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Experience with tapering Neupro, Dopamine Agonists, and managing DAWS
Hi all, I'm reaching out specifically to those who have lived with Parkinson's disease for over 10 years and have decided to discontinue dopamine agonists (Mirapex, Requip, Neupro) due to severe side effects. I'm a 56-year-old male, diagnosed with PD 11 years ago, and have been on agonists combined
Hi all, I'm reaching out specifically to those who have lived with Parkinson's disease for over 10 years and have decided to discontinue dopamine agonists (Mirapex, Requip, Neupro) due to severe side effects. I'm a 56-year-old male, diagnosed with PD 11 years ago, and have been on agonists combined
WittyPD
in
Cure Parkinson's
6 days ago
is Gabapentin helping me?
Hi. You’ve heard from me before and my case is very different to most. I have terminal cancer and decided I couldn’t cope with trying to withdraw from Ropinerole. So I am now on a 4 mg Neupro patch plus 2 mg Ropinerole. My neurologist is letting me increase the dose as the augmentation kicks in as I
Hi. You’ve heard from me before and my case is very different to most. I have terminal cancer and decided I couldn’t cope with trying to withdraw from Ropinerole. So I am now on a 4 mg Neupro patch plus 2 mg Ropinerole. My neurologist is letting me increase the dose as the augmentation kicks in as I
Ruffabug
in
Restless Legs Syndrome
10 days ago
Neupro patch
anyone try the neupro patch. How good is it
anyone try the neupro patch. How good is it
lorri214
in
Restless Legs Syndrome
12 days ago
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Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
12 days ago
Neupro Vs. Ropinerole
Has anyone used Neupro over an extended period of time (2-years or more) to determine its relationship to augmentation? I found an article that indicates that over a 5-year period the augmentation of Neupro was significantly reduced compared to Ropinerole. However, a deeper dive found that the study
Has anyone used Neupro over an extended period of time (2-years or more) to determine its relationship to augmentation? I found an article that indicates that over a 5-year period the augmentation of Neupro was significantly reduced compared to Ropinerole. However, a deeper dive found that the study
pyramidhiker
in
Restless Legs Syndrome
13 days ago
From Buprenorphine Patch to Tablet: A Memoir
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
RiversW
in
Restless Legs Syndrome
17 days ago
here’s what I use
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
maribarosay
in
Restless Legs Syndrome
30 days ago
Daridorexant
Had rls since childhood but not labelled then. I have been on alternative roprinole and neupro for many years, also gabapentin up to 1200mg. Over last three months managed to wean off everything as I felt augmentation was starting. Feelings mire intense and earlier. Paid for private UK neurologist but
Had rls since childhood but not labelled then. I have been on alternative roprinole and neupro for many years, also gabapentin up to 1200mg. Over last three months managed to wean off everything as I felt augmentation was starting. Feelings mire intense and earlier. Paid for private UK neurologist but
Caravan24
in
Restless Legs Syndrome
1 month ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
1 month ago
Buprenorphine and constipation.
Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs. Is it better or worse than other opioids? As it is supposed to be the best one for controlling RLS and my Neurologist is going to ask my GP to
Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs. Is it better or worse than other opioids? As it is supposed to be the best one for controlling RLS and my Neurologist is going to ask my GP to
Ruffabug
in
Restless Legs Syndrome
1 month ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
2 months ago
Sifrol
Please could you give me some advice, I was in hospital last week for 4 days and the Dr there has taken me of sifrol ( .125mcg ) I was in augmentation stage, instead he has put me on ........ Neupro/ rotigotine 2mg 24hrs patches, pregabalin 25mg 2 morn/ 4 night, tapendol SR 10mg night, and tapendol
Please could you give me some advice, I was in hospital last week for 4 days and the Dr there has taken me of sifrol ( .125mcg ) I was in augmentation stage, instead he has put me on ........ Neupro/ rotigotine 2mg 24hrs patches, pregabalin 25mg 2 morn/ 4 night, tapendol SR 10mg night, and tapendol
Happychappy1945
in
Restless Legs Syndrome
2 months ago
update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
2 months ago
Help - kindling?
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
Mikatrap
in
Restless Legs Syndrome
2 months ago
Dopamine Agonist Withdrawal Syndrome (DAWS)
https://dc.etsu.edu/asrf/2024/schedule/123/ A case report of DAWS presenting as confusion, emotional liability and headache. Most of us who have been through withdrawal from Ropinirole, Pramipexole and Neupro recognise these symptoms, but hopefully, this article and others will help doctors to understand
https://dc.etsu.edu/asrf/2024/schedule/123/ A case report of DAWS presenting as confusion, emotional liability and headache. Most of us who have been through withdrawal from Ropinirole, Pramipexole and Neupro recognise these symptoms, but hopefully, this article and others will help doctors to understand
Joolsg
in
Restless Legs Syndrome
2 months ago
Help please to reduce dose of Neupro
I have terminal cancer and in January was given an average of six months to live. It is now three months on and I have very few symptoms so I expect to live quite a lot longer than predicted. Having had severe RLS with PLMD for 50 years, and having been put on Ropinerole 20 years ago, I have had augmentation
I have terminal cancer and in January was given an average of six months to live. It is now three months on and I have very few symptoms so I expect to live quite a lot longer than predicted. Having had severe RLS with PLMD for 50 years, and having been put on Ropinerole 20 years ago, I have had augmentation
Ruffabug
in
Restless Legs Syndrome
2 months ago
Dealing with painful dopamine agonist withdrawal: advice needed
Those of you that have read my posts know that I'm experiencing an extremely difficult dopamine agonist withdrawal syndrom (DAWS). Now I'm at 60% of my initial 2mg dose of Neupro, i.e 1.2mg. I also take 300mg of pregabaline, 100mg of tradonal extended release, 0.5mg of clonazepan, and 0.125mg of alprazolam
Those of you that have read my posts know that I'm experiencing an extremely difficult dopamine agonist withdrawal syndrom (DAWS). Now I'm at 60% of my initial 2mg dose of Neupro, i.e 1.2mg. I also take 300mg of pregabaline, 100mg of tradonal extended release, 0.5mg of clonazepan, and 0.125mg of alprazolam
Mikatrap
in
Restless Legs Syndrome
3 months ago
Free of Dopamine Agonist But ...
Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30 years. It is absolutely a miracle. I could not be more thankful for the help I have received here that has gotten me to this place. However, there
Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30 years. It is absolutely a miracle. I could not be more thankful for the help I have received here that has gotten me to this place. However, there
RiversW
in
Restless Legs Syndrome
3 months ago
looking for a neuro who is open to prescribing opioids to patients in NY state
After several years on Neupro and Gabapentin I tapered off Neupro but my symptoms persist. Looking for a neuro who prescribes opioids. I’m in NY and haven’t found one here. Called Yale cause I heard Dr Koo sees patients in NY but Yale said that’s incorrect.
After several years on Neupro and Gabapentin I tapered off Neupro but my symptoms persist. Looking for a neuro who prescribes opioids. I’m in NY and haven’t found one here. Called Yale cause I heard Dr Koo sees patients in NY but Yale said that’s incorrect.
Discopage
in
Restless Legs Syndrome
3 months ago
Neupro side effects
Neurologist suggested adding two mg Neupro patches to regime of Zadago plus Madopar 1.5 three times a day. Diagnosed 7 years ago, first twitch 13 years ago. Only lasted one day as I had nausea, vomiting, headache, cold sweats and sleepiness. Is this normal? I have had previous similarly adverse experience
Neurologist suggested adding two mg Neupro patches to regime of Zadago plus Madopar 1.5 three times a day. Diagnosed 7 years ago, first twitch 13 years ago. Only lasted one day as I had nausea, vomiting, headache, cold sweats and sleepiness. Is this normal? I have had previous similarly adverse experience
Frances24E
in
Cure Parkinson's
4 months ago
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