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Mycophenolate
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Hia, I'm new to site and Behcet's. Been reading blogs. As it's been helpful I'm venturing a question! Anyone taken CellCept (Mycophenolate)?
I've had to increase steroids since taking
Mycophenolate
and also seen a resurgence of symptoms that had gone. I'd appreciate hearing anyone's experience please? Thanks.
I've had to increase steroids since taking
Mycophenolate
and also seen a resurgence of symptoms that had gone. I'd appreciate hearing anyone's experience please? Thanks.
Godles
in
Behçet's UK
12 years ago
Steroid tapering. Can anyone identify with these symptoms?
My doctor thinks the
mycophenolate
should be working and I should be able to be without steroids but I always suffer the same symptoms when I get to this point. I wonder if anyone has had similar problems, if so I would really appreciate your advice. Many Thanks Jenny
My doctor thinks the
mycophenolate
should be working and I should be able to be without steroids but I always suffer the same symptoms when I get to this point. I wonder if anyone has had similar problems, if so I would really appreciate your advice. Many Thanks Jenny
Galaxy2
in
Vasculitis UK
12 years ago
Is it dangerous to come in contact with someone suffering from TB???
I am currently in remission but taking 1500mg of
Mycophenolate
mofetil daily. A close friend has just been diagnosed with TB and I was wondering if it would be dangerous for me to come in contact with him. I didn't receive any TB vaccination as a child. Thanks.
I am currently in remission but taking 1500mg of
Mycophenolate
mofetil daily. A close friend has just been diagnosed with TB and I was wondering if it would be dangerous for me to come in contact with him. I didn't receive any TB vaccination as a child. Thanks.
Nome23
in
Vasculitis UK
12 years ago
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I have Scleroderma/Lung Fibrosis and have had 6 Cyclophosphmide infusions. I am now on Mycophenolate 500mg.
This dosage has been increased to 500mg twice daily this past week and I have suffered adverse reactions. Do others suffer from adverse reactions to this drug. I have severe headaches itching all over my body and pain in my stomach. These reactions have started after the increased dose.
This dosage has been increased to 500mg twice daily this past week and I have suffered adverse reactions. Do others suffer from adverse reactions to this drug. I have severe headaches itching all over my body and pain in my stomach. These reactions have started after the increased dose.
Carolanne
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Fed up of new tablets making me feel so ill :(
After my rheumy telling me stop taking azathiprine after only 3 weeks he has now put me on
Mycophenolate
. I took one 500mg tablet after tea. it gave me idigestion, which was fine, I can cope with that.
After my rheumy telling me stop taking azathiprine after only 3 weeks he has now put me on
Mycophenolate
. I took one 500mg tablet after tea. it gave me idigestion, which was fine, I can cope with that.
tiredmum
in
LUPUS UK
12 years ago
Well i gave Azathioprine a go....
Waiting for a call next week as to what to try next, looks like
mycophenolate
might be on the menu :)
Waiting for a call next week as to what to try next, looks like
mycophenolate
might be on the menu :)
tiredmum
in
LUPUS UK
12 years ago
Stopping Thalidomide treatment; starting Cyclophosphamide (in addition to masses of other stuff)
But when I started on
Mycophenolate
Mofetil I insisted that I couldn't go on with this, and got permanent anti-nausea pills prescribed. So hopefully they will help protect me. My hair has thinned a lot since starting Azathioprine in 1998, and other drugs since.
But when I started on
Mycophenolate
Mofetil I insisted that I couldn't go on with this, and got permanent anti-nausea pills prescribed. So hopefully they will help protect me. My hair has thinned a lot since starting Azathioprine in 1998, and other drugs since.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
Hair falling out and ringing in my ears?
I have recently been put on
Mycophenolate
having had 9 IV infusions of Cyclophamide (Sept-March) but I have noticed that over the past few weeks my hair has started to fall out more and I have noticed an occasional ringing in my ears - I have phoned my Rheumatologist but have not had the chance to speak
I have recently been put on
Mycophenolate
having had 9 IV infusions of Cyclophamide (Sept-March) but I have noticed that over the past few weeks my hair has started to fall out more and I have noticed an occasional ringing in my ears - I have phoned my Rheumatologist but have not had the chance to speak
ShortSarah
in
Vasculitis UK
12 years ago
Mycophenolate side effects
I have been taking
Mycophenolate
Mofetil for 4 years on a dose of 2000mg per day in a split dose. 2 years ago I started to get extreme pain in my shin bones everyone said it was not related to the drug but probably the vasculitis and connective tissue disease.
I have been taking
Mycophenolate
Mofetil for 4 years on a dose of 2000mg per day in a split dose. 2 years ago I started to get extreme pain in my shin bones everyone said it was not related to the drug but probably the vasculitis and connective tissue disease.
tracynoe
in
Vasculitis UK
12 years ago
SLE/UCTD and now developed lung problems.
I'm no longer on methotrexate, I've been put on 30mg day presnisolone which has helped my breathing a little and am due to start on
Mycophenolate
shortly. Had very little joy with the Respiritory Consultant I've been sent to.
I'm no longer on methotrexate, I've been put on 30mg day presnisolone which has helped my breathing a little and am due to start on
Mycophenolate
shortly. Had very little joy with the Respiritory Consultant I've been sent to.
AngelaW
in
LUPUS UK
12 years ago
Mycophenolate and methotrexate?
Just wondering of anyone is taking both
mycophenolate
and methotrexate?
Mycophenolate
helping kidneys but not joints so rheumy wants me to start methotrexate as well. Wanted to know how people cope with both of them and their side effects. Thanks
Just wondering of anyone is taking both
mycophenolate
and methotrexate?
Mycophenolate
helping kidneys but not joints so rheumy wants me to start methotrexate as well. Wanted to know how people cope with both of them and their side effects. Thanks
lucyloo023
in
LUPUS UK
12 years ago
Is anyone on Methotrexate?
Hi, I have just had my meds changed from
Mycophenolate
(been on for the last 3 years from my Neurologist) to Methotrexate (put on by my Rheumatologist) and my Rheumatologist stopped the
Mycophenolate
completely and 2 weeks later I am to start the Methotrexate.
Hi, I have just had my meds changed from
Mycophenolate
(been on for the last 3 years from my Neurologist) to Methotrexate (put on by my Rheumatologist) and my Rheumatologist stopped the
Mycophenolate
completely and 2 weeks later I am to start the Methotrexate.
milliewin
in
Vasculitis UK
12 years ago
Vasculitis
Doctor Put me on 3000 mg
mycophenolate
to be taken 3 tablets at morning and 3 at night and 80 mg prednisolone . I feel really tired all over the day with a very strange mouth taste and blurred vision . Has anyone got the same side effects from the same medicines ?
Doctor Put me on 3000 mg
mycophenolate
to be taken 3 tablets at morning and 3 at night and 80 mg prednisolone . I feel really tired all over the day with a very strange mouth taste and blurred vision . Has anyone got the same side effects from the same medicines ?
Abdul
in
Vasculitis UK
12 years ago
Class iv Lupus Nephritis
I've been put on 40mg prednisolone as well as
mycophenolate
& ramipril. Does anyone have any experience of this?
I've been put on 40mg prednisolone as well as
mycophenolate
& ramipril. Does anyone have any experience of this?
Dusty
in
LUPUS UK
12 years ago
does anyone get the feeling of light headed and get the shakes.
i keep feeling lightheaded during the day & my hands can start shaking even when im just sitting down it comes & goes i am on hydroxychloroquine 200mg x 2,
mycophenolate
4 x 500g , ramipril 10mg & simvastatin 40mg daily i have come off steriods about a month & half . my doctor keeps saying my sugar
i keep feeling lightheaded during the day & my hands can start shaking even when im just sitting down it comes & goes i am on hydroxychloroquine 200mg x 2,
mycophenolate
4 x 500g , ramipril 10mg & simvastatin 40mg daily i have come off steriods about a month & half . my doctor keeps saying my sugar
charmaineholmes
in
LUPUS UK
12 years ago
Anyone on Mycophenolate?
lupylupus
in
LUPUS UK
12 years ago
Is anybody taking Mycophenolate Mofetil (MMF) ?
We've been asked about people's experiences taking MMF Cellcept. If you have taken it could you please share? Thank you.
We've been asked about people's experiences taking MMF Cellcept. If you have taken it could you please share? Thank you.
Paul_Howard
LUPUS UK
in
LUPUS UK
12 years ago
Seen this on the internet - positive as it Highlights Lupus. Men may find this useful with Lupus SLE
Immunosuppressive drugs may also be used (with or in place of steroid treatments), such as cyclophosphamide (Cytoxan®), azathioprine (Imuran®), cyclosporin A, and
mycophenolate
mofetil (CellCept®).
Immunosuppressive drugs may also be used (with or in place of steroid treatments), such as cyclophosphamide (Cytoxan®), azathioprine (Imuran®), cyclosporin A, and
mycophenolate
mofetil (CellCept®).
Lulabelle
in
LUPUS UK
12 years ago
Has anyone taking prednisilone and/or mycophenolate (I take both) found the medication starts to have less effect.
I've been on both for over a year and have started reacting and I am very tired all the time. Changes have been over the past month and getting worse. Thanks Sarah
I've been on both for over a year and have started reacting and I am very tired all the time. Changes have been over the past month and getting worse. Thanks Sarah
Sarahjh2004
in
Vasculitis UK
12 years ago
On 60mg prednisolone and 2g mycophenolate mofetil daily - anyone else on similar and what side effects should I expect other than moon face?
lucyloo023
in
LUPUS UK
13 years ago
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