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Low iron???
My wife's Hgb is often low, though can pickup a little after a ferinject IV. Her hematologist would prescribe ferinject when her ferritin was lower than 15, so she is always on the low side of normal. A recent trip to Christie's and blood tests gave this result above. We understand the ferritin numbers
My wife's Hgb is often low, though can pickup a little after a ferinject IV. Her hematologist would prescribe ferinject when her ferritin was lower than 15, so she is always on the low side of normal. A recent trip to Christie's and blood tests gave this result above. We understand the ferritin numbers
jointpain
in
MPN Voice
4 days ago
PSMA PET Showing No PSMA Avid Metastases Again
Hello Everyone - I have update my profile with my husband's history. I think it is complete - but here is a quick recap: He was originally diagnosed on January 5, 2022 with a PSA of 1041.5 with mets to pelvic lymph node and bone. He underwent successful Triplet Therapy in 2022. He continued with Lupron
Hello Everyone - I have update my profile with my husband's history. I think it is complete - but here is a quick recap: He was originally diagnosed on January 5, 2022 with a PSA of 1041.5 with mets to pelvic lymph node and bone. He underwent successful Triplet Therapy in 2022. He continued with Lupron
FaithOverFear104
in
Advanced Prostate Cancer
5 days ago
PSP eye problems
I guess I should have mentioned we are in the US in state of Oklahoma and getting appointment for neurologist is next to impossible as the few we have say they are not accepting any new patients. Only one we found is in Dallas, TX for next June. I’ve now placed her on hospice care and will try to give
I guess I should have mentioned we are in the US in state of Oklahoma and getting appointment for neurologist is next to impossible as the few we have say they are not accepting any new patients. Only one we found is in Dallas, TX for next June. I’ve now placed her on hospice care and will try to give
ajsimon8781
in
PSP Association
5 days ago
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Diagnosed today with small cell Mets in liver
I was diagnised 18 months ago with PSA of 125 and 2-3 Mets to bone. None elsewhere. Dana Farber in Boston put me on Relogolix and Darolutemide and brought my PSA down to .02 over 4-5 months , which was described as Super Responder. Had a PSMA PET SCAN, which showed nothing on the prostate and only one
I was diagnised 18 months ago with PSA of 125 and 2-3 Mets to bone. None elsewhere. Dana Farber in Boston put me on Relogolix and Darolutemide and brought my PSA down to .02 over 4-5 months , which was described as Super Responder. Had a PSMA PET SCAN, which showed nothing on the prostate and only one
Cape1
in
Advanced Prostate Cancer
6 days ago
New here , partner has liver cirrhosis
Hi My partner has had past problems with alcohol , she is only 39 and has liver cirrhosis , in November 2022 her decompensated, she seemed to get better and 2023 was a good year she was showing really good health. 2024 has been different in May she had to have her tummy drained , and from then on
Hi My partner has had past problems with alcohol , she is only 39 and has liver cirrhosis , in November 2022 her decompensated, she seemed to get better and 2023 was a good year she was showing really good health. 2024 has been different in May she had to have her tummy drained , and from then on
Yorkshire82
in
British Liver Trust
6 days ago
CAP score dispute
Hello Everyone, I had a fibroscan this week. Overall, good news. No fibrosis, ir scarring. However, I was a little perturbed that my CAP score, which measures the amount of fat in the liver, was 268. The ranges for CAP scores are as follows: 230-260 means a low of 11% fat to 34% fat, considered S1
Hello Everyone, I had a fibroscan this week. Overall, good news. No fibrosis, ir scarring. However, I was a little perturbed that my CAP score, which measures the amount of fat in the liver, was 268. The ranges for CAP scores are as follows: 230-260 means a low of 11% fat to 34% fat, considered S1
ToughToes
in
British Liver Trust
6 days ago
Private Message - Hyperparathyroid Surgeons
Hello 👋 We’re based in Shropshire and my partner has primary hyperparathyroidism . He has high calcium levels / PTH . We would be very very grateful of any private messages of any personal recommendations of surgeons who are very experienced in this type of surgery . Thank you 🙏 Kelly & John
Hello 👋 We’re based in Shropshire and my partner has primary hyperparathyroidism . He has high calcium levels / PTH . We would be very very grateful of any private messages of any personal recommendations of surgeons who are very experienced in this type of surgery . Thank you 🙏 Kelly & John
Kisca
in
Thyroid UK
7 days ago
First real signs of Ascites
I haven't posted on here for a while but I feel the need to today. My dearest friend has liver cirrhosis diagnosed almost 3 years ago. He went for a fibro scan yesterday and he now has fluid build up around his liver. His spleen is also enlarged. Once this starts to accumulate is it downhill from here
I haven't posted on here for a while but I feel the need to today. My dearest friend has liver cirrhosis diagnosed almost 3 years ago. He went for a fibro scan yesterday and he now has fluid build up around his liver. His spleen is also enlarged. Once this starts to accumulate is it downhill from here
Catfan1969
in
British Liver Trust
7 days ago
Pianolover101
Morning everyone, I haven't posted in a few weeks, but want to say how comforting I find it to read posts and the very knowledgeable replies (I'm thinking of you Katy! ) I spoke to one of the liver nurses a couple weeks ago and she was a total saint and gave me so many practical tips. It's my husband
Morning everyone, I haven't posted in a few weeks, but want to say how comforting I find it to read posts and the very knowledgeable replies (I'm thinking of you Katy! ) I spoke to one of the liver nurses a couple weeks ago and she was a total saint and gave me so many practical tips. It's my husband
Hidden
in
British Liver Trust
7 days ago
Correct dose of b12 post abdominal surgery/stoma bag
I am trying to help my son. Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell! I would
I am trying to help my son. Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell! I would
Vonni7
in
Pernicious Anaemia Society
7 days ago
No cancer found from TURP tissue ???
My husband had TURP a week ago because of years of issues with peeing . He was supposed to get this done last year but was diagnosed with stage 4 cancer , you may read my profile for his treatment and current PSA . The urologist said they would test all the tissue they take out . We were called by our
My husband had TURP a week ago because of years of issues with peeing . He was supposed to get this done last year but was diagnosed with stage 4 cancer , you may read my profile for his treatment and current PSA . The urologist said they would test all the tissue they take out . We were called by our
positive-thinking
in
Advanced Prostate Cancer
7 days ago
Cancer that doesn't express PSMA
Hello everyone - thanks in advance for any thoughts or opinions! Here's the abbreviated version of my story: My father was diagnosed at 51 and died at 52 of metastatic prostate cancer (think his PSA at time of diagnosis was in the 40s, but cannot remember for sure). I've been diligent with PSA and
Hello everyone - thanks in advance for any thoughts or opinions! Here's the abbreviated version of my story: My father was diagnosed at 51 and died at 52 of metastatic prostate cancer (think his PSA at time of diagnosis was in the 40s, but cannot remember for sure). I've been diligent with PSA and
Trasmc
in
Advanced Prostate Cancer
7 days ago
Salvage treatment for radiorecurrent PCa
If I’m lucky I’ll soon be facing a decision as to which salvage treatment to have for radiorecurreent PCa. By lucky I mean that if upcoming tests show no spread outside of the prostate and I’m a candidate for salvage treatment. The salvage treatments I’m considering are SBRT, Brachytherapy and Cryotherapy
If I’m lucky I’ll soon be facing a decision as to which salvage treatment to have for radiorecurreent PCa. By lucky I mean that if upcoming tests show no spread outside of the prostate and I’m a candidate for salvage treatment. The salvage treatments I’m considering are SBRT, Brachytherapy and Cryotherapy
hwrjr
in
Advanced Prostate Cancer
8 days ago
Experience with Endoxan 50mg and Alcohol
Hello I am being treated for renal-limited vasculitis from p-ANCA, MPO. eGFR has improved from 23 to 56 over last three months. So many lifestyle and dietary changes implemented. Now I start to miss my weekend beer or two. I get mixed messages from the doctors and internet searches on whether ok
Hello I am being treated for renal-limited vasculitis from p-ANCA, MPO. eGFR has improved from 23 to 56 over last three months. So many lifestyle and dietary changes implemented. Now I start to miss my weekend beer or two. I get mixed messages from the doctors and internet searches on whether ok
Support_helps
in
Vasculitis UK
8 days ago
First Liver Consultant Appointment
Hi I have my first appointment with a consultant in Edinburgh to confirm my diagnosis of 'Probable Cirrhosis' on the 4th October. I was diagnosed via blood tests and scans, that I have alcohol related liver disease. I stopped drinking 5 months ago and have seen a great improvement in my general well
Hi I have my first appointment with a consultant in Edinburgh to confirm my diagnosis of 'Probable Cirrhosis' on the 4th October. I was diagnosed via blood tests and scans, that I have alcohol related liver disease. I stopped drinking 5 months ago and have seen a great improvement in my general well
catmum2
in
British Liver Trust
8 days ago
Finally, weaning off prednisone after 15 years.
I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness
I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness
phebamom
in
PMRGCAuk
9 days ago
Surgery? - Graves disease and thyroid nodule
I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now. I have experienced 2 relapses, however I am currently on 5mg carbimozole
I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now. I have experienced 2 relapses, however I am currently on 5mg carbimozole
Greggors
in
Thyroid UK
9 days ago
F3/F4 Diagnoses
Hi All. This is my first post. I had a fibroscan back in July and the nurse who performed it told me I had high-level F3, possibly creeping into F4. I’ve been referred to the Cirrosis Surveillance Team at my local hospital, but my first appointment isn’t until the middle of October. I’ve done a lot of
Hi All. This is my first post. I had a fibroscan back in July and the nurse who performed it told me I had high-level F3, possibly creeping into F4. I’ve been referred to the Cirrosis Surveillance Team at my local hospital, but my first appointment isn’t until the middle of October. I’ve done a lot of
Frogman68
in
British Liver Trust
9 days ago
PSA acting very weird
Recurrent prostate cancer after RP in 2018...though seemingly not metastatic...yet. Haven't done treatment. My story is in the profile and bio. Anyway, PSA got as high as the 9's earlier this year...then fell to 7.7 in July...and now in September registers 3.4. No idea what's happening or why.
Recurrent prostate cancer after RP in 2018...though seemingly not metastatic...yet. Haven't done treatment. My story is in the profile and bio. Anyway, PSA got as high as the 9's earlier this year...then fell to 7.7 in July...and now in September registers 3.4. No idea what's happening or why.
Nittany
in
Advanced Prostate Cancer
9 days ago
question about cirrhosis
Has anyone had cirrhosis from Hep C, portal hypertension, enlarged spleen, diabetes. All these diagnoses have my anxiety at a high level.
Has anyone had cirrhosis from Hep C, portal hypertension, enlarged spleen, diabetes. All these diagnoses have my anxiety at a high level.
Brownie1122
in
British Liver Trust
9 days ago
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