/intercept-dives-on-warning-of-drug-related-injuries-deaths/ Additionally, Intercept's Letter to Health Care Providers can be found here: https://ocalivahcp.com/_assets/_pdfs/
Ocaliva
-Dear-HCP-Letter-9.8.17.pdf but not here: https://ocaliva.com/ If you just browse
Betonarme
in
PBC Foundation
7 years ago
Really ticked off
My Internist pushed for them to give me
Ocaliva
. My insurance DENIED it because they want me to see a Gastro again. Problem is, I've seen 2 now and both want this ridiculous scam of doing a liver biopsy, which I refused, with both of them and they fired me for refusal.
My Internist pushed for them to give me
Ocaliva
. My insurance DENIED it because they want me to see a Gastro again. Problem is, I've seen 2 now and both want this ridiculous scam of doing a liver biopsy, which I refused, with both of them and they fired me for refusal.
donna01
in
PBC Foundation
7 years ago
Labs
Still taking the Urso with
Ocaliva
5mg. Waiting in the
Ocaliva
10mg to see if they start moving more
Still taking the Urso with
Ocaliva
5mg. Waiting in the
Ocaliva
10mg to see if they start moving more
Shulsey
in
PBC Foundation
7 years ago
Need a doctor
My doctor has not prescribed Urso or
Ocaliva
and I am getting worse by the day with jaundice, swelling in abdomen and feet and legs, severe fatigue and I feel horrible. Thanks for any advice.
My doctor has not prescribed Urso or
Ocaliva
and I am getting worse by the day with jaundice, swelling in abdomen and feet and legs, severe fatigue and I feel horrible. Thanks for any advice.
Mary2017
in
PBC Foundation
7 years ago
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