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Parkinson’s, madopar and heart failure
Is there anyone with Parkinson’s and also heart failure? I started Madopar 50mg 3 times a day. After two weeks it was increased to 100mg ×3 a day. I have low blood pressure and after taking two tablets of 100mg it made my BP drop so low (70/50) I almost fainted and I had to lie down. I reduced the doze
Is there anyone with Parkinson’s and also heart failure? I started Madopar 50mg 3 times a day. After two weeks it was increased to 100mg ×3 a day. I have low blood pressure and after taking two tablets of 100mg it made my BP drop so low (70/50) I almost fainted and I had to lie down. I reduced the doze
Ardbeg28
in
Cure Parkinson's
6 months ago
For People With Parkinson's Taking Levodopa Medication: The Danger of B6 Deficiency Is Dire and Vastly Outweighs the Danger of B6 Excess
Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need abundant B6 to keep what is left of our dopaminergic neurons as healthy as possible, especially since they are already compromised by Parkinson's. Levodopa medication depletes vitamin B6. B6 is only present in foods in low
Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need abundant B6 to keep what is left of our dopaminergic neurons as healthy as possible, especially since they are already compromised by Parkinson's. Levodopa medication depletes vitamin B6. B6 is only present in foods in low
park_bear
in
Cure Parkinson's
8 months ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
8 months ago
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DBS update
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
jeeves19
in
Cure Parkinson's
8 months ago
night time pain
Hi there everyone. Forgive me if this has been covered elsewhere, but I my sleep is being ruined by severe lower back pain./stiffness in the night. My neurologist has prescribed me slow-release madopar overnight. This is proving completely ineffective. The only reliable way I can get a decent Sleep
Hi there everyone. Forgive me if this has been covered elsewhere, but I my sleep is being ruined by severe lower back pain./stiffness in the night. My neurologist has prescribed me slow-release madopar overnight. This is proving completely ineffective. The only reliable way I can get a decent Sleep
Tallpark
in
Cure Parkinson's
8 months ago
B1 Therapy #Case 2 *Andreia Peres
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
I've decided to write a series of posts about B1 therapy for a group of people I'm following. Most of them I met through Young Parkies Portugal, or they reached out to me on social media asking for guidance in applying this therapy. Some of these texts had already been published on social media, and
Markbit
in
Cure Parkinson's
8 months ago
can mucuna cause hallucination?
can mucuna increase hallucination? my father has been taking mucuna successfully. A friend of his suffering from hallucination decided to swap one madopar dosage to mucuna, His wife just reported that the hallucination has gone worse with mucuna,
can mucuna increase hallucination? my father has been taking mucuna successfully. A friend of his suffering from hallucination decided to swap one madopar dosage to mucuna, His wife just reported that the hallucination has gone worse with mucuna,
lisa103
in
Cure Parkinson's
9 months ago
Madopar
Hi, I’ve recently started taking Madopar. I can’t detect any changes yet, apart from the fact that it seems to make me extremely tired. I just wondered if anyone else has found it effective?
Hi, I’ve recently started taking Madopar. I can’t detect any changes yet, apart from the fact that it seems to make me extremely tired. I just wondered if anyone else has found it effective?
Spangle2000
in
Multiple System Atrophy Trust
9 months ago
DBS switch on news.
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
jeeves19
in
Cure Parkinson's
9 months ago
madopar vs sinemet
hi everyone! I’m planning to switch from sinemet 125 mg (levodopa carbidopa combination) immediate release to madopar Controlled release 125 mg (levodopa benserazide). Based on your experience, do you think it’s safe n is a good idea?
hi everyone! I’m planning to switch from sinemet 125 mg (levodopa carbidopa combination) immediate release to madopar Controlled release 125 mg (levodopa benserazide). Based on your experience, do you think it’s safe n is a good idea?
Divii
in
Cure Parkinson's
10 months ago
He Is Listening
I responded to Jeaner73, that, Yes my big battle is with that Simipex, last night 11-09-2023 we received a phone call from my current Neurologist, I'll be posting what that three quarters of an hour phone call has lead to. Sunday evenings sleep 10th September ’23 amounted to around 3 hours off and on
I responded to Jeaner73, that, Yes my big battle is with that Simipex, last night 11-09-2023 we received a phone call from my current Neurologist, I'll be posting what that three quarters of an hour phone call has lead to. Sunday evenings sleep 10th September ’23 amounted to around 3 hours off and on
72andnotout
in
Cure Parkinson's
10 months ago
Psalm 119:143
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
As a believer that Jesus Christ is God and I have found him as my Lord & Saviour. The Bible has become a living book to me. its my comfort, my guide and my medicine, for sleep, peace of mind etc!! Thats why i write under the title Psalm 119:143! Trouble and Calamity have found me in the form of Parkinsons
Psalm119143
in
Cure Parkinson's
10 months ago
Why Won't My Neurologist Listen (Explanation)
While my #1 Neurologist diagnosed me with something I never wanted, my #1 Neurologist was one I was very lucky to have known. I only had two one hour visits with him, he was so passionate and willing to help. He told the wife and I, anytime you need my advice or help phone me any time, email me any
While my #1 Neurologist diagnosed me with something I never wanted, my #1 Neurologist was one I was very lucky to have known. I only had two one hour visits with him, he was so passionate and willing to help. He told the wife and I, anytime you need my advice or help phone me any time, email me any
72andnotout
in
Cure Parkinson's
10 months ago
Whole-body shaking
Hello, I have a question regarding whole-body shaking and would be grateful for any information you could give me. Five years ago when I was 49 I was diagnosed with Parkinson's disease. My only symptom was that within a few months my whole body suddenly became very slow. It was bi-lateral, and equally
Hello, I have a question regarding whole-body shaking and would be grateful for any information you could give me. Five years ago when I was 49 I was diagnosed with Parkinson's disease. My only symptom was that within a few months my whole body suddenly became very slow. It was bi-lateral, and equally
Daisies22
in
Cure Parkinson's
11 months ago
My perfect cousin…………..(intestine related)
I’m unsure how by many of you will know this funny little song by an Irish band called The Undertones, but it’s first lines go: ‘My perfect cousin. What I like to do he doesn’t’. Strangely I seem to think of my intestines as some annoying, smug and dysfunctional relative. I can’t get rid of him but
I’m unsure how by many of you will know this funny little song by an Irish band called The Undertones, but it’s first lines go: ‘My perfect cousin. What I like to do he doesn’t’. Strangely I seem to think of my intestines as some annoying, smug and dysfunctional relative. I can’t get rid of him but
jeeves19
in
Cure Parkinson's
11 months ago
Head twisting
I am a PWP diagnosed 6 months ago aged 58, my neurologist thinks I have been suffering undiagnosed for 10 years, I am now on 25/100 Madopar 3x per day. I usually walk 3-4miles per day and have recently noticed when walking my heard is trying to turn/twist to the right, has anyone else had this issue,
I am a PWP diagnosed 6 months ago aged 58, my neurologist thinks I have been suffering undiagnosed for 10 years, I am now on 25/100 Madopar 3x per day. I usually walk 3-4miles per day and have recently noticed when walking my heard is trying to turn/twist to the right, has anyone else had this issue,
JH23
in
Cure Parkinson's
11 months ago
Dystonia: WTF?!
Never saw this one coming. Funny, when you type this word into the search, there are very few posts with this in the title. Strange as this is becoming the symptom I fear and loathe most. During my 8 years with PD, I’ve been conscious of Dystonia in isolated areas like feet but about a year ago my diaphragm
Never saw this one coming. Funny, when you type this word into the search, there are very few posts with this in the title. Strange as this is becoming the symptom I fear and loathe most. During my 8 years with PD, I’ve been conscious of Dystonia in isolated areas like feet but about a year ago my diaphragm
jeeves19
in
Cure Parkinson's
1 year ago
In defence of meds!
Hey gang. Ever since I’ve been a Parkie, I’ve noticed how so many members of the community are strongly focused on either reducing or phasing out drugs altogether. I’ve usually supported the ambition but today had it well and truly brought home to me how important Levadopa is in managing the disease
Hey gang. Ever since I’ve been a Parkie, I’ve noticed how so many members of the community are strongly focused on either reducing or phasing out drugs altogether. I’ve usually supported the ambition but today had it well and truly brought home to me how important Levadopa is in managing the disease
jeeves19
in
Cure Parkinson's
1 year ago
update on hubby
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
LAJ12345
in
Cure Parkinson's
1 year ago
COMT inhibitors
Hubby is doing really well at the moment and I think one of the things that has helped has been the introduction of 1/2 a entacapone tablet taken at the same time as his madopar/ mucuna doses. According to his genetic report his COMT appeared to be one thing that was functioning normally so I was a
Hubby is doing really well at the moment and I think one of the things that has helped has been the introduction of 1/2 a entacapone tablet taken at the same time as his madopar/ mucuna doses. According to his genetic report his COMT appeared to be one thing that was functioning normally so I was a
LAJ12345
in
Cure Parkinson's
1 year ago
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