Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,266 public posts
Filter results
Some good Clonoseq results
I just wanted to share that I received some positive news from Clonoseq blood test. This is a blood test for MRD. It did not detect any CLL. So, my doctor has scheduled a bone marrow biopsy to do further testing. If that too comes back negative, I will be able to go off treatment. I started my
I just wanted to share that I received some positive news from Clonoseq blood test. This is a blood test for MRD. It did not detect any CLL. So, my doctor has scheduled a bone marrow biopsy to do further testing. If that too comes back negative, I will be able to go off treatment. I started my
Kvb-texas
in
CLL Support
1 year ago
WBC rising
After 2 years in remission post B+R my white count is starting to go up. In Aug. it was 7.925, Dec 8 was 11.78, and last week was 15.05. I have to go for another CBC next week. I am also noticing periods of feeling a little out of breath with little exertion. I'm scared that this might be heading
After 2 years in remission post B+R my white count is starting to go up. In Aug. it was 7.925, Dec 8 was 11.78, and last week was 15.05. I have to go for another CBC next week. I am also noticing periods of feeling a little out of breath with little exertion. I'm scared that this might be heading
Moonmyst
in
CLL Support
1 year ago
CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
CLLerinOz
Volunteer
in
CLL Support
1 year ago
CANCER CURE! Little girl's leukemia UNDETECTABLE after 6 months! (Treatment is applicable to OTHER diseases!)
[/i] [i]"All other treatments for Alyssa's
leukaemia
had failed."[/i] [i]"So doctors at Great Ormond Street Hospital used "base editing" to perform a feat of biological engineering to build her a new living drug."[/i] [i]"[/i][u][i]
Six months later the cancer is undetectable
[/i][/u][i]."
[/i] [i]"All other treatments for Alyssa's
leukaemia
had failed."[/i] [i]"So doctors at Great Ormond Street Hospital used "base editing" to perform a feat of biological engineering to build her a new living drug."[/i] [i]"[/i][u][i]
Six months later the cancer is undetectable
[/i][/u][i]."
PDWarrior1900
in
Cure Parkinson's
1 year ago
Spot Leukaemia Early campaign
Have been updating my story for
Leukaemia
Care's Spot
Leukaemia
Early campaign, they want to feature it again this year. Hopefully they will get local and some national newspapers to take it and possibly local television news programmes.
Have been updating my story for
Leukaemia
Care's Spot
Leukaemia
Early campaign, they want to feature it again this year. Hopefully they will get local and some national newspapers to take it and possibly local television news programmes.
kitchengardener2
in
CLL Support
2 years ago
The Leukemia & Lymphoma Society - - COVID Updates: Where We Are and Where We Go From Here
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
lankisterguy
Volunteer
in
CLL Support
1 year ago
CLL relapse
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Taupe7
in
CLL Support
1 year ago
LDN Dosing for Cancer - General Guide
It can be used for all cancer types except
leukaemia
and lymphoma. I highly recommend running a Maintrac test every 3-6 months to monitor for early signs of recurrence (it provides an early warning before tumours form).
It can be used for all cancer types except
leukaemia
and lymphoma. I highly recommend running a Maintrac test every 3-6 months to monitor for early signs of recurrence (it provides an early warning before tumours form).
Shewulf
Administrator
in
LDN Research Trust
1 year ago
Recently diagnosed with Primary Myelofibrosis
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Flyingsteamer
in
MPN Voice
2 years ago
Collagen
Good Day All I am 80 years old and have been on W & W for 5 years. I am considering taking a collagen supplement for joint pain in my knee. Does anyone know of reason I shouldn't take collagen with CLL. Thanks very much.
Good Day All I am 80 years old and have been on W & W for 5 years. I am considering taking a collagen supplement for joint pain in my knee. Does anyone know of reason I shouldn't take collagen with CLL. Thanks very much.
Buttons42
in
CLL Support
2 years ago
First COVID Antibody Test
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
noeagaman
in
CLL Support
1 year ago
Patient Power's MOST-READ ARTICLEs for 2022
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
lankisterguy
Volunteer
in
CLL Support
1 year ago
Is my body killing my embryos?
I'm 41... conceived a son through IVF in 2019 (an angel - my mum died of
leukaemia
in the middle of that cycle - I can't believe he was ok). From that cycle, I produced three more good quality blastocysts (grade B). These were put in the freezer.
I'm 41... conceived a son through IVF in 2019 (an angel - my mum died of
leukaemia
in the middle of that cycle - I can't believe he was ok). From that cycle, I produced three more good quality blastocysts (grade B). These were put in the freezer.
rainbowbaby8320
in
Fertility Network UK
1 year ago
UK Webinar 6.30pm BST Monday 26th September - COVID -19 update, where we are today and what is in place to help protect me this winter?
This webinar is hosted by
Leukaemia
Care to inform
leukaemia
patients and their families on COVID-19 recommendations and available strategies to aid navigating during the coming winter.
This webinar is hosted by
Leukaemia
Care to inform
leukaemia
patients and their families on COVID-19 recommendations and available strategies to aid navigating during the coming winter.
HAIRBEAR_UK
Founder Admin
in
CLL Support
2 years ago
Latest Consultation/Bloods
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Divisidero
in
CLL Support
1 year ago
White Paper recommends steps to improve the care and support of people with Chronic Lymphocytic Leukemia who face immune challenges
[/i] So, they produced a White Paper titled [i]
"Compromised: Uncovering the immune-related challenges facing people with chronic lymphocytic
" [/i]
which was released this week (15 May 2023).
[/i] So, they produced a White Paper titled [i]
"Compromised: Uncovering the immune-related challenges facing people with chronic lymphocytic
" [/i]
which was released this week (15 May 2023).
CLLerinOz
Volunteer
in
CLL Support
1 year ago
Withdrawal from Jakafi
I've been on Jakafi for about two months now, and I'm afraid that it doesn't seem to be working out for me. For the first six weeks, everything looked good: WBC and PLT in normal range and stable, RBC, HCT and HGB steadily declining but still only slightly less than normal. Because of the decline,
I've been on Jakafi for about two months now, and I'm afraid that it doesn't seem to be working out for me. For the first six weeks, everything looked good: WBC and PLT in normal range and stable, RBC, HCT and HGB steadily declining but still only slightly less than normal. Because of the decline,
sbs_patient
in
MPN Voice
2 years ago
can Et turn into Leukaemia
this may sound silly but can ET turn into
leukaemia
Or does it turn into MF first? Also can ET be managed well with medication to prevent it turning to
Leukaemia
?
this may sound silly but can ET turn into
leukaemia
Or does it turn into MF first? Also can ET be managed well with medication to prevent it turning to
Leukaemia
?
Green1988
in
MPN Voice
2 years ago
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
lankisterguy
Volunteer
in
CLL Support
1 year ago
1
...
18
19
20
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1802 results
MPN Voice
825 results
Leukaemia CARE
268 results
View top 10 communities
Sort by
Most Relevant
Newest