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Short or long sleep associated with Pulmonary Fibrosis.
,the same number as
leukaemia
.
,the same number as
leukaemia
.
2greys
in
Lung Conditions Community Forum
5 years ago
Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?
Should I be worried? Are the side effects bad?
Should I be worried? Are the side effects bad?
Cbreeze0182
in
MPN Voice
5 years ago
the YUK Factor & Controversy Over Gene Editing for Cancer & Other Cures???
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
socrates_8
in
MPN Voice
5 years ago
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Losing weight with Viagra.
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
Johnem
in
Lung Conditions Community Forum
5 years ago
Trabectedin Targets Leukemic Cells and Restores Immune Cell Function in Models of Chronic Lymphocytic Leukemia
The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in Cancer Immunology Research.1 The researchers think their findings could lead to a new therapy that targets both leukemic cells and the protumor
The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in Cancer Immunology Research.1 The researchers think their findings could lead to a new therapy that targets both leukemic cells and the protumor
wmay13241
in
CLL Support
4 years ago
Negative for CLL and lymphoma panel
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Jenny2020
in
CLL Support
4 years ago
Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia
Leukaemia
Care is a UK charity so the support information is UK based.
Leukaemia
Care is a UK charity so the support information is UK based.
Jm954
Administrator
in
CLL Support
5 years ago
MF and mutations
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
billybrock
in
MPN Voice
5 years ago
A nervous wreck.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
Adnor
in
CLL Support
4 years ago
Christmas message 2019 from the team at MPN Voice
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Mazcd
MPNVoice
in
MPN Voice
5 years ago
2018 study explains why Green Tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) work against CLL
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
HowardR
in
CLL Support
4 years ago
Bone Pain
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
kiwitraveller
in
MPN Voice
5 years ago
Jak 2positive MPN treatment Ruxolitinib
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
waddles22
in
MPN Voice
5 years ago
Scared !!!
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Madison1995
in
CLL Support
5 years ago
low dose naltrexone
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hidden
in
CLL Support
5 years ago
Drug trial
Hi every body. I wondered if anybody with PV has been asked if they would like to take part in a drug trial. I've had PV for 4 years and was on Hydroxy for3 years. I've just had to stop taking it because I was having regular cellulitis on my legs and was virtually living on antibiotics. My haemo took
Hi every body. I wondered if anybody with PV has been asked if they would like to take part in a drug trial. I've had PV for 4 years and was on Hydroxy for3 years. I've just had to stop taking it because I was having regular cellulitis on my legs and was virtually living on antibiotics. My haemo took
Splb3317
in
MPN Voice
5 years ago
Chronic lymphocytic leukaemia by Dr Philip Thompson, MDAnderson
Video of Dr Philip Thompson talk
Leukaemia
Foundation on CLL
Video of Dr Philip Thompson talk
Leukaemia
Foundation on CLL
LawrenceofArabia
in
CLL Support
5 years ago
Learn more about your diagnosis, living with and beyond read our information booklets.
Download or order here > http://bit.ly/LCBooklets Access to all
Leukaemia
Care information booklets for FREE order or download https://www.leukaemiacare.org.uk/support-and-information/help-and-resources/information-booklets/
Download or order here > http://bit.ly/LCBooklets Access to all
Leukaemia
Care information booklets for FREE order or download https://www.leukaemiacare.org.uk/support-and-information/help-and-resources/information-booklets/
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
YABTKi or Yet Another BTK inhibitor - the A to Z list of Bruton's Tyrosine Kinase Inhibitors for CLL following Ibrutinib's success
-richard-furman Screening and monitoring of the BTK C481S mutation in a real-world cohort of patients with relapsed/refractory chronic lymphocytic
leukaemia
https://healthunlocked.com/cllsupport/posts/146274252/screening-and-monitoring-of-the-btk-c481s-mutation-in-a-real-world-cohort-of-patients-with-relapsed-refractory-chronic-lymphocytic-
leukaemia
-richard-furman Screening and monitoring of the BTK C481S mutation in a real-world cohort of patients with relapsed/refractory chronic lymphocytic
leukaemia
https://healthunlocked.com/cllsupport/posts/146274252/screening-and-monitoring-of-the-btk-c481s-mutation-in-a-real-world-cohort-of-patients-with-relapsed-refractory-chronic-lymphocytic-
leukaemia
AussieNeil
Partner
in
CLL Support
5 years ago
So much new CLL material to read
Welcome to the Fourth 2019 Issue of The CLL Society Tribune! So much to read there including amazing patient stories and my wife's Cajun Gingerbread recipe: https://cllsociety.org/quarter-4-2019-volume-5-issue-4/ More of my top 10 articles from ASCO: #8 Surviving CLL is only part of the story if we are
Welcome to the Fourth 2019 Issue of The CLL Society Tribune! So much to read there including amazing patient stories and my wife's Cajun Gingerbread recipe: https://cllsociety.org/quarter-4-2019-volume-5-issue-4/ More of my top 10 articles from ASCO: #8 Surviving CLL is only part of the story if we are
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
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