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Webinar for patients - HCL treatment and care in a changing landscape - 3.30pm GMT Monday 1st December
Dear HCL friends please join us Leukaemia Care are hosting this participative patient information webinar to explore the changing HCL treatment, management and care landscape. The webinar will help to explain the condition, how it is managed and treated, while exploring changes in treatment and challenges
Dear HCL friends please join us Leukaemia Care are hosting this participative patient information webinar to explore the changing HCL treatment, management and care landscape. The webinar will help to explain the condition, how it is managed and treated, while exploring changes in treatment and challenges
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
CLL Canada Statement on COVID - 19 Vaccines
From: CLL CANADA [mailto:cllcanada.org@gmail.com] Sent: Saturday, December 5, 2020 12:08 PM Subject: Will COVID vaccines work for CLL patients? Dear CLL Canada members The recent news of successful vaccine trials have many of us wondering whether they will be safe and whether they will work for
From: CLL CANADA [mailto:cllcanada.org@gmail.com] Sent: Saturday, December 5, 2020 12:08 PM Subject: Will COVID vaccines work for CLL patients? Dear CLL Canada members The recent news of successful vaccine trials have many of us wondering whether they will be safe and whether they will work for
lankisterguy
Volunteer
in
CLL Support
4 years ago
Fri, Nov 27, 2:00 PM - 3:00 PM GMT Getting the best out of your medical appointments - a joint Lymphoma Action and Leukaemia Care webinar
Hi all, you are invited to join us for this webinar hosted by Lymphoma Action and Leukaemia Care, We will be focussing on how you can get the most out of your appointments, however they are happening and at whatever stage they are at in their in your journey. You can register and submit your questions
Hi all, you are invited to join us for this webinar hosted by Lymphoma Action and Leukaemia Care, We will be focussing on how you can get the most out of your appointments, however they are happening and at whatever stage they are at in their in your journey. You can register and submit your questions
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
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Interesting article on venetoclax, ibrutinib and obinutuzumab combination
https://www.targetedonc.com/view/obinutuzumab-triplet-achieves-deep-remissions-in-chronic-
lymphocytic
-
leukemia
Interesting article on venetoclax, ibrutinib and obinutuzumab combination which seems to be doing a good job
https://www.targetedonc.com/view/obinutuzumab-triplet-achieves-deep-remissions-in-chronic-
lymphocytic
-
leukemia
Interesting article on venetoclax, ibrutinib and obinutuzumab combination which seems to be doing a good job
Research123
in
CLL Support
4 years ago
Phylogenetic reconstruction of myeloproliferative neoplasm reveals very early origins and lifelong evolution
« The mean latency between JAK2V617F acquisition and clinical presentation was 31 years (range 12-54 years). Rates of clonal expansion varied substantially (<10% to >200% expansion/year), were affected by additional driver mutations, and predicted latency to clinical presentation. Driver mutations and
« The mean latency between JAK2V617F acquisition and clinical presentation was 31 years (range 12-54 years). Rates of clonal expansion varied substantially (<10% to >200% expansion/year), were affected by additional driver mutations, and predicted latency to clinical presentation. Driver mutations and
Manouche
in
MPN Voice
4 years ago
Reminder 3.30pm Monday WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”
Good morning, in case you missed this post, we will be joined by leading haematology and immunology consultant experts on Monday at 3.30 to discuss the immune challenges of leukaemia patients, vaccinations and coping strategies. very timely with the current Covid vaccine status. This is open to all
Good morning, in case you missed this post, we will be joined by leading haematology and immunology consultant experts on Monday at 3.30 to discuss the immune challenges of leukaemia patients, vaccinations and coping strategies. very timely with the current Covid vaccine status. This is open to all
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Welcome advice on healing AML
I am a 76 year old woman from Melbourne Australia and I have just been diagnosed with Acute Myeloid Leukemia.
I am a 76 year old woman from Melbourne Australia and I have just been diagnosed with Acute Myeloid Leukemia.
Mtd1944
in
Leukaemia Support
4 years ago
COVID -19 Vaccinations for CLL patients ?
Here is an opinion from my CLL expert doctor copied from https://groups.io/g/CLLSLL/message/30481?reply=1 with permission from the writer Richard Furman MD [i] Date: Thu, 26 Nov 2020 12:51:33 EST We don't know if they are effective nor whether there will be unanticipated side effects in CLL patients
Here is an opinion from my CLL expert doctor copied from https://groups.io/g/CLLSLL/message/30481?reply=1 with permission from the writer Richard Furman MD [i] Date: Thu, 26 Nov 2020 12:51:33 EST We don't know if they are effective nor whether there will be unanticipated side effects in CLL patients
lankisterguy
Volunteer
in
CLL Support
4 years ago
NICE approves venetoclax with obinutuzumab for patients with untreated CLL
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”
Please join us for our next webinar on Monday 16th Nov at 3:30pm! You can register here: https://us02web.zoom.us/webinar/register/WN_aQywOrBDTQyoeBkPZMGkEA Leukaemia Care are hosting this webinar to discuss the nature of challenges patients may experience when living with a compromised immune system
Please join us for our next webinar on Monday 16th Nov at 3:30pm! You can register here: https://us02web.zoom.us/webinar/register/WN_aQywOrBDTQyoeBkPZMGkEA Leukaemia Care are hosting this webinar to discuss the nature of challenges patients may experience when living with a compromised immune system
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Starting CyberKnife treatment
Hello warriors! Had my second needle biopsy on 10/30. The first one 3 mo ago was inconclusive, suspicious. The path report came in on 11/03 as an adenocarcinoma. I also had a fiducial marker implanted at the time of the biopsy and on 11/9, I go to a diagnostic center that has the software protocol
Hello warriors! Had my second needle biopsy on 10/30. The first one 3 mo ago was inconclusive, suspicious. The path report came in on 11/03 as an adenocarcinoma. I also had a fiducial marker implanted at the time of the biopsy and on 11/9, I go to a diagnostic center that has the software protocol
dunnellon
in
Lung Conditions Community Forum
4 years ago
Ruxolitinib
Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me please.I am already on Hydroxycarbamide and aspirin. Thanks
Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me please.I am already on Hydroxycarbamide and aspirin. Thanks
Big-Ted
in
MPN Voice
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
Me2AsWell
in
CLL Support
4 years ago
Hand Sanitizers and Disinfectants
Hello, I am wondering if anyone has any knowledge or opinion on the use of hand sanitizers or disinfectants by mpn'ers during this time of Covid. I have read in the past that chemicals, (especially benzene, not in either) have been implicated in causing diseases and/or gene mutations. I am constantly
Hello, I am wondering if anyone has any knowledge or opinion on the use of hand sanitizers or disinfectants by mpn'ers during this time of Covid. I have read in the past that chemicals, (especially benzene, not in either) have been implicated in causing diseases and/or gene mutations. I am constantly
Meatloaf9
in
MPN Voice
4 years ago
Low MCH MCV?
Just a question to anyone else with ET who has dropping MCH & MCV levels, they were previously ok but getting lower each time, I’ve had varying reasons given for this & would be grateful for anyone else’s experience before I try to speak to my consultant again I’ve been told it could be to do with periods
Just a question to anyone else with ET who has dropping MCH & MCV levels, they were previously ok but getting lower each time, I’ve had varying reasons given for this & would be grateful for anyone else’s experience before I try to speak to my consultant again I’ve been told it could be to do with periods
Melaniem59
in
MPN Voice
4 years ago
85 year old not coping with nor responding to treatment
Hi, I am new. My Dad has CLL which has just become symptomatic after 5 years. He has had 3 treatments of Obinutuzimab and Chlorambucil , the first one made him so ill he was rushed to ICU. Now he seems to have hemalosis, as his RBC is very low at 70 and will not increase even after 8 blood transfusions
Hi, I am new. My Dad has CLL which has just become symptomatic after 5 years. He has had 3 treatments of Obinutuzimab and Chlorambucil , the first one made him so ill he was rushed to ICU. Now he seems to have hemalosis, as his RBC is very low at 70 and will not increase even after 8 blood transfusions
TKB2020
in
CLL Support
4 years ago
Hyperbaric oxygen therapy...
I just read about a trial of volunteers in Israel who took hyperbaric oxygen therapy (HBOT) for 90 minutes a day, 5 days a week, for 3 months, and the results were apparently nothing less than extraordinary in reversing the ageing process. I then briefly checked the internet and found that dating back
I just read about a trial of volunteers in Israel who took hyperbaric oxygen therapy (HBOT) for 90 minutes a day, 5 days a week, for 3 months, and the results were apparently nothing less than extraordinary in reversing the ageing process. I then briefly checked the internet and found that dating back
Pogee
in
CLL Support
4 years ago
Video Journal of Hematologic Oncology the chronic lymphocytic leukemia (CLL) channel- intended for healthcare professionals
Delve into the latest updates in CLL, including expert interviews from major international congresses, podcasts and e-learning. https://www.vjhemonc.com/subject/chronic-
lymphocytic
-
leukemia
/?dm/ The content of VJHemOnc is intended for healthcare professionals - Len
Delve into the latest updates in CLL, including expert interviews from major international congresses, podcasts and e-learning. https://www.vjhemonc.com/subject/chronic-
lymphocytic
-
leukemia
/?dm/ The content of VJHemOnc is intended for healthcare professionals - Len
lankisterguy
Volunteer
in
CLL Support
4 years ago
Newly Diagnosed, W&W, yearly visits?
Hi i was recently diagnosed a week ago, my MBL crossed over the 5000 threshold, and now officially RAI 0. Flow/FISH was done, im 13q deleted, ZAP70 and CD38 negative. Doc (oncologist) said it most likely be 10-15 years before i would need treatment, and said he is putting me on yearly checkups. I know
Hi i was recently diagnosed a week ago, my MBL crossed over the 5000 threshold, and now officially RAI 0. Flow/FISH was done, im 13q deleted, ZAP70 and CD38 negative. Doc (oncologist) said it most likely be 10-15 years before i would need treatment, and said he is putting me on yearly checkups. I know
Freeskier989
in
CLL Support
4 years ago
ICC ruled in favor of AOP Orphan Pharmaceuticals AG in arbitration proceedings pertaining to BESREMi®
«We are relieved that the ICC ruling compensates AOP Orphan now for the delay in getting BESREMi® approved in the European Union, and the delay in bringing this important medication to the patients suffering from polycythaemia vera, a rare and chronic disease of the blood building cells", explains Dr
«We are relieved that the ICC ruling compensates AOP Orphan now for the delay in getting BESREMi® approved in the European Union, and the delay in bringing this important medication to the patients suffering from polycythaemia vera, a rare and chronic disease of the blood building cells", explains Dr
Manouche
in
MPN Voice
4 years ago
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