Cost of Jakafi

[1466]

I went to my doctor yesterday and since I’ve had hives and burning of the skin feeling hot he is going to try to switch me to Jakafi. The cost is unbelievable and the main assistance program out there said if you’re on Medicare you’re not eligible. Is anyone under Medicare taking that drug and getting assistance. It says the cost is $18,000 a month and our share is 2000 that’s way too much. Help? Hope several of you can give me some ideas on what to do, thanks

[ccsial]

I have started Jakafi in Jan. for MF I am 74, on medicare, and have a supplement drug plan. My plan pays 75%. My first copay was $2,800. After that my monthly copay is $680. As I understand it when it gets to around $6000 it will be free. I am not eligible for any copay assistance. There are several assistance programs out there if you income is under a certain limit. If you call Insight they will give you the phone numbers.

I was on Hydrea for 15 years for ET before transforming to MF in November. The Hydrea only costs $4 per month copay.

[1466 in reply to ccsial]

I can’t thank you enough for your response. I seem to have an allergic response to the Hydro hives and burning and redness of the skin and that’s why the doctor wanted to change it to Jakafi. I am almost 72. As far as side effects or success what is your knowledge on that drug Jakafi? I did check out the financials and you are correct and what you are explaining and I appreciate that I’m sure it will be helpful to others on this forum

[ccsial in reply to 1466]

There are quite a few side effects listed. So far I have none but I've only been on it for two months. I got along pretty well with Hydrea. God made us all different it seems.

[1466 in reply to ccsial]

Thanks, best wishes

[Chicagopv]

I'm 63, got on Jakafi a few years ago because PV was causing severe itching that hydrea wasn't taking care of. I take Emend off-label, too, for itching, when severe. My insurance is great and I have a $20 co-pay. Who knows how much it will be when I'm 65? My dose has gone down from 30 mg to 10. Wish I could give you my leftovers!

[1466 in reply to Chicagopv]

Thank you for your response. I did find some help and hopefully we will only pay $25 a month. I cannot believe a medicine cost $18,000 a month that’s very sad. Have a great day

[ccsial in reply to 1466]

Great news. Best wishes