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Lymph node biopsy to rule out Richtors
So I got the shock of my life. My hematologist wants to have me undergo a fine needle biopsy to rule out RS. They will biopsy the largest node. It’s 5 cm. Well that was a kick to the stomach.
So I got the shock of my life. My hematologist wants to have me undergo a fine needle biopsy to rule out RS. They will biopsy the largest node. It’s 5 cm. Well that was a kick to the stomach.
Lola69
in
CLL Support
5 years ago
CLL Society Alert (newsletter for USA patients)- Video Interviews with Dr. Furman, Dr. Koffman- Educational Forums & Support Groups - USA
To read the full details with live HTML links go here: https://cllsociety.org/2019/01/january-29-2019/ or here: https://cllsociety.org/Alerts/January-29-Alert.pdf - Dear Friends and Supporters of the CLL Society, I interviewed Dr. Rick Furman to set the stage for how to best consider some of the new
To read the full details with live HTML links go here: https://cllsociety.org/2019/01/january-29-2019/ or here: https://cllsociety.org/Alerts/January-29-Alert.pdf - Dear Friends and Supporters of the CLL Society, I interviewed Dr. Rick Furman to set the stage for how to best consider some of the new
lankisterguy
Volunteer
in
CLL Support
5 years ago
Treatment necessary?
I am 13q mutated. 80% involvement in narrow. Diagnosed in oct 2011, started CVP in June 2012 due to doubling time. Went from 30k to over 60k in less than 6 months. In Nov 2012, I started rituxan. Treatment once every 3 months. First 3 treatments went fine. Then they had to stop because of severe
I am 13q mutated. 80% involvement in narrow. Diagnosed in oct 2011, started CVP in June 2012 due to doubling time. Went from 30k to over 60k in less than 6 months. In Nov 2012, I started rituxan. Treatment once every 3 months. First 3 treatments went fine. Then they had to stop because of severe
MyCLLJourney
in
CLL Support
5 years ago
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Myelofibrosis and using medical CBD/ marijuana.
I was diagnosed with Myelofibrosis in 2015 I have both JAK viruses. Gulf War Veteran struggling with PTSD/Anxiety, insomnia and severe arthritis. Got really sick and was put on 20 mg of Jakafi 6 months ago now the medication is failing. Got off of Vicodin because of new medical laws, was recommended
I was diagnosed with Myelofibrosis in 2015 I have both JAK viruses. Gulf War Veteran struggling with PTSD/Anxiety, insomnia and severe arthritis. Got really sick and was put on 20 mg of Jakafi 6 months ago now the medication is failing. Got off of Vicodin because of new medical laws, was recommended
Boriqua
in
MPN Voice
5 years ago
Spleen enlarged
In February 2017 I was diagnosed with CLL and am on watch and wait. WBC is about 66 and other numbers are fine. During a check up in November 2018 I was told my spleen has enlarged and was given a CT scan on 21st December. They have not contacted me so presume it's stable enough until next check up in
In February 2017 I was diagnosed with CLL and am on watch and wait. WBC is about 66 and other numbers are fine. During a check up in November 2018 I was told my spleen has enlarged and was given a CT scan on 21st December. They have not contacted me so presume it's stable enough until next check up in
Tross88
in
CLL Support
5 years ago
AML patients in Australia today learn midostaurin (Rydapt®) will be available under new PBS listing. Press Release below.
To coordinate an interview with
Leukaemia
Foundation CEO Bill Petch please contact Monique Cerreto, National Media Manager P: 0478 300 507 E: Cerreto@leukaemia.org.au - ENDS - About The
Leukaemia
Foundation: The
Leukaemia
Foundation is the only national charity dedicated to helping more Australians survive
To coordinate an interview with
Leukaemia
Foundation CEO Bill Petch please contact Monique Cerreto, National Media Manager P: 0478 300 507 E: Cerreto@leukaemia.org.au - ENDS - About The
Leukaemia
Foundation: The
Leukaemia
Foundation is the only national charity dedicated to helping more Australians survive
Hidden
in
MPN Voice
5 years ago
Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
Prof Fegan talks from ASH 2018 | Telomere length can predict the outcome of FCR chemoimmunotherapy in CLL
We are in an era of fast evolving blood cancer treatment, novel non chemo therapies and new combinations offer the potential for individualised therapy choices based upon cryogenics and physiology. Individualised treatment plans for patients require reliable predictive prognostic tests to rule out
We are in an era of fast evolving blood cancer treatment, novel non chemo therapies and new combinations offer the potential for individualised therapy choices based upon cryogenics and physiology. Individualised treatment plans for patients require reliable predictive prognostic tests to rule out
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
Leukaemia Care CLL Support Groups
Leukaemia
care have announced the dates for their CLL Support groups for 2019 in Nottingham and Cambridge. Follow link for dates. https://www.cllsupport.org.uk/news/
leukaemia
-care-cll-support-groups
Leukaemia
care have announced the dates for their CLL Support groups for 2019 in Nottingham and Cambridge. Follow link for dates. https://www.cllsupport.org.uk/news/
leukaemia
-care-cll-support-groups
Myrddin
in
CLL Support
5 years ago
Raising funds across the Sahara.
Good morning Last year I posted a message to say that my youngest daughter would run six marathons in six days ,self supported across the Sahara desert to raise funds for MPN Voice ,who do such exemplary work for people like me who have been diagnosed with myelofibrosis and others with myeloproliferative
Good morning Last year I posted a message to say that my youngest daughter would run six marathons in six days ,self supported across the Sahara desert to raise funds for MPN Voice ,who do such exemplary work for people like me who have been diagnosed with myelofibrosis and others with myeloproliferative
kevinbros
in
MPN Voice
5 years ago
CLL, Bladder Cancer and BCG coming up for me
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of extreme hemolytic reaction. Chemo infusions again in 2015, worked for a couple of years. Started Ibrutinib in April 2018. Prostate resection in D3cemer 2018.
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of extreme hemolytic reaction. Chemo infusions again in 2015, worked for a couple of years. Started Ibrutinib in April 2018. Prostate resection in D3cemer 2018.
Jvanfire
in
CLL Support
5 years ago
CLL is no longer dormant
I live in Hamilton and being followed by a Hematologist at Mc Master. I have had my condition for 8 years and have never had a risk assessment. I had another blood test done and I am seeing my specialist Tuesday. This last year has not been so good . Should I request a Fish test, CT scan etc or what
I live in Hamilton and being followed by a Hematologist at Mc Master. I have had my condition for 8 years and have never had a risk assessment. I had another blood test done and I am seeing my specialist Tuesday. This last year has not been so good . Should I request a Fish test, CT scan etc or what
Mamouchi
in
CLL Support
5 years ago
Hospice / Pallative Care / Supportive Care for Blood Cancer patients is not suggested soon enough
Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2018 Publish date: December 20, 2018 By Randy Dotinga Hematology News - SAN DIEGO – When it comes to aggressive care at the end of life, hematologists stand alone. ASH paper by Dr. David Hui of MD Anderson Cancer Center
Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2018 Publish date: December 20, 2018 By Randy Dotinga Hematology News - SAN DIEGO – When it comes to aggressive care at the end of life, hematologists stand alone. ASH paper by Dr. David Hui of MD Anderson Cancer Center
lankisterguy
Volunteer
in
CLL Support
5 years ago
Deborah Sims discusses quality of life and CLL treatments
Filmed at ASH18, In this
Leukaemia
care video, Deborah, a CLL patient and patient advocate discusses the move by doctors towards talking about quality of life for patients when discussing treatment options. https://youtu.be/bH1xxyUhQY0
Filmed at ASH18, In this
Leukaemia
care video, Deborah, a CLL patient and patient advocate discusses the move by doctors towards talking about quality of life for patients when discussing treatment options. https://youtu.be/bH1xxyUhQY0
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
Dr Manos Nikolousis video series filmed at the American Society of Haematology 2018 - Progress and reasons to be optimistic for AML patients
next three years, that when combined with knowledge of an individuals cryogenics and morphology will enable a proper approach to personalised treatment. https://youtu.be/2qd0c4TDRYc In this last clip Dr Manos Nikolousis discusses new trials in relapsed or refractory AML https://youtu.be/O6y5kfMj4aI
Leukaemia
next three years, that when combined with knowledge of an individuals cryogenics and morphology will enable a proper approach to personalised treatment. https://youtu.be/2qd0c4TDRYc In this last clip Dr Manos Nikolousis discusses new trials in relapsed or refractory AML https://youtu.be/O6y5kfMj4aI
Leukaemia
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
ASH 2018: Professor Peter Hillmen on the Combination of Ibrutinib and Obinutuzumab in CLL: Timing Matters
- Professor Peter Hillmen .... has chaired the chronic lymphocytic
leukaemia
(CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since 2002. He has lead the UK, and perhaps the world, in developing fast moving, clinically relevant and responsive trial design.
- Professor Peter Hillmen .... has chaired the chronic lymphocytic
leukaemia
(CLL) trials sub-group of the National Cancer Research Institute (NCRI) in the UK since 2002. He has lead the UK, and perhaps the world, in developing fast moving, clinically relevant and responsive trial design.
lankisterguy
Volunteer
in
CLL Support
5 years ago
What a year - and some good news to end it
Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
leukaemia
cells but, again, when the doctor tells you something you tend to take their word for it).
Back in January I was diagnosed with ET, then MF (despite having no fibrosis but I didn’t realise this made no sense at the time) and then imminent AML (despite having no
leukaemia
cells but, again, when the doctor tells you something you tend to take their word for it).
Timjonze
in
MPN Voice
5 years ago
Starting Bendamustine tomorrow
Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as I start the chemo? I’ve read up on all of the possibilities but thought I should ask some real warriors! Thanks so much 🙏🏼
Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as I start the chemo? I’ve read up on all of the possibilities but thought I should ask some real warriors! Thanks so much 🙏🏼
Finschick
in
CLL Support
5 years ago
FCR, novel agents, advances in CLL treatment, what CLL patients can hope for in the future. Australian experts discuss advances at ASH2018
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
5 years ago
FCR, novel agents, advances in CLL treatment, what CLL patients can hope for in the future. Australian experts discuss advances at ASH2018
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
Leukaemia
Care have interviewed global experts at The American Society of Haematology conference (ASH) on video for you to share in this. https://youtu.be/vLleI7G-gfk https://youtu.be/lEz4GkRX3Q8 https://youtu.be/rcrhOkkFW5o
HAIRBEAR_UK
Administrator
in
CLL Support
5 years ago
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