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Lymphocytic leukemia
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Stem cell transplant outcomes
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
jane13
in
MPN Voice
6 years ago
Letter to my MP regarding funding of Ibrutinib
Dear Mrs Hobhouse, I am a cancer patient and under treatment from the RUH since 2006 when I was first diagnosed with CLL. The disease is a slowly progressing one, and in 2010 after four years of ‘watch and wait’ I had six months of chemotherapy, and then another six months of chemotherapy in 2015. Last
Dear Mrs Hobhouse, I am a cancer patient and under treatment from the RUH since 2006 when I was first diagnosed with CLL. The disease is a slowly progressing one, and in 2010 after four years of ‘watch and wait’ I had six months of chemotherapy, and then another six months of chemotherapy in 2015. Last
Ruhi9
in
CLL Support
6 years ago
Thoughts on CLL treatment and watch and wait
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
AdrianUK
in
CLL Support
6 years ago
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Hydroxycarbamide (esp 70+, diabetics)
Hello Just looking for some feedback. My mum is 70, a type 2 diabetic and of Indian heritage. We are UK based. She has just been diagnosed with having Essential Thrombocythaemia. As a result she will have to start (or will have started depending on when you read this) taking hydroxycarbamide tablets
Hello Just looking for some feedback. My mum is 70, a type 2 diabetic and of Indian heritage. We are UK based. She has just been diagnosed with having Essential Thrombocythaemia. As a result she will have to start (or will have started depending on when you read this) taking hydroxycarbamide tablets
DS5AS
in
MPN Voice
6 years ago
An exercise pill would be prescribed to every cancer patient worldwide and viewed as a major breakthrough in cancer treatment
Today, Australia’s peak body representing health professionals who treat people with cancer, has joined 25 other cancer organisations [u]to call for exercise to be prescribed to all cancer patients as part of routine cancer care[/u]. [i]"Published today in the Medical Journal of Australia, our plan is
Today, Australia’s peak body representing health professionals who treat people with cancer, has joined 25 other cancer organisations [u]to call for exercise to be prescribed to all cancer patients as part of routine cancer care[/u]. [i]"Published today in the Medical Journal of Australia, our plan is
AussieNeil
Partner
in
CLL Support
6 years ago
CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
LLS Webinar: What’s on the Horizon for Chronic Lymphocytic Leukemia (CLL)?
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
Thursday, May 8, 2018, 12-130 PM. Details are available at www.LLS.org/programs Presented by: Matthew S. Davids, MD, MMSc Assistant Professor of Medicine, Harvard Medical School Director, Lymphoma BioBank Associate Director, CLL Center Dana-Farber Cancer Institute Boston, MA
wmay13241
in
CLL Support
6 years ago
Concerning blood results
Hi was wanting some support and advice from everyone on here. My blood platelets are elevated, my mean cell volume is down. After looking at blood under the microscope it’s been said that I have lymphocytosis with occasional abnormal lymphocytes and hypochromic microcytosis. These levels have been slowly
Hi was wanting some support and advice from everyone on here. My blood platelets are elevated, my mean cell volume is down. After looking at blood under the microscope it’s been said that I have lymphocytosis with occasional abnormal lymphocytes and hypochromic microcytosis. These levels have been slowly
Hanneesweedie
in
CLL Support
6 years ago
The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
Myelofibrosis & Yransplant Symposium
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
MFBMT2011
in
MPN Voice
6 years ago
A global snapshot of leukemia incidence
FROM THE LANCET HAEMATOLOGY: [i]"Chronic
lymphocytic
leukemia
incidence was highest for men in Canada (4.5 per 100,000), Ireland and Lithuania (4.4), and Slovakia (4.3). The incidence was highest for women in Lithuania (2.5), Canada (2.3), and Slovakia and Denmark (2.1).
FROM THE LANCET HAEMATOLOGY: [i]"Chronic
lymphocytic
leukemia
incidence was highest for men in Canada (4.5 per 100,000), Ireland and Lithuania (4.4), and Slovakia (4.3). The incidence was highest for women in Lithuania (2.5), Canada (2.3), and Slovakia and Denmark (2.1).
AussieNeil
Partner
in
CLL Support
6 years ago
My own Watch Wait and Worry CLL story
Thanks so much to Leukaemia Care for the fantastic watch and wait campaign, highlighting how difficult it is for us to adjust to. We are told we have cancer in every drop of blood in our bodies but the doctors say nothing should be done about it just yet. This has inspired me to share my own story
Thanks so much to Leukaemia Care for the fantastic watch and wait campaign, highlighting how difficult it is for us to adjust to. We are told we have cancer in every drop of blood in our bodies but the doctors say nothing should be done about it just yet. This has inspired me to share my own story
AdrianUK
in
Leukaemia Support
6 years ago
More treatment confusion?!
Hi CLL'ers, I am very grateful for this forum. I'm on line a lot but this is the only place I go for CLL info. I saw my Dr. about a week ago and we have the same friendly debate-he wants to begin treatment and I don't. My white count is at 30 thousand, no doubling of the Absolute count, lots of fatigue
Hi CLL'ers, I am very grateful for this forum. I'm on line a lot but this is the only place I go for CLL info. I saw my Dr. about a week ago and we have the same friendly debate-he wants to begin treatment and I don't. My white count is at 30 thousand, no doubling of the Absolute count, lots of fatigue
lorna222
in
CLL Support
6 years ago
NEVER GIVE UP!
I’m a 71 year old female of Irish decent. I was diagnosed with CLL in 1991. It remained in remission until January 2017. My oncologist started me on IMBRUVICA (3 capsules, 140mg each) in March 2017. The only “side effect” was bone pain in the beginning. Dr. H assured me that it was temporary & was
I’m a 71 year old female of Irish decent. I was diagnosed with CLL in 1991. It remained in remission until January 2017. My oncologist started me on IMBRUVICA (3 capsules, 140mg each) in March 2017. The only “side effect” was bone pain in the beginning. Dr. H assured me that it was temporary & was
maowen46
in
CLL Support
6 years ago
Hi, I'm new and wanted to introduce myself
In my very new search (I literally found out 10 minutes ago when I received the intake paperwork I asked for) I learned that chronic
lymphocytic
leukemia
can cause rashes like that. I'm just wondering if anyone can get me started on the right track here.
In my very new search (I literally found out 10 minutes ago when I received the intake paperwork I asked for) I learned that chronic
lymphocytic
leukemia
can cause rashes like that. I'm just wondering if anyone can get me started on the right track here.
kjharvey
in
CLL Support
6 years ago
Questions for consultant?
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
AntonMB
in
CLL Support
6 years ago
New potential therapeutic target for MF
Possible new breakthrough re MF. Early days but one to watch.... https://www.nature.com/articles/s41467-018-03627-9 “To summarize, using two murine models of myelofibrosis, we show that a specific HSP27 inhibitor, OGX-427, limits the progression of myelofibrosis by (i) reducing both spleen weight and
Possible new breakthrough re MF. Early days but one to watch.... https://www.nature.com/articles/s41467-018-03627-9 “To summarize, using two murine models of myelofibrosis, we show that a specific HSP27 inhibitor, OGX-427, limits the progression of myelofibrosis by (i) reducing both spleen weight and
Paul123456
in
MPN Voice
6 years ago
Food, Glorious Food 🥘
Hello dear friends, Quite proud of myself 😉 Started this new antiacid, anti-inflammatory diet last week. It was time I started a new hobby, as I can’t do my embroidery anymore at least I can cook. It is also good for Bea and her post shingles chronic fatigue. And it keeps me active, shopping for strange
Hello dear friends, Quite proud of myself 😉 Started this new antiacid, anti-inflammatory diet last week. It was time I started a new hobby, as I can’t do my embroidery anymore at least I can cook. It is also good for Bea and her post shingles chronic fatigue. And it keeps me active, shopping for strange
Hidden
in
Lung Conditions Community Forum
6 years ago
Transplant in sight
It's been a while since I last posted but I finally feel that the transplant is in reach. Ibruitinib and Venetoclax combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL
It's been a while since I last posted but I finally feel that the transplant is in reach. Ibruitinib and Venetoclax combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL
KAS8
in
CLL Support
6 years ago
Outcomes of haploidentical stem cell transplantation for chronic lymphocytic leukemia: a retrospective study
Allogeneic hematopoietic stem cell transplantation (HCT) may result in long-term disease control in high-risk chronic
lymphocytic
leukemia
(CLL). Recently, haploidentical HCT is gaining interest because of better outcomes with post-transplantation cyclophosphamide (PTCY).
Allogeneic hematopoietic stem cell transplantation (HCT) may result in long-term disease control in high-risk chronic
lymphocytic
leukemia
(CLL). Recently, haploidentical HCT is gaining interest because of better outcomes with post-transplantation cyclophosphamide (PTCY).
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
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