Current best available information about MPNs: Fast Facts MPNs by Reuben A Mesa and Claire N Harrison

[Rachelthepotter]

Hi

This is a photo of the cover of the brilliant Fast Facts summary paperback for MPNs. Maz trailed it earlier, and I got a copy from Amazon a few weeks ago. It does what it says on the tin, and has chapters on the current WHO diagnostic criteria for MF, PV and ET ( so you and your haematologist can be sure that the diagnosis is acurate) and the current best available treatment options. And summaries and references for the peer reviewed evidence that forms the basis for decision making.

It also has a page at the end of useful resources, with links to UK, USA, Canadian and Australian MPN groups.

It’ll go out of date quickly ,which is great, because progresss is happening fast and new evidence is coming in all the time.

It’s worth getting hold of a copy, just to educate your non specialist MPN practitioners, if for no other reason.

The table of contents can be a bit cryptic if you aren't familiar with the language, so here is a translation of the chapter headingsfrom a patient’s perspective.

1. Pathogenesis and etiology

Trans What goes wrong that gives you an MPN

2.Epidemiology

Trans Who get MPNs, and how common are they?

3. Diagnosis and disease burden

Trans How do you tell which MPN you have ( World Health Organisation criteria) and how seriously are you affected ( levels of risk categories, and the various scoring systems)

4.Management of ET

5.Management of PV

6.Management of MF

Trans Current Best Available Treatment options for the various MPNs

7.New treatments for MPNs

Trans What’s coming along

8. Management of specific situations

Trans Women ( pregnancy, contraception) and children with MPNs are different from adult men.

9.Management of MPN blast phase

Trans Sometimes ( but rarely) it ends with leukaemia.

Anyhow, I’ll be bringng my copy along to the Oxford Forum for reference.

All the best

Rachel

[RedSunrise]

I bought this and I'm pleased I did. Indeed - might be good to share with other medical professionals.

[1466]

Thank you for your information on this book. It is greatly appreciated.

[ksos]

Thanks for posting this. I'd missed Maz's post, so glad I caught this. I'm in the Us and Amazon doesn't have it, although it is on the Amazon UK site. I'm assuming that's just an issue of timing and it will show up here at some point and I'll get it then. In the meantime, I'm wondering if it lists anything about symptoms like fatigue, shortness of breath, etc? That's would be so helpful with my doctor.

Thanks,

Kim

[Rachelthepotter]

Yes, it does: when you get the book see page 35, or google for constitutional sympyoms and mpns

[ksos in reply to Rachelthepotter]

Thank you, Rachel!

[Mazcd Partner MPNVoice]

Hi Rachel, can't take the credit for posting about the book, it was someone else, sorry can't remember who it was. Maz

[Suke]

Hi Rachel. Thanks for the info. How do I get the book please. Sue

[Chaz1]

Thanks, ordered off Amazon so waiting for delivery now. I have a shelf of various literature on MPNs as find it useful to have something to consult when have a query.

[Bridie123]

Hi Rachel, loved the translation. Could you do the complete book please, for dimwits like me. 😉

[Whatsisname]

Sadly the Amazon uk website today says this book is not currently available

[clubdino in reply to Whatsisname]

You can order the book here:

karger.com/Book/Home/278108

You can even download the digital version so that it is available for you to read immediately.

[Whatsisname]

Clubdino. Thank you for the tip.

[Helena303]

Oh yes a must have.