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Ocaliva
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Ocaliva
Not real sure why but my heptologist is wanting me to start taking 10mg
Ocaliva
on Mon- Wed-Fri. Then take 5mg
Ocaliva
on the days between for one month, then 10mg from then on. I thought that the 5 mg was doing great.
Not real sure why but my heptologist is wanting me to start taking 10mg
Ocaliva
on Mon- Wed-Fri. Then take 5mg
Ocaliva
on the days between for one month, then 10mg from then on. I thought that the 5 mg was doing great.
Shulsey
in
PBC Foundation
7 years ago
Update: Labs
The
Ocaliva
& Urso seem to be working well together. Praying they continue to move the numbers. Thank you everyone for all of your support & prayers. Back in two weeks for the same labs. Stay strong❣️
The
Ocaliva
& Urso seem to be working well together. Praying they continue to move the numbers. Thank you everyone for all of your support & prayers. Back in two weeks for the same labs. Stay strong❣️
Shulsey
in
PBC Foundation
7 years ago
PBC Antibody GP 210 What does it mean?
For any PBC, this may be enhanced with
OCALIVA
(obeticholic acid) or in the future a few more treatments as they get licensed. The itch is treated still, but not all of the routinely prescribed treatments can be used. I have been prescribed Gabapentin.
For any PBC, this may be enhanced with
OCALIVA
(obeticholic acid) or in the future a few more treatments as they get licensed. The itch is treated still, but not all of the routinely prescribed treatments can be used. I have been prescribed Gabapentin.
Jo_Br
in
PBC Foundation
7 years ago
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Adverse response to Urso so put on Ocaliva. My alkaline phosphatase remains around 300. How do I know if the Ocaliva is working?
Also since I have started
Ocaliva
, I have had a rapid increase in my otherwise normal cholesterol. This could be coincidence as this is part of the progression of PBC, or did the
Ocaliva
trigger the high cholesterol levels.
Also since I have started
Ocaliva
, I have had a rapid increase in my otherwise normal cholesterol. This could be coincidence as this is part of the progression of PBC, or did the
Ocaliva
trigger the high cholesterol levels.
Q8Cooper
in
PBC Foundation
7 years ago
Has any one diagnosed with PBC gone untreated for any length of time?
I now am on
Ocaliva
. Just wondering how many of us have gone extended periods without treatment. Kathy
I now am on
Ocaliva
. Just wondering how many of us have gone extended periods without treatment. Kathy
Q8Cooper
in
PBC Foundation
7 years ago
Hello I am brand new to the group, and sure am glad to have found you!
I am now 56 and have been started on
Ocaliva
. My primary care doctor really has no clue about PBC, however I have a good gastro doc. who is learning more and more each day.
I am now 56 and have been started on
Ocaliva
. My primary care doctor really has no clue about PBC, however I have a good gastro doc. who is learning more and more each day.
Q8Cooper
in
PBC Foundation
7 years ago
Side effects of Ocaliva
Ever since I am taking
Ocaliva
I feel stiffness in my knees. My doc did some tests and one of them is Sed rate. My sed rate is 37 which is higher for my age. Is there anyone who has higher sed rate even if they don't take
Ocaliva
?
Ever since I am taking
Ocaliva
I feel stiffness in my knees. My doc did some tests and one of them is Sed rate. My sed rate is 37 which is higher for my age. Is there anyone who has higher sed rate even if they don't take
Ocaliva
?
Mg40
in
PBC Foundation
7 years ago
Fingers Crossed
I started the
Ocaliva
yesterday. After a bit of a battle with the insurance it's coveted. Fingers crossed this works to lower my enzymes:-)
I started the
Ocaliva
yesterday. After a bit of a battle with the insurance it's coveted. Fingers crossed this works to lower my enzymes:-)
Shulsey
in
PBC Foundation
7 years ago
Finally seen Hepatologist
My ALP is still higher than he expected since I take Urso and
Ocaliva
. He said if there was still no change when I go back he will up my dose of
Ocaliva
. I am taking hydroxyzine for the itch but it doesn't seem to work at first it seemed to help a little.
My ALP is still higher than he expected since I take Urso and
Ocaliva
. He said if there was still no change when I go back he will up my dose of
Ocaliva
. I am taking hydroxyzine for the itch but it doesn't seem to work at first it seemed to help a little.
Lisa15
in
PBC Foundation
7 years ago
Good news
I will be getting my
Ocaliva
in the mail very soon. Prayers that this will bring my numbers down to where they aren't crazy high. I never thought I would be so excited about starting a new medication😏🤔
I will be getting my
Ocaliva
in the mail very soon. Prayers that this will bring my numbers down to where they aren't crazy high. I never thought I would be so excited about starting a new medication😏🤔
Shulsey
in
PBC Foundation
7 years ago
Ocaliva cost??
If not he says we'll start
Ocaliva
at that point. He said sometimes it's hard to get insurance companies to cover it because its like $10,000 a month. While he may or may not be exaggerating I get the feeling its very expensive. I live in the US...Texas to be more specific.
If not he says we'll start
Ocaliva
at that point. He said sometimes it's hard to get insurance companies to cover it because its like $10,000 a month. While he may or may not be exaggerating I get the feeling its very expensive. I live in the US...Texas to be more specific.
marty102
in
PBC Foundation
7 years ago
Add too hep visit
I forgot you add that I am starting
Ocaliva
as soon as my insurance okays it. Dr says that it can take a little time for that😕. Fingers crossed that my labs will start to become lower & I can start to feel a little closer to normal.
I forgot you add that I am starting
Ocaliva
as soon as my insurance okays it. Dr says that it can take a little time for that😕. Fingers crossed that my labs will start to become lower & I can start to feel a little closer to normal.
Shulsey
in
PBC Foundation
7 years ago
Ocaliva just came across this please read if you struggle with urso like me 😕
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc 🤗😲 I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! 😊💪🏻
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc 🤗😲 I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! 😊💪🏻
Shazzamattaz
in
British Liver Trust
7 years ago
Not the worst thing I've had to live with....
In December, my doctor put me on
Ocaliva
WITH the Urso. It took Alk-phos down to 270ish BUT I broke out in an itchy rash. I decided to stop it for a bit to see what happened And the rash subsided. Went back on it the other day and got the rash, again.
In December, my doctor put me on
Ocaliva
WITH the Urso. It took Alk-phos down to 270ish BUT I broke out in an itchy rash. I decided to stop it for a bit to see what happened And the rash subsided. Went back on it the other day and got the rash, again.
Suzi8
in
PBC Foundation
7 years ago
Ocaliva UK
. 🙋 I was diagnosed with PBC last June at 44yrs old and although my LFT have improved on Urso, my AST,ALP remain in 400s + My consultant is starting me on
Ocaliva
and just wondered if anyone else in UK have tried this?
. 🙋 I was diagnosed with PBC last June at 44yrs old and although my LFT have improved on Urso, my AST,ALP remain in 400s + My consultant is starting me on
Ocaliva
and just wondered if anyone else in UK have tried this?
Starfish72
in
PBC Foundation
8 years ago
Obeticholic acid
https://globenewswire.com/news-release/2017/03/02/929951/0/en/NICE-Recommends-
Ocaliva
-obeticholic-acid-for-the-Treatment-of-Patients-with-Primary-Biliary-Cholangitis-in-England-Wales-and-Northern-Ireland.html ... May be worth chatting with your consultants about guys n gals 👍😆😇
https://globenewswire.com/news-release/2017/03/02/929951/0/en/NICE-Recommends-
Ocaliva
-obeticholic-acid-for-the-Treatment-of-Patients-with-Primary-Biliary-Cholangitis-in-England-Wales-and-Northern-Ireland.html ... May be worth chatting with your consultants about guys n gals 👍😆😇
AliPhillips
in
PBC Foundation
8 years ago
Ocaliva
Just started a new drug
Ocaliva
I take 5mg daily. This is a new drug for people that have PBC that take URSO and it doesn't work for them. Just checking if anyone has been taking this drug. I am having extreme itching.
Just started a new drug
Ocaliva
I take 5mg daily. This is a new drug for people that have PBC that take URSO and it doesn't work for them. Just checking if anyone has been taking this drug. I am having extreme itching.
Shirl5
in
PBC Foundation
8 years ago
Side effects of Ocaliva
So my gastroenterologist prescribed
Ocaliva
5mg daily along with 1000 Urso. I took it for two days and I am having some side effects. As soon I take Oca, I feel very sleepy. After sleeping for about two hours I feel very light headed and very low in energy. I felt little dizzy.
So my gastroenterologist prescribed
Ocaliva
5mg daily along with 1000 Urso. I took it for two days and I am having some side effects. As soon I take Oca, I feel very sleepy. After sleeping for about two hours I feel very light headed and very low in energy. I felt little dizzy.
Mg40
in
PBC Foundation
8 years ago
From Gastro to Hepatologist
He wants to send me to a Hepatologist because my ALP doesn't to seem to be changing and I am on Urso and
Ocaliva
. I stay very fatigued and the itch is not much better. He also wants me to have a colonoscopy because of the polyps he found during the upper scope, he said it would be best to check.
He wants to send me to a Hepatologist because my ALP doesn't to seem to be changing and I am on Urso and
Ocaliva
. I stay very fatigued and the itch is not much better. He also wants me to have a colonoscopy because of the polyps he found during the upper scope, he said it would be best to check.
Lisa15
in
PBC Foundation
8 years ago
Should be Sceptical with OCA?
First We were happy that
Ocaliva
finally is available. But my wife once stated that We should better wait and see long term effects of the new drug. She said Urso is relatively safer because it's in use since about 20 years or so.
First We were happy that
Ocaliva
finally is available. But my wife once stated that We should better wait and see long term effects of the new drug. She said Urso is relatively safer because it's in use since about 20 years or so.
Betonarme
in
PBC Foundation
8 years ago
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