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Nurtec ODT
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Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
7 months ago
QoLando Caliente El Sol 🌞
https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not for the ADT grumpies 😆 https://youtu.be/U3sMjm9Eloo?si=Yn-76A_KvIwzeTpP Friday pm, hubby & wife - pts for over 20 yrs, asked me to have beers/pizza with them😍 Also ran into quite a few other pts, even the cashier😂 Sat am
https://youtu.be/bA6GIF4A9aA?si=OxNUbL2bcqKx6l4nAlert! QoLing dead ahead, not for the ADT grumpies 😆 https://youtu.be/U3sMjm9Eloo?si=Yn-76A_KvIwzeTpP Friday pm, hubby & wife - pts for over 20 yrs, asked me to have beers/pizza with them😍 Also ran into quite a few other pts, even the cashier😂 Sat am
dockam
in
Advanced Prostate Cancer
7 months ago
Post treatment post ADT time to PSMA test
Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) sessions.. PSMA pet scans are not available (Japan). I planning on ending adjuvant ADT therapy within a few months and am aware of the lasting effects on testosterone (will take 6-12 months for decent testosterone levels .
Where I am receiving treatment, ADT, LD Brachytherapy, LINAC radiotherapy (15) sessions.. PSMA pet scans are not available (Japan). I planning on ending adjuvant ADT therapy within a few months and am aware of the lasting effects on testosterone (will take 6-12 months for decent testosterone levels .
Yokohama2023
in
Advanced Prostate Cancer
7 months ago
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PSA rising 10 weeks after Orgovyx Holiday
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
ac61418
in
Advanced Prostate Cancer
7 months ago
Am i catastrophizing over my results
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Walliam
in
Advanced Prostate Cancer
7 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
7 months ago
Cheapest good quality NDT online that people are taking and can be ordered.
Can anyone tell me how much they are paying and where they order from thank you.
Can anyone tell me how much they are paying and where they order from thank you.
ockerdoc
in
Thyroid UK
7 months ago
ADT or Orchiectomy & side effects
I have been on ADT for 18 months the Side effects are a little better but still horrible!! Q) If i have a Orchiectomy, can I stop the ADT therapy altogether? Currently on Xtandi and Orgovox. thanks
I have been on ADT for 18 months the Side effects are a little better but still horrible!! Q) If i have a Orchiectomy, can I stop the ADT therapy altogether? Currently on Xtandi and Orgovox. thanks
lookout4
in
Advanced Prostate Cancer
7 months ago
Unsure of best option in early prostate cancer diagnosis.
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
cobrasc429
in
Advanced Prostate Cancer
7 months ago
concerns
I recently tried a batch of NDT from Vietnam. I have taken another brand for years but was hesitant to order the new batches after reading about all the problems. I have not used batches made after 2019 (my latest batch was mfg 06/19, exp 06/22). Also because my supplier of many years sells. [the
I recently tried a batch of NDT from Vietnam. I have taken another brand for years but was hesitant to order the new batches after reading about all the problems. I have not used batches made after 2019 (my latest batch was mfg 06/19, exp 06/22). Also because my supplier of many years sells. [the
Hidden
in
Thyroid UK
7 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
7 months ago
Confused about latest blood tests - why are FT4 and FT3 rising, but I still feel awful and I'm undiagnosed and not on any meds?
Sorry for the super long post.... I would very much appreciate the help of you wonderful people on this forum. I am a bit confused with my latest blood test results that I just received yesterday, and am hoping that you will be able to help me understand what's going on. I'll try to keep it brief, while
Sorry for the super long post.... I would very much appreciate the help of you wonderful people on this forum. I am a bit confused with my latest blood test results that I just received yesterday, and am hoping that you will be able to help me understand what's going on. I'll try to keep it brief, while
Overlooked
in
Thyroid UK
7 months ago
latest results & pericaridal effusion
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
Ajva
in
Thyroid UK
7 months ago
ADT & Mets
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
CJ1958
in
Advanced Prostate Cancer
7 months ago
Long term results of high dose radiation and long term ADT
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
Don_1213
in
Advanced Prostate Cancer
7 months ago
AlteraAI test
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
7OaksTom
in
Advanced Prostate Cancer
7 months ago
Am I over medicated?
My Free T4 always comes up low. I understand from this grp that this means I am over medicated. I do not feel over medicated, but am I doing myself long term damage? I currently take 45mgs of NDT & an extra 12.5mcgs of T3. (In one dose) each day. (& supplements) Thanks in advance.
My Free T4 always comes up low. I understand from this grp that this means I am over medicated. I do not feel over medicated, but am I doing myself long term damage? I currently take 45mgs of NDT & an extra 12.5mcgs of T3. (In one dose) each day. (& supplements) Thanks in advance.
EleanorM-G
in
Thyroid UK
7 months ago
PET Scan Results
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Murph256
in
Advanced Prostate Cancer
7 months ago
Update on my journey of elimination
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Incoguto
in
Thyroid UK
7 months ago
New data about ARASENS trial: it seems to work well after longer observation
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Maxone73
in
Advanced Prostate Cancer
7 months ago
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