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RLS-UK New Film - Ropinirole/Pramipexole/Neupro Patch
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
RLS-UK is commissioning a new film by a documentary company called SuperFolk Films. They have worked with other charities, including Parkinson's UK. The team would like to interview and film UK patients currently reducing Dopamine Agonists. Preferably, near the last stage of reduction. If you are
Kaarina
Administrator
in
Restless Legs Syndrome
1 year ago
Looking for guidance on RLS and Parkinson's Management
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are
gardening57
in
Restless Legs Syndrome
1 year ago
finished Neupro taper and looking for guidance on increasing my Gabapentin dosage
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
I’ve been taking Neupro 1mg and 400mg x 2 Gabapentin daily for my RLS. In the last 3 months I tapered off Neupro (1mg to 0.75 to 0.5 to 0.25 to 0) with my neurologist since I was experiencing more RLS symptoms despite being on Neupro. My RLS symptoms appeared most nights during the taper and I managed
Discopage
in
Restless Legs Syndrome
1 year ago
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Advice needed
I have been on Dopamine meds since 2010 and am presently on 2mg Neupro patch which I was switched to in 2016 by a Neurologist. The inevitable Augmentation is now so bad I need to come off it. I had a trial of Gabapentin in 2015 but developed a very serious depression ( never suffered it before or since
I have been on Dopamine meds since 2010 and am presently on 2mg Neupro patch which I was switched to in 2016 by a Neurologist. The inevitable Augmentation is now so bad I need to come off it. I had a trial of Gabapentin in 2015 but developed a very serious depression ( never suffered it before or since
Annieapple
in
Restless Legs Syndrome
1 year ago
increasing neupro dose
I am shortly about to increase my neupro patch dosage from 2mg to 4mg. What side effects could I expect? bron
I am shortly about to increase my neupro patch dosage from 2mg to 4mg. What side effects could I expect? bron
Bron60
in
Cure Parkinson's
1 year ago
Neupro Patch
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
Ced60
in
Restless Legs Syndrome
1 year ago
RLS and compression socks
Hi. I suffer from severe RLS and PLMD. I am currently on 250 pregabalin, 0.5 clonazepam and am trying to reduce from 3mg to 2mg Neupro patches . So last night I was on two and a half Neupro patch.This was my 5th night on two and a half .I had spent the last 4 months on 3mgs Last night, for the
Hi. I suffer from severe RLS and PLMD. I am currently on 250 pregabalin, 0.5 clonazepam and am trying to reduce from 3mg to 2mg Neupro patches . So last night I was on two and a half Neupro patch.This was my 5th night on two and a half .I had spent the last 4 months on 3mgs Last night, for the
thorp
in
Restless Legs Syndrome
1 year ago
Ropinirole ( Requip) Ontario Parkinson's
I have Parkinsons and I have been using Ropinirole also known as Requip for about 13 years. It is an Agonist , that helps the effects of Levadopa last longer. I also have been using Amantadine for the same thing but its effectiveness may have worn off. I was doing OK and then the company GlaxoSmithKline
I have Parkinsons and I have been using Ropinirole also known as Requip for about 13 years. It is an Agonist , that helps the effects of Levadopa last longer. I also have been using Amantadine for the same thing but its effectiveness may have worn off. I was doing OK and then the company GlaxoSmithKline
Gymsack
in
Cure Parkinson's
1 year ago
RLS Question
my story is simple. I’ve had restless leg, moderate to severe for almost 14 years, and I am looking for some more advice? Most of my time is spent on mirapex was increased dosage as you can see in my previous post. That made me have terrible withdrawals. Once my current doctor took me off the Mirapex
my story is simple. I’ve had restless leg, moderate to severe for almost 14 years, and I am looking for some more advice? Most of my time is spent on mirapex was increased dosage as you can see in my previous post. That made me have terrible withdrawals. Once my current doctor took me off the Mirapex
108512bea
in
Restless Legs Syndrome
1 year ago
ropinorole and neutro patch
I’m currently on ropinorole 3mg and neupro patch 3 mg a day what is the good and bad I’ve been living with rls for over 30 years I tried getting off it in 2017 and quit after 3 weeks any suggestions
I’m currently on ropinorole 3mg and neupro patch 3 mg a day what is the good and bad I’ve been living with rls for over 30 years I tried getting off it in 2017 and quit after 3 weeks any suggestions
Bat3353
in
Restless Legs Syndrome
1 year ago
Levodopa absorption
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
having a third trial with Sinemet. It worked well for right leg tremor for three years since diagnosis. Neuro said my brain changed and it stopped working. Tremor came back with depression and anxiety. Mood is much better since Vilazadone added. I’ve been on Neupro patch for 8 months and my motor symptoms
Hidden
in
Cure Parkinson's
1 year ago
Neupro patch advice
ok I posted recently that I am now one week post being off pramipexole. Saw my neurologist today because I have having terrible insomnia and problems staying asleep with increased symptoms. This has been going on for 5 weeks now being as bad as it is now. Can't even get to bed and lay in the bed without
ok I posted recently that I am now one week post being off pramipexole. Saw my neurologist today because I have having terrible insomnia and problems staying asleep with increased symptoms. This has been going on for 5 weeks now being as bad as it is now. Can't even get to bed and lay in the bed without
Aujamw
in
Restless Legs Syndrome
1 year ago
augmentation on neupro+Gabapentin. should I switch to a different dopamine agonist? All that’s helping is cannabis.
I’ve been on Neupro 1mg patches for 4+ years. I also currently take 800mg Gabapentin: 400mg twice a day. In the last month my RLS symptoms have appeared nightly beginning around 9:30pm. I’m able to fall asleep but then wake up in the middle of the night with RLS symptoms. The only thing that’s helped
I’ve been on Neupro 1mg patches for 4+ years. I also currently take 800mg Gabapentin: 400mg twice a day. In the last month my RLS symptoms have appeared nightly beginning around 9:30pm. I’m able to fall asleep but then wake up in the middle of the night with RLS symptoms. The only thing that’s helped
Discopage
in
Restless Legs Syndrome
1 year ago
PD Meds Not Working
Anyone out there been unable to tolerate PD meds? I was diagnosed in 2019 and my MDS prescribed the standard carb/levodopa and it made my symptoms worse. So I started taking a variety of supplements and that was working until recently when my symptoms got worse. My MDS put me on Sinemet and my symptoms
Anyone out there been unable to tolerate PD meds? I was diagnosed in 2019 and my MDS prescribed the standard carb/levodopa and it made my symptoms worse. So I started taking a variety of supplements and that was working until recently when my symptoms got worse. My MDS put me on Sinemet and my symptoms
PeggyDay
in
Cure Parkinson's
2 years ago
Updating and confused
First, I would like to say a big thank you to Jools and Sue Johnson in particular, and others on this site. I wrote on here some time ago that, because I know that a lot of MS sufferers suffer with restless legs, I was going to try oxygen therapy at our local MS Centre and want to share the results
First, I would like to say a big thank you to Jools and Sue Johnson in particular, and others on this site. I wrote on here some time ago that, because I know that a lot of MS sufferers suffer with restless legs, I was going to try oxygen therapy at our local MS Centre and want to share the results
Mulberry100
in
Restless Legs Syndrome
2 years ago
info on anti nausea drugs
I am getting a lot of nausea and some sickness now with my chemo and my legs have been driving me mad. I haven’t yet got the Neupro patches so am still on Ropinerole. Can you advise me which anti nausea drugs are bad for RLS? And which are best? I have a severe allergy to Metoclopramide. They have given
I am getting a lot of nausea and some sickness now with my chemo and my legs have been driving me mad. I haven’t yet got the Neupro patches so am still on Ropinerole. Can you advise me which anti nausea drugs are bad for RLS? And which are best? I have a severe allergy to Metoclopramide. They have given
Ruffabug
in
Restless Legs Syndrome
2 years ago
What to try next?
My 69 year old HwP has had tremor dominant PD for the past 7 years - taking only Azilect (that he started a year ago). The tremor is much worse, embarrassing him at work, so he needs more therapy. Shooting pain in one foot (and numbness in both) is another recent problem. The neurologist prescribed
My 69 year old HwP has had tremor dominant PD for the past 7 years - taking only Azilect (that he started a year ago). The tremor is much worse, embarrassing him at work, so he needs more therapy. Shooting pain in one foot (and numbness in both) is another recent problem. The neurologist prescribed
goldengrove
in
Cure Parkinson's
2 years ago
Lots of OFF and Food interference
I've been losing weight, hard to eat enough to maintain. OFF interferes a lot with both eating and exercise. I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual, Rytary. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either
I've been losing weight, hard to eat enough to maintain. OFF interferes a lot with both eating and exercise. I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual, Rytary. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either
rebtar
in
Cure Parkinson's
2 years ago
I'm new here. Where to go from here?
Firstly just want to say hi as I'm new here and quickly tell my story. I,ll try to keep it fairly short. I have had RLS since the age of 10 that I can remember, I'm now 55 and it has gotten worse as I get older. I have primary, genetic RLS since my dad also has it. Around 15-20 years ago it was getting
Firstly just want to say hi as I'm new here and quickly tell my story. I,ll try to keep it fairly short. I have had RLS since the age of 10 that I can remember, I'm now 55 and it has gotten worse as I get older. I have primary, genetic RLS since my dad also has it. Around 15-20 years ago it was getting
Jezee
in
Restless Legs Syndrome
2 years ago
Understanding my RLS Symptoms
Hi togther, I am new to this board and registered because my RLS spread to my arms, shoulders, back and neck one week ago and now I am really scared, because having an almost overall RLS is terrible. RLS for me started in 2018 when I was 34 years old "within a day" (or lets say 3-7 days together with
Hi togther, I am new to this board and registered because my RLS spread to my arms, shoulders, back and neck one week ago and now I am really scared, because having an almost overall RLS is terrible. RLS for me started in 2018 when I was 34 years old "within a day" (or lets say 3-7 days together with
mistaminista
in
Restless Legs Syndrome
2 years ago
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