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Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid
Leukaemia
(AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML.
[i]Bone marrow aspirate showing Acute Myeloid
Leukaemia
(AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML.
socrates_8
in
MPN Voice
5 years ago
Combining Pegasys and ruxolitinib (Jakafi) for MF: has anyone tried it?
Hi. I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the ruxolitinib I’m taking ( was inc to 20mg bd at end December to help the fatigue ( it didn’t) ( now back to 15mg bd) haunts me. I’ve already had one SCC excised from my face, as I’d posted, and a
Hi. I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the ruxolitinib I’m taking ( was inc to 20mg bd at end December to help the fatigue ( it didn’t) ( now back to 15mg bd) haunts me. I’ve already had one SCC excised from my face, as I’d posted, and a
Rachelthepotter
in
MPN Voice
5 years ago
Results cml myeloproliferative
Hi anyone give any advice Had results of jak2 test as unequivocal, doctor seemed this was good news , still further testing raised iron and platelets Another jak2 test scheduled in six months time . Just not sure how to interpret the findings Many thanks
Hi anyone give any advice Had results of jak2 test as unequivocal, doctor seemed this was good news , still further testing raised iron and platelets Another jak2 test scheduled in six months time . Just not sure how to interpret the findings Many thanks
JDHD1
in
Leukaemia Support
5 years ago
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Extreme fatigue
Hi I may have questioned this before at an earlier time but it is still a big concern. My partner has post ET myelofibrosis. (ET for 5 years, diagnosed with myelofibrosis in April this year) He was taking hydroxycarbamide (not sure if I have spelt this right) for his ET and was started on Rux for
Hi I may have questioned this before at an earlier time but it is still a big concern. My partner has post ET myelofibrosis. (ET for 5 years, diagnosed with myelofibrosis in April this year) He was taking hydroxycarbamide (not sure if I have spelt this right) for his ET and was started on Rux for
Goldfish212
in
MPN Voice
5 years ago
CLL with with WBC over 100,000
This is my first post. I was diagnosed with small B-cell CLL in 2009, at the Cleveland Clinic. The doctor thought he was reassuring me by saying, "I have seen patients live ten years with CLL." I have no symptoms at all but in the last 12 months, my WBC has gone from 12,000 to 101,900, with a jump
This is my first post. I was diagnosed with small B-cell CLL in 2009, at the Cleveland Clinic. The doctor thought he was reassuring me by saying, "I have seen patients live ten years with CLL." I have no symptoms at all but in the last 12 months, my WBC has gone from 12,000 to 101,900, with a jump
Saber21
in
CLL Support
5 years ago
Nulasta and a large Spleen
My husband came home from the Hospital last night. He had two treatments of Gayzena (sp) Now he is has another due on Friday. They are ant him to come in today and he Nulasta . I’m worried about the whole thing he is exhausted, large spleen, low blood pressure and low Neuriphills. I read that a side
My husband came home from the Hospital last night. He had two treatments of Gayzena (sp) Now he is has another due on Friday. They are ant him to come in today and he Nulasta . I’m worried about the whole thing he is exhausted, large spleen, low blood pressure and low Neuriphills. I read that a side
AuntHelen
in
CLL Support
5 years ago
Infrared sauna
Hi Everyone , I am going to a spa next month and wanted feedback on whether an infrared sauna or certain massages or wraps (seaweed ,mud, ) were off limits to those of us with CLL. Thanks
Hi Everyone , I am going to a spa next month and wanted feedback on whether an infrared sauna or certain massages or wraps (seaweed ,mud, ) were off limits to those of us with CLL. Thanks
nitram120
in
CLL Support
5 years ago
Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!
Care CLL buddy scheme & help line for UK people living with a diagnosis of CLL. https://healthunlocked.com/cllsupport/posts/private/133764612/cllsa-
leukaemia
-care-cll-buddy-scheme-help-line-for-uk-people-living-with-a-diagnosis-of-cll.
Care CLL buddy scheme & help line for UK people living with a diagnosis of CLL. https://healthunlocked.com/cllsupport/posts/private/133764612/cllsa-
leukaemia
-care-cll-buddy-scheme-help-line-for-uk-people-living-with-a-diagnosis-of-cll.
AussieNeil
Partner
in
CLL Support
5 years ago
Worried about low platelets - do I have Chronic Lymphocytic Leukemia? (CLL/SLL) When will I need treatment?
Firstly, having low platelets doesn't mean you have
leukaemia
! There are lots of reasons for a low platelet count besides having blood cancer, including prescribed drugs and even some foods and supplements!
Firstly, having low platelets doesn't mean you have
leukaemia
! There are lots of reasons for a low platelet count besides having blood cancer, including prescribed drugs and even some foods and supplements!
AussieNeil
Partner
in
CLL Support
5 years ago
Myelofibrosis
Just wondering if anyone has a diagnosis of advanced or progressive post ET myelofibrosis. My partner was diagnosed a few months ago (ET diagnosed in 2016) with myelofibrosis. Since then he has been hospitalised with pneumonia and required potassium and a four units of blood. He was then discharged
Just wondering if anyone has a diagnosis of advanced or progressive post ET myelofibrosis. My partner was diagnosed a few months ago (ET diagnosed in 2016) with myelofibrosis. Since then he has been hospitalised with pneumonia and required potassium and a four units of blood. He was then discharged
Goldfish212
in
MPN Voice
5 years ago
Have you been diagnosed with acute leukaemia? Share your experience in a global quality of life survey and help drive improvements in Care.
ALAN - The Acute
Leukaemia
Advocates Network is an international group of patient advocates and charities supporting patients in their own countries who live with an acute
leukaemia
diagnosis.
ALAN - The Acute
Leukaemia
Advocates Network is an international group of patient advocates and charities supporting patients in their own countries who live with an acute
leukaemia
diagnosis.
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Ibrutinib Plus Venetoclax in Relapsed/Refractory Chronic Lymphocytic Leukemia: Update on The CLARITY Study
Published on line July 11, 2019, Accepted by JCO May 31 2019 Dr P Hillmen We have some members who are in this important CLARITY Study in UK. CLARITY is a phase II trial that combined ibrutinib with venetoclax in patients with relapsed or refractory CLL. The primary end point was eradication of MRD after
Published on line July 11, 2019, Accepted by JCO May 31 2019 Dr P Hillmen We have some members who are in this important CLARITY Study in UK. CLARITY is a phase II trial that combined ibrutinib with venetoclax in patients with relapsed or refractory CLL. The primary end point was eradication of MRD after
Jm954
Administrator
in
CLL Support
5 years ago
Experience with Fludarabine & Rituximab?
Hi, My mom (now 62 yrs old) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told her that she needs to begin treatment. He recommended her to begin with combination of Rituximab + Fludarabine (in-patient treatment, via injections). I just wanted to know if anyone else has received this
Hi, My mom (now 62 yrs old) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told her that she needs to begin treatment. He recommended her to begin with combination of Rituximab + Fludarabine (in-patient treatment, via injections). I just wanted to know if anyone else has received this
Dolce1
in
CLL Support
5 years ago
What is CAR-T therapy? An expert explains in simple terms
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Not specific to CLL but informative. CAR-T therapy is a completely new type of therapy that uses the immune system to kill cancer cells. In some cases it has cured people where all other treatments have failed. Professor Karl Peggs, Scientific Director of the National Institute for Health Research (NIHR
Jm954
Administrator
in
CLL Support
5 years ago
Tiredness
Hi have had Myelofibrosis for 10 years I don’t know anyone else who has this feel so tired my legs ache feel as if I have the flu all the time 😩thanks Diana
Hi have had Myelofibrosis for 10 years I don’t know anyone else who has this feel so tired my legs ache feel as if I have the flu all the time 😩thanks Diana
D1i2a3
in
MPN Voice
5 years ago
The Force is Strong in This One
Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Time flies when you're enjoying yourself eh. As you will no doubt have guessed by now I'm a Star Wars fan , I even put my religion down as Jedi on one or 2 of the
Hi Forum Friends , , I had notification of a new follower on here today and I realised how much time has elapsed since I posted an update. Time flies when you're enjoying yourself eh. As you will no doubt have guessed by now I'm a Star Wars fan , I even put my religion down as Jedi on one or 2 of the
JediReject
in
MPN Voice
5 years ago
New to it all
62 yo male here; was diagnosed with CLL in November of 2018. After three sets of bloodwork, a CT and a boner marrow biopsy Im told I continue on watch and wait. My only symptom is extreme fatigue which precludes me from working 8 hours a day. I should note that I’m also a long time bariatric patient.
62 yo male here; was diagnosed with CLL in November of 2018. After three sets of bloodwork, a CT and a boner marrow biopsy Im told I continue on watch and wait. My only symptom is extreme fatigue which precludes me from working 8 hours a day. I should note that I’m also a long time bariatric patient.
Pokerguy
in
CLL Support
5 years ago
CLL and Medical Marijuana
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Madprofessor22
in
CLL Support
5 years ago
What questions should I ask the consultant?
I have an appointment this afternoon. The Drs suspect that I have Essential Thrombocythemia but I have not had a diagnosis. I have had a bone marrow biopsy but have not yet had the results, I should be getting them later today. Any advice on questions that I should ask? Thank you in advance
I have an appointment this afternoon. The Drs suspect that I have Essential Thrombocythemia but I have not had a diagnosis. I have had a bone marrow biopsy but have not yet had the results, I should be getting them later today. Any advice on questions that I should ask? Thank you in advance
Notenoughbluefood
in
MPN Voice
5 years ago
Efficacy of venetoclax monotherapy in patients with relapsed CLL in the post‐BCR inhibitor setting: a UK wide analysis
Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/R) chronic lymphocytic
leukaemia
(CLL). We conducted a multi‐centre retrospective analysis of 105 R/R CLL patients who received venetoclax pre‐National Health Service commissioning.
Feb 2019 Venetoclax is a BCL2 inhibitor with activity in relapsed/refractory (R/R) chronic lymphocytic
leukaemia
(CLL). We conducted a multi‐centre retrospective analysis of 105 R/R CLL patients who received venetoclax pre‐National Health Service commissioning.
Jm954
Administrator
in
CLL Support
5 years ago
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