Leukaemia Care are running a series of days to help with coping with fatigue. The next one is in Cardiff on 15th September and then there is one in Sheffield and another in Edinburgh. There will be talks from a fatigue expert, Dr Anne Johnson and the agenda looks really interesting. At first I presumed these days would only be open to leukaemia patients but when I enquired I got a really friendly and welcoming reply. There were two people with MPNs at their last information day in Oxford and both of them said how informative they felt the day had been. I have taken the plunge and booked for the Sheffield one on October 13th.
The website is leukaemiacare.org.uk and then go into ‘support and information’ then ‘attend a patient information day’.
I will let you know how I get on and what I learn! I’m not expecting to become vibrant and full of energy (!) but there may be some helpful ideas.