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Non-small-cell lung carcinoma
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Tocilizumab
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
I am seeing a new rheumatologist following an urgent referral from the hospital tomorrow, Thursday 16th, afternoon. It has been suggested by the hospital registrar, he rang before 9.00am on Monday to see how I was after my emergency visit last Thursday and increased to 60mgs from 5mgs dose of pred.,
MavisEllen
in
PMRGCAuk
3 years ago
Tocilizumab & Covid vaccine
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
Bachblues
in
PMRGCAuk
3 years ago
To do the best for my friend
My friend Kevin has terminal lung cancer and about 3 weeks ago he was admitted to the psyche ward. I offered to go to his flat to get his clothes and he said no (the doctor did say the cancer was effecting his brain). He doesn't belong on a psyche ward and they are trying to sort out accommodation like
My friend Kevin has terminal lung cancer and about 3 weeks ago he was admitted to the psyche ward. I offered to go to his flat to get his clothes and he said no (the doctor did say the cancer was effecting his brain). He doesn't belong on a psyche ward and they are trying to sort out accommodation like
Chase888
in
Lung Cancer Support
3 years ago
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Senolytic combo Dasatinib + Quercetin
Nalakrats has in two major posts shared fascinating insights on senescence and senolytics, drugs that selectively clear senescent cells. I am most grateful to him for this, which set me off on a journey the results of which I sum up in this post. Senescence has also recently been well reported on by
Nalakrats has in two major posts shared fascinating insights on senescence and senolytics, drugs that selectively clear senescent cells. I am most grateful to him for this, which set me off on a journey the results of which I sum up in this post. Senescence has also recently been well reported on by
Purple-Bike
in
Advanced Prostate Cancer
3 years ago
31 year old facing AML fight.
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
Evening everyone. In the last few days ive had to come to terms that i will be battling AML. But sadly there isnt much information out there regarding its effects on younger people. It seems to be all info regarding 65+ years old. No treatment has been started yet, still waiting on results coming back
NathaN89
in
Leukaemia Support
3 years ago
Heart and double lung transplant
My name is Andy. I had a heart and double lung transplant 22 years ago. Still going strong. I’ve just joined this forum today. If you have any questions please feel free to contact me through this forum and I’ll be happy to answer questions about my experience
My name is Andy. I had a heart and double lung transplant 22 years ago. Still going strong. I’ve just joined this forum today. If you have any questions please feel free to contact me through this forum and I’ll be happy to answer questions about my experience
NinjaAndy
in
Lung Conditions Community Forum
3 years ago
Advice dealing with chronic GVHD in the eyes and skin while trying to withdraw steroids
Hello everyone! I had a stem cell transplant last year and I am dealing with very uncomfortable Graft Versus Host Disease in my eyes and skin. The one in the eyes is the worse! I need to have drops every 10mins. Punctal ducts were helpful for three weeks only. I am waiting for some stem cell eye drops
Hello everyone! I had a stem cell transplant last year and I am dealing with very uncomfortable Graft Versus Host Disease in my eyes and skin. The one in the eyes is the worse! I need to have drops every 10mins. Punctal ducts were helpful for three weeks only. I am waiting for some stem cell eye drops
lifeafterSCT
in
MPN Voice
3 years ago
New study yields insights into chronic rejection after lung transplantation
A study of lung tissue from patients with end-stage bronchiolitis obliterans syndrome (BOS) as a complication of lung transplantation yielded molecular and morphologic insights into the development of chronic rejection. These insights may help develop therapies to optimize long-term outcomes for lung
A study of lung tissue from patients with end-stage bronchiolitis obliterans syndrome (BOS) as a complication of lung transplantation yielded molecular and morphologic insights into the development of chronic rejection. These insights may help develop therapies to optimize long-term outcomes for lung
2greys
in
Lung Conditions Community Forum
3 years ago
World's respiratory societies support community action and education for World Lung Cancer Day
In support of World Lung Cancer Day on August 1, the Forum of International Respiratory Societies (FIRS), of which the American College of Chest Physicians® (CHEST) is a founding member, stresses the importance of community action and early screening to prevent and treat lung cancer. Responsible for
In support of World Lung Cancer Day on August 1, the Forum of International Respiratory Societies (FIRS), of which the American College of Chest Physicians® (CHEST) is a founding member, stresses the importance of community action and early screening to prevent and treat lung cancer. Responsible for
2greys
in
Lung Conditions Community Forum
3 years ago
Managing Panic and Anxiety while having end stage COPD and Severe Bronchiectasis.
Managing Panic and Anxiety while having end stage COPD Severe Bronchiectasis. Good afternoon everyone, I do hope you are all having a pleasant day. While I was in hospital recently with a flare up I noticed my Anxiety levels were going through the roof every time I had difficulty breathing which at
Managing Panic and Anxiety while having end stage COPD Severe Bronchiectasis. Good afternoon everyone, I do hope you are all having a pleasant day. While I was in hospital recently with a flare up I noticed my Anxiety levels were going through the roof every time I had difficulty breathing which at
Joseph260268
in
Lung Conditions Community Forum
3 years ago
Tocilizumab and coming off prednisolone
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Stkeyna
in
PMRGCAuk
3 years ago
Sodium / potassium
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Ballywilliam
in
PMRGCAuk
3 years ago
Tocilizumab treatment?
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
Ozark
in
PMRGCAuk
3 years ago
Roactemra Tocilizumab - lab out of stock - advice needed please.
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Frenchduck
in
PMRGCAuk
3 years ago
Follow up from yesterday
So thank you to everyone for replying to my first post We’ve been today for the biopsy which went well and the consultant came to see us, it’s already at T4 N1 MC1 stage They are rushing her through so they can start treatment straight away which I feel is a good sign She has a pancoast tumour and
So thank you to everyone for replying to my first post We’ve been today for the biopsy which went well and the consultant came to see us, it’s already at T4 N1 MC1 stage They are rushing her through so they can start treatment straight away which I feel is a good sign She has a pancoast tumour and
Fox78
in
The Roy Castle Lung Cancer Foundation
3 years ago
The Lambda variant is now in 29 countries, but what evidence do we have that it’s more dangerous?
...........................................A variant of interest is one that has mutations that are predicted or known to affect things such as transmissibility (how easily the virus spreads), severity of disease, ability to evade immunity from past infections or vaccines, or confound diagnostic tests
...........................................A variant of interest is one that has mutations that are predicted or known to affect things such as transmissibility (how easily the virus spreads), severity of disease, ability to evade immunity from past infections or vaccines, or confound diagnostic tests
2greys
in
Lung Conditions Community Forum
3 years ago
First Stem Cell Transplant Appointment done
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Otterfield
in
MPN Voice
3 years ago
Study shows low or undetectable immune response to double COVID-19 vaccination in patients with impaired immune systems
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
2greys
in
Lung Conditions Community Forum
3 years ago
Celebrating the 10th anniversary of my last birthday.
When first diagnosed I was told that I MIGHT survive 10-15 months with the most aggressive treatment available. That was October of 2010. When my birthday came in July of 2011, I sincerely believed I would die within a few months. So I decided to go out in style. I threw myself a big birthday bash
When first diagnosed I was told that I MIGHT survive 10-15 months with the most aggressive treatment available. That was October of 2010. When my birthday came in July of 2011, I sincerely believed I would die within a few months. So I decided to go out in style. I threw myself a big birthday bash
Denzie
Volunteer
in
Lung Cancer Support
3 years ago
Immunocompromised? Why the COVID-19 vaccine might still protect you
COVID-19 vaccinations may not offer as much protection to people with compromised immune systems, but just how much appears to be driven by the type of underlying condition, new research suggests. "People with conditions that compromise their immune systems exhibit a wide spectrum of antibody responses
COVID-19 vaccinations may not offer as much protection to people with compromised immune systems, but just how much appears to be driven by the type of underlying condition, new research suggests. "People with conditions that compromise their immune systems exhibit a wide spectrum of antibody responses
2greys
in
Lung Conditions Community Forum
3 years ago
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