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Lung lobectomy
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chronic cough 5 months after Lobectomy
I'm 5months post op of upper right Lobectomy. I've had a chronic cough since surgery. repeat CT shows op was successful. camera down throat shows no reason for cough. I've had steroids, 5 lots of antibiotics and I'm now on blue and brown inhalers. nothing is making me better and it's seriously affecting
I'm 5months post op of upper right Lobectomy. I've had a chronic cough since surgery. repeat CT shows op was successful. camera down throat shows no reason for cough. I've had steroids, 5 lots of antibiotics and I'm now on blue and brown inhalers. nothing is making me better and it's seriously affecting
Paulweaver1984
in
The Roy Castle Lung Cancer Foundation
2 years ago
DO YOU HAVE THE MET EXON14 MUTATION, NSCLC? DRUG SUBMISSION TIME.
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
Tepotinib (Tetmeko) will shortly be assessed by the Scottish Medicines Consortium (SMC) for use in NHS Scotland, and we are invited to provide a Patient Group Submission for the medicine. The indication this new medicine will be assessed under is 'For use in adults to treat a type of lung cancer, called
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
2 years ago
My husband has been recently diagnosed with small cell lung cancer
We live in Spain. My husband (74 years old) was diagnosed with small cell lung cancer in January 2022 - 7cm tumour in the right lung, and in the hilar lymph nodes plus bronchelei. He started chemotherapy on 31 Jan, then another on 1st and 2nd Feb. His next appointment is 23/24/25 Feb. At the moment,
We live in Spain. My husband (74 years old) was diagnosed with small cell lung cancer in January 2022 - 7cm tumour in the right lung, and in the hilar lymph nodes plus bronchelei. He started chemotherapy on 31 Jan, then another on 1st and 2nd Feb. His next appointment is 23/24/25 Feb. At the moment,
Texas22
in
The Roy Castle Lung Cancer Foundation
2 years ago
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Massive setback…😡😢😡😢😡😢
Just got word from the transplant team that they now consider me too high a risk for a double lung transplant. As some of you may remember the assessment work up flagged up a calcification build up in a heart vessel ( LAD) which needed sorting. I subsequently went to the Harefield for angioplasty and
Just got word from the transplant team that they now consider me too high a risk for a double lung transplant. As some of you may remember the assessment work up flagged up a calcification build up in a heart vessel ( LAD) which needed sorting. I subsequently went to the Harefield for angioplasty and
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Transplant Assessment over and out (almost)
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my lung transplant assessment on Monday and Tuesday this week. Having read the booklet that they sent in advance, I had a fair idea of what was involved but still don't think I was fully prepared for the
After having to postpone my previous appointment due to a dubious positive PCR test, I finally had my lung transplant assessment on Monday and Tuesday this week. Having read the booklet that they sent in advance, I had a fair idea of what was involved but still don't think I was fully prepared for the
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Spring, and unusual weather
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Think here in Midlands have early spring, my prunus cherry tree is in full bloom, pigeons eating flowers, hardy fuchsias in leaf, whilst snowdrops crocus etc still flowering beautifully. Lucky not to have had flooding where I live. Blue tits have been going into their box since before Christmas, can
Morrison10
in
Lung Conditions Community Forum
2 years ago
Middle of the night gremlins
The past 5 weeks... Can't believe how our lives have changed.... My husband has been diagnosed with stage 4 non small cell cancer.... Its been a roller coaster.... He has bee n looked after well by shooting star wrexham. He is starting treatment on Monday... 2 x chemo plus immunotherapy...... I get
The past 5 weeks... Can't believe how our lives have changed.... My husband has been diagnosed with stage 4 non small cell cancer.... Its been a roller coaster.... He has bee n looked after well by shooting star wrexham. He is starting treatment on Monday... 2 x chemo plus immunotherapy...... I get
Ceibach
in
The Roy Castle Lung Cancer Foundation
2 years ago
Losing weight while on steroids
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hidden
in
Lung Conditions Community Forum
2 years ago
Please join us tomorrow Tuesday, February 8th for our monthly Gathering HOPE social hour!
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Happy to be here!
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
With everything that's been going on with my lung disease over the past few years, I often forget just how fortunate I am to still be here. In September 2003 I was diagnosed with chronic myeloid leukaemia at the age of 18. I was totally blindsided and the future looked bleak. The amazing treatments
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Oxygen user and covid antivirals
Hi hope you’re well. My parents are staying with me, dad tested positive with covid yesterday. He’s doing really well a little coughing now and again so pretty mild. So far my lft are negative however I’ve made enquiries and my consultant doesn’t think I’d be eligible for antivirals if I test positive
Hi hope you’re well. My parents are staying with me, dad tested positive with covid yesterday. He’s doing really well a little coughing now and again so pretty mild. So far my lft are negative however I’ve made enquiries and my consultant doesn’t think I’d be eligible for antivirals if I test positive
BreatheasyBe
in
Lung Conditions Community Forum
2 years ago
It's back...again
Very briefly: Dad has squamous cell nsclc. He had upper right lobectomy December 2019 and given all clear.. Aug 2020 came back in mediastinal lymph nodes causing SVCO. The tumour was 9cm so he had a stent. He had 4 rounds of carboplatin, paclitaxol and pembro. It reduced to 6cm....so he was put on maintenance
Very briefly: Dad has squamous cell nsclc. He had upper right lobectomy December 2019 and given all clear.. Aug 2020 came back in mediastinal lymph nodes causing SVCO. The tumour was 9cm so he had a stent. He had 4 rounds of carboplatin, paclitaxol and pembro. It reduced to 6cm....so he was put on maintenance
ALCLFC
in
The Roy Castle Lung Cancer Foundation
3 years ago
Transplant assessment delay - thanks for nothing PCR test!
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
Today I was expecting to be starting the process of thinking over whether I want to go ahead with a future lung transplant or not. Instead, I'm having to put everything on hold after falling at the final hurdle ahead of my lung transplant assessment which I was due to undergo today and yesterday. In
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
What a week!
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
My precious baby lost her battle💔😪
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
Kcn3
in
Lung Conditions Community Forum
2 years ago
Post Vats lobectomy
Hi just wondering if anybody had a similar experience- I had my surgery almost 3 weeks ago and am recovering well. I had 3 incisions of which one had 3 stitches and has healed well. The one where my drain was had only 1 stitch which was removed along with the drain the next day and this one is not knitting
Hi just wondering if anybody had a similar experience- I had my surgery almost 3 weeks ago and am recovering well. I had 3 incisions of which one had 3 stitches and has healed well. The one where my drain was had only 1 stitch which was removed along with the drain the next day and this one is not knitting
Brookbond
in
The Roy Castle Lung Cancer Foundation
3 years ago
Treatment has stoped working - next steps
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
magstherunner
in
The Roy Castle Lung Cancer Foundation
2 years ago
Accessing second course of Immunotherapy
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
nlg1405
in
The Roy Castle Lung Cancer Foundation
2 years ago
Extrapulmonary small cell cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Mitski
in
Lung Cancer Support
2 years ago
Pneumonia Recovery Issue
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
slram
in
Lung Conditions Community Forum
2 years ago
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