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Ocaliva
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Ocaliva cost??
If not he says we'll start
Ocaliva
at that point. He said sometimes it's hard to get insurance companies to cover it because its like $10,000 a month. While he may or may not be exaggerating I get the feeling its very expensive. I live in the US...Texas to be more specific.
If not he says we'll start
Ocaliva
at that point. He said sometimes it's hard to get insurance companies to cover it because its like $10,000 a month. While he may or may not be exaggerating I get the feeling its very expensive. I live in the US...Texas to be more specific.
marty102
in
PBC Foundation
7 years ago
Add too hep visit
I forgot you add that I am starting
Ocaliva
as soon as my insurance okays it. Dr says that it can take a little time for that๐. Fingers crossed that my labs will start to become lower & I can start to feel a little closer to normal.
I forgot you add that I am starting
Ocaliva
as soon as my insurance okays it. Dr says that it can take a little time for that๐. Fingers crossed that my labs will start to become lower & I can start to feel a little closer to normal.
Shulsey
in
PBC Foundation
7 years ago
Ocaliva just came across this please read if you struggle with urso like me ๐
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc ๐ค๐ฒ I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! ๐๐ช๐ป
I have just come across this site https://ocaliva.com/ if you find it hard to take urso like me, this is another medication you can take for pbc ๐ค๐ฒ I didn't think there was any other medication, please have a look, if likevme you struggle taking urso xxx hope this helps! ๐๐ช๐ป
Shazzamattaz
in
British Liver Trust
7 years ago
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Not the worst thing I've had to live with....
In December, my doctor put me on
Ocaliva
WITH the Urso. It took Alk-phos down to 270ish BUT I broke out in an itchy rash. I decided to stop it for a bit to see what happened And the rash subsided. Went back on it the other day and got the rash, again.
In December, my doctor put me on
Ocaliva
WITH the Urso. It took Alk-phos down to 270ish BUT I broke out in an itchy rash. I decided to stop it for a bit to see what happened And the rash subsided. Went back on it the other day and got the rash, again.
Suzi8
in
PBC Foundation
7 years ago
Ocaliva UK
. ๐ I was diagnosed with PBC last June at 44yrs old and although my LFT have improved on Urso, my AST,ALP remain in 400s + My consultant is starting me on
Ocaliva
and just wondered if anyone else in UK have tried this?
. ๐ I was diagnosed with PBC last June at 44yrs old and although my LFT have improved on Urso, my AST,ALP remain in 400s + My consultant is starting me on
Ocaliva
and just wondered if anyone else in UK have tried this?
Starfish72
in
PBC Foundation
7 years ago
Obeticholic acid
https://globenewswire.com/news-release/2017/03/02/929951/0/en/NICE-Recommends-
Ocaliva
-obeticholic-acid-for-the-Treatment-of-Patients-with-Primary-Biliary-Cholangitis-in-England-Wales-and-Northern-Ireland.html ... May be worth chatting with your consultants about guys n gals ๐๐๐
https://globenewswire.com/news-release/2017/03/02/929951/0/en/NICE-Recommends-
Ocaliva
-obeticholic-acid-for-the-Treatment-of-Patients-with-Primary-Biliary-Cholangitis-in-England-Wales-and-Northern-Ireland.html ... May be worth chatting with your consultants about guys n gals ๐๐๐
AliPhillips
in
PBC Foundation
7 years ago
Ocaliva
Just started a new drug
Ocaliva
I take 5mg daily. This is a new drug for people that have PBC that take URSO and it doesn't work for them. Just checking if anyone has been taking this drug. I am having extreme itching.
Just started a new drug
Ocaliva
I take 5mg daily. This is a new drug for people that have PBC that take URSO and it doesn't work for them. Just checking if anyone has been taking this drug. I am having extreme itching.
Shirl5
in
PBC Foundation
7 years ago
Side effects of Ocaliva
So my gastroenterologist prescribed
Ocaliva
5mg daily along with 1000 Urso. I took it for two days and I am having some side effects. As soon I take Oca, I feel very sleepy. After sleeping for about two hours I feel very light headed and very low in energy. I felt little dizzy.
So my gastroenterologist prescribed
Ocaliva
5mg daily along with 1000 Urso. I took it for two days and I am having some side effects. As soon I take Oca, I feel very sleepy. After sleeping for about two hours I feel very light headed and very low in energy. I felt little dizzy.
Mg40
in
PBC Foundation
7 years ago
From Gastro to Hepatologist
He wants to send me to a Hepatologist because my ALP doesn't to seem to be changing and I am on Urso and
Ocaliva
. I stay very fatigued and the itch is not much better. He also wants me to have a colonoscopy because of the polyps he found during the upper scope, he said it would be best to check.
He wants to send me to a Hepatologist because my ALP doesn't to seem to be changing and I am on Urso and
Ocaliva
. I stay very fatigued and the itch is not much better. He also wants me to have a colonoscopy because of the polyps he found during the upper scope, he said it would be best to check.
Lisa15
in
PBC Foundation
7 years ago
Should be Sceptical with OCA?
First We were happy that
Ocaliva
finally is available. But my wife once stated that We should better wait and see long term effects of the new drug. She said Urso is relatively safer because it's in use since about 20 years or so.
First We were happy that
Ocaliva
finally is available. But my wife once stated that We should better wait and see long term effects of the new drug. She said Urso is relatively safer because it's in use since about 20 years or so.
Betonarme
in
PBC Foundation
7 years ago
European Commission Grants Intercept's Ocalivaยฎ (obeticholic acid) Marketing Authorization
Last minute present before the Xmas :) http://ir.interceptpharma.com/releasedetail.cfm?ReleaseID=1004114
Last minute present before the Xmas :) http://ir.interceptpharma.com/releasedetail.cfm?ReleaseID=1004114
Betonarme
in
PBC Foundation
7 years ago
I am new here. Diagnosed with PBC in 2002 maybe starting Ocaliva soon.
She told me about a new medication called
Ocaliva
. I was wondering if anyone is taking this with some details. They say this could stop my itching and lower my numbers. Has anyone had any luck with this new medication? All help is appreciated.
She told me about a new medication called
Ocaliva
. I was wondering if anyone is taking this with some details. They say this could stop my itching and lower my numbers. Has anyone had any luck with this new medication? All help is appreciated.
Nicaganew
in
PBC Foundation
7 years ago
Is anyone on the new drug Ocaliva?
I went to my doctor today and he was very excited to tell me about this new drug
Ocaliva
for PBC that got FDA approved at the end of May and available since June. He wants my ALP numbers to go down more so I will be taking 2 URSO pills + 1
Ocaliva
5mg pill per day. I was taking 3 URSOs per day.
I went to my doctor today and he was very excited to tell me about this new drug
Ocaliva
for PBC that got FDA approved at the end of May and available since June. He wants my ALP numbers to go down more so I will be taking 2 URSO pills + 1
Ocaliva
5mg pill per day. I was taking 3 URSOs per day.
Pea1234
in
PBC Foundation
8 years ago
OCA gets a green light from FDA
http://www.fiercebiotech.com/intercept-pharma-gets-accelerated-fda-ok-for-liver-drug-
ocaliva
http://www.fiercebiotech.com/intercept-pharma-gets-accelerated-fda-ok-for-liver-drug-
ocaliva
Betonarme
in
PBC Foundation
8 years ago
Things are looking up!
I posted on here a few days ago as my dad has pif and had declined dramatically over the last two weeks. He was admitted to hospital a week ago stuck in a cycle of coughing, shortness of breath and passing out. The hospital and his consultant were useless, he was discharged the following day and we
I posted on here a few days ago as my dad has pif and had declined dramatically over the last two weeks. He was admitted to hospital a week ago stuck in a cycle of coughing, shortness of breath and passing out. The hospital and his consultant were useless, he was discharged the following day and we
Saplam
in
Lung Conditions Community Forum
8 years ago
Slow letters to GPs
Why is it that consultants secretaries take so long to send letters to GPs? I know from experience that it does take a while usually about 3 weeks for the letters to be typed and forwarded to GPs but 5 weeks on and I am still waiting for my GP to get a letter from my Scleroderma specialist, to the extent
Why is it that consultants secretaries take so long to send letters to GPs? I know from experience that it does take a while usually about 3 weeks for the letters to be typed and forwarded to GPs but 5 weeks on and I am still waiting for my GP to get a letter from my Scleroderma specialist, to the extent
PaleIndian2
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Question?
Has anyone on here suffered with really bad dry mouth no saliva especially at night, I was thinking of trying an artificial saliva spray are they any good? Any answers please would be appreciated thank you our should I book a doctor's appointment?
Has anyone on here suffered with really bad dry mouth no saliva especially at night, I was thinking of trying an artificial saliva spray are they any good? Any answers please would be appreciated thank you our should I book a doctor's appointment?
Silly-mummy
in
Lung Conditions Community Forum
9 years ago
Dry Mouth
I was diagnosed with Parkinsons about 8 years ago. I have recently started having a dry mouth resulting from a lack of saliva. This has caused me to have a very sore tongue, amongst other things. As this is a recent problem, I wonder if it is due to an addition to my medication. I have been prescribed
I was diagnosed with Parkinsons about 8 years ago. I have recently started having a dry mouth resulting from a lack of saliva. This has caused me to have a very sore tongue, amongst other things. As this is a recent problem, I wonder if it is due to an addition to my medication. I have been prescribed
Court
in
Cure Parkinson's
9 years ago
DLA unsuccessfull RANT!! :-(
I applied for DLA in March 2011, I had a 'no' reply in June 2011, it finally went to a tribunal hearing at end of October 2012!!! Which has been unsuccesful and have been informed I'm not emtitled on any level for care or mobility. I have arthritis, lupus, raynauds, fibromyalgia etc to name but a few
I applied for DLA in March 2011, I had a 'no' reply in June 2011, it finally went to a tribunal hearing at end of October 2012!!! Which has been unsuccesful and have been informed I'm not emtitled on any level for care or mobility. I have arthritis, lupus, raynauds, fibromyalgia etc to name but a few
heatherx
in
LUPUS UK
11 years ago
Sjogrens-just how dry can your mouth get?
I've long been diagnosed with Hughes and the man himself added mild Sjogrens a few years ago. At that time I was having dry eye problems and I have artificial tears for this. For quite some time now I've been having problems with a very dry mouth and throat which sometimes leads to great difficulty just
I've long been diagnosed with Hughes and the man himself added mild Sjogrens a few years ago. At that time I was having dry eye problems and I have artificial tears for this. For quite some time now I've been having problems with a very dry mouth and throat which sometimes leads to great difficulty just
tim47
in
Hughes Syndrome APS Forum
12 years ago
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