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what I use now
First, you must get a doctor who will sympathize with your RLS condition. We have tried many medications, but what works for me now is a Neupro patch which I wear 24 hours a day. At night I take tramadol 50 mg and to Temazepam 30 mg. I take Ferrous sulfate 325 mg twice a week. You must work with
First, you must get a doctor who will sympathize with your RLS condition. We have tried many medications, but what works for me now is a Neupro patch which I wear 24 hours a day. At night I take tramadol 50 mg and to Temazepam 30 mg. I take Ferrous sulfate 325 mg twice a week. You must work with
maribarosay
in
Restless Legs Syndrome
30 days ago
Neupro patch - how do I get off it?
I was put on the 3mg patch in June and only get relief with an addition of 30mg codeine. I then have no symptoms and sleep all night. I have a sleep clinic appointment next week. My ferritin is low. I know I should ask for an iron infusion. What else should I be asking?
I was put on the 3mg patch in June and only get relief with an addition of 30mg codeine. I then have no symptoms and sleep all night. I have a sleep clinic appointment next week. My ferritin is low. I know I should ask for an iron infusion. What else should I be asking?
BPN28
in
Restless Legs Syndrome
1 month ago
Neupro Patch
Please do NOT let any GP or neurologist switch you to the Neupro patch (Rotigitone). It WILL cause worse augmentation than Ropinirole or Pramipexole and the experts see it happening every day. Neurologists who do not treat thousands of RLS patients a year seem to think Neupro has less risk of augmentation
Please do NOT let any GP or neurologist switch you to the Neupro patch (Rotigitone). It WILL cause worse augmentation than Ropinirole or Pramipexole and the experts see it happening every day. Neurologists who do not treat thousands of RLS patients a year seem to think Neupro has less risk of augmentation
Joolsg
in
Restless Legs Syndrome
1 month ago
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Lyrica (pregabalin).RLS
Il started to take Lyrica. The objective it to stop to take Neupro because I have skin Allergy. With Lyrica, I'm Little depressive and increase m'y appetive. Should continue to take Lyrica?
Il started to take Lyrica. The objective it to stop to take Neupro because I have skin Allergy. With Lyrica, I'm Little depressive and increase m'y appetive. Should continue to take Lyrica?
MARISEGATIEN
in
Restless Legs Syndrome
2 months ago
Occasional worsening
Hi, good to join and hopefully will get the wisdom of your experiences (and give some of mine!). I am writing on behalf of my 93 yr old mum who has been suffering from RLS for some time. She is currently using 1mg Neupro Patches (Rotigotine) and most nights is well controlled. But occasionally (once
Hi, good to join and hopefully will get the wisdom of your experiences (and give some of mine!). I am writing on behalf of my 93 yr old mum who has been suffering from RLS for some time. She is currently using 1mg Neupro Patches (Rotigotine) and most nights is well controlled. But occasionally (once
MumsSon1
in
Restless Legs Syndrome
2 months ago
DAWS and the need to stay on DA
Hello, Those who have read my posts know that I've been struggling for a year to withdraw from DA. First, I was on pramipexole ER 0.26mg. I ended up on Neupro 2mg, that I slowly reduced to 1mg over 8 months. Now, I'm back at the hospital, and my condition is so bad (constant and very painful RLS) that
Hello, Those who have read my posts know that I've been struggling for a year to withdraw from DA. First, I was on pramipexole ER 0.26mg. I ended up on Neupro 2mg, that I slowly reduced to 1mg over 8 months. Now, I'm back at the hospital, and my condition is so bad (constant and very painful RLS) that
Mikatrap
in
Restless Legs Syndrome
2 months ago
Gabapentin or Pregabalin?
I have been on Gabapentin (300mg x 4 per day), with one taken at 4pm and the other 3 taken at 9pm. This is enough to get me through the night usually without any problems with RLS. My daytimes are pretty much problem free now and I don’t need any Gabapentin until I take the 4pm one. I occasionally
I have been on Gabapentin (300mg x 4 per day), with one taken at 4pm and the other 3 taken at 9pm. This is enough to get me through the night usually without any problems with RLS. My daytimes are pretty much problem free now and I don’t need any Gabapentin until I take the 4pm one. I occasionally
HelenJS
in
Restless Legs Syndrome
3 months ago
Experience with tapering Neupro, Dopamine Agonists, and managing DAWS
Hi all, I'm reaching out specifically to those who have lived with Parkinson's disease for over 10 years and have decided to discontinue dopamine agonists (Mirapex, Requip, Neupro) due to severe side effects. I'm a 56-year-old male, diagnosed with PD 11 years ago, and have been on agonists combined
Hi all, I'm reaching out specifically to those who have lived with Parkinson's disease for over 10 years and have decided to discontinue dopamine agonists (Mirapex, Requip, Neupro) due to severe side effects. I'm a 56-year-old male, diagnosed with PD 11 years ago, and have been on agonists combined
WittyPD
in
Cure Parkinson's
4 months ago
is Gabapentin helping me?
Hi. You’ve heard from me before and my case is very different to most. I have terminal cancer and decided I couldn’t cope with trying to withdraw from Ropinerole. So I am now on a 4 mg Neupro patch plus 2 mg Ropinerole. My neurologist is letting me increase the dose as the augmentation kicks in as I
Hi. You’ve heard from me before and my case is very different to most. I have terminal cancer and decided I couldn’t cope with trying to withdraw from Ropinerole. So I am now on a 4 mg Neupro patch plus 2 mg Ropinerole. My neurologist is letting me increase the dose as the augmentation kicks in as I
Ruffabug
in
Restless Legs Syndrome
4 months ago
Neupro patch
anyone try the neupro patch. How good is it
anyone try the neupro patch. How good is it
lorri214
in
Restless Legs Syndrome
4 months ago
Had doctors appointment this morning sigh
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Had to see my doctor this morning they heard back from the neurologist. I thought they had written to the neurologist about me trying Targinact instead they asked him what he would suggest he has come back with …wait for it. .,.sinemetI told the doctor no no no and explained why. She was a really lovely
Elisse3
in
Restless Legs Syndrome
4 months ago
Neupro Vs. Ropinerole
Has anyone used Neupro over an extended period of time (2-years or more) to determine its relationship to augmentation? I found an article that indicates that over a 5-year period the augmentation of Neupro was significantly reduced compared to Ropinerole. However, a deeper dive found that the study
Has anyone used Neupro over an extended period of time (2-years or more) to determine its relationship to augmentation? I found an article that indicates that over a 5-year period the augmentation of Neupro was significantly reduced compared to Ropinerole. However, a deeper dive found that the study
pyramidhiker
in
Restless Legs Syndrome
4 months ago
From Buprenorphine Patch to Tablet: A Memoir
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
Hi All, The regulars on this site, and I count myself as one, may be familiar with my RLS story, but for the walk-ins, I will give a brief backstory. About 3 months ago I successfully stopped using the Neupro patch to treat my RLS. 25 years or more of using a dopamine agonist came to a screaming halt
RiversW
in
Restless Legs Syndrome
4 months ago
here’s what I use
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
maribarosay
in
Restless Legs Syndrome
4 months ago
Daridorexant
Had rls since childhood but not labelled then. I have been on alternative roprinole and neupro for many years, also gabapentin up to 1200mg. Over last three months managed to wean off everything as I felt augmentation was starting. Feelings mire intense and earlier. Paid for private UK neurologist but
Had rls since childhood but not labelled then. I have been on alternative roprinole and neupro for many years, also gabapentin up to 1200mg. Over last three months managed to wean off everything as I felt augmentation was starting. Feelings mire intense and earlier. Paid for private UK neurologist but
Caravan24
in
Restless Legs Syndrome
5 months ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
5 months ago
Buprenorphine and constipation.
Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs. Is it better or worse than other opioids? As it is supposed to be the best one for controlling RLS and my Neurologist is going to ask my GP to
Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs. Is it better or worse than other opioids? As it is supposed to be the best one for controlling RLS and my Neurologist is going to ask my GP to
Ruffabug
in
Restless Legs Syndrome
5 months ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
5 months ago
Sifrol
Please could you give me some advice, I was in hospital last week for 4 days and the Dr there has taken me of sifrol ( .125mcg ) I was in augmentation stage, instead he has put me on ........ Neupro/ rotigotine 2mg 24hrs patches, pregabalin 25mg 2 morn/ 4 night, tapendol SR 10mg night, and tapendol
Please could you give me some advice, I was in hospital last week for 4 days and the Dr there has taken me of sifrol ( .125mcg ) I was in augmentation stage, instead he has put me on ........ Neupro/ rotigotine 2mg 24hrs patches, pregabalin 25mg 2 morn/ 4 night, tapendol SR 10mg night, and tapendol
Happychappy1945
in
Restless Legs Syndrome
5 months ago
update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
5 months ago
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