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Opportunity to support the listing of Acalabrutinib and Venetoclax for the treatment of Australians with CLL
Submissions can be done directly to the PBAC via this form for Australians: https://www1.health.gov.au/internet/main/publishing.nsf/Content/PBAC_online_submission_form or via Australia's
Leukaemia
Foundation here: https://leukaemiafoundation.typeform.com/to/xamhie The
Leukaemia
Foundation submission
Submissions can be done directly to the PBAC via this form for Australians: https://www1.health.gov.au/internet/main/publishing.nsf/Content/PBAC_online_submission_form or via Australia's
Leukaemia
Foundation here: https://leukaemiafoundation.typeform.com/to/xamhie The
Leukaemia
Foundation submission
AussieNeil
Partner
in
CLL Support
4 years ago
Normal CBC abnormal flow test
I had two months of abnormal CB results, and the flow study also abnormal. I was diagnosed with possible CLL. I then had a CBC done yesterday after three months and everything in the CBC is normal. Do I now not have a Blood cancer? Is it a miracle or does this happen sometimes? I have had no treatment
I had two months of abnormal CB results, and the flow study also abnormal. I was diagnosed with possible CLL. I then had a CBC done yesterday after three months and everything in the CBC is normal. Do I now not have a Blood cancer? Is it a miracle or does this happen sometimes? I have had no treatment
gustave
in
CLL Support
4 years ago
Fatigue with CLL
Hello I was diagnosed cll on January 2019 cll stage 0, my wbc was 30, on June 2020 is 49 no symptoms except my gamma globulin is slightly lower than normal. I am still on w/w, but i feel all time tired and I cannot work on morning, I start only at 14h. Also I am anxious, I think all time about my cll
Hello I was diagnosed cll on January 2019 cll stage 0, my wbc was 30, on June 2020 is 49 no symptoms except my gamma globulin is slightly lower than normal. I am still on w/w, but i feel all time tired and I cannot work on morning, I start only at 14h. Also I am anxious, I think all time about my cll
Hicham
in
CLL Support
4 years ago
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biopsy
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
I'm new to this site. Having a needle biopsy of right upper lung lobe in a few days. Is it painful and what is the recovery like?
dunnellon
in
Lung Conditions Community Forum
4 years ago
67 year old wimp!
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hi, I am new here and I am having a lobectomy of my top right lung on Monday, having it done at London Bridge Hospital as covid is causing problems at the other hospitals. The cancer was luckily found in a CT that was looking for something else. After a PET scan and needle biopsy it was found to be
Hidden
in
Lung Conditions Community Forum
4 years ago
In what situations would Chlorambucil still be used?
I've just heard of a patient is the U S a a major hospital, with good insurance being started on chlorambucil to treat CLL. I know he has kidney issues from the CLL. I'm just wondering why they wouldn't use one of the newer drugs? john
I've just heard of a patient is the U S a a major hospital, with good insurance being started on chlorambucil to treat CLL. I know he has kidney issues from the CLL. I'm just wondering why they wouldn't use one of the newer drugs? john
johnl
in
CLL Support
4 years ago
Ropeginterferon Alfa-2b Helps Maintain Hematocrit Control for Low-Risk Polycythemia Vera
« More patients with low-risk polycythemia vera treated with ropeginterferon alfa-2b were able to maintain hematocrit levels at or below 45% compared with those who received monthly phlebotomy alone. » https://www.onclive.com/view/added-cytoreductive-therapy-helps-maintain-hematocrit-control-for-low-risk-pv-patients
« More patients with low-risk polycythemia vera treated with ropeginterferon alfa-2b were able to maintain hematocrit levels at or below 45% compared with those who received monthly phlebotomy alone. » https://www.onclive.com/view/added-cytoreductive-therapy-helps-maintain-hematocrit-control-for-low-risk-pv-patients
Manouche
in
MPN Voice
4 years ago
Leukaemia Matters Magazine May 2020 Edition
Our 2nd online interim edition of
Leukaemia
Matters, is now available! Inside, you’ll find an article on coronavirus and food safety, along with the latest financial advice from our Advocacy team. Also Green Fingers and how the LC team are keeping busy at home.
Our 2nd online interim edition of
Leukaemia
Matters, is now available! Inside, you’ll find an article on coronavirus and food safety, along with the latest financial advice from our Advocacy team. Also Green Fingers and how the LC team are keeping busy at home.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Videos now available - Webinar talks and Q&A sessions - leukaemia and COVID - 19
These webinars on acute
leukaemia
and chronic lymphocytic
leukaemia
(CLL) can now be found on our YouTube > In the videos leading consultants are joined by patients as they discuss and answer questions about how COVID-19 is affecting
leukaemia
patients.
These webinars on acute
leukaemia
and chronic lymphocytic
leukaemia
(CLL) can now be found on our YouTube > In the videos leading consultants are joined by patients as they discuss and answer questions about how COVID-19 is affecting
leukaemia
patients.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
FDA Accepts Application for Ropeginterferon Alfa-2b for Polycythemia Vera
The FDA has accepted a Biologics License Application (BLA) for ropeginterferon alfa-2b (P1101) for use as a treatment for patients with polycythemia vera (PV) in the absence of symptomatic splenomegaly, according to PharmaEssentia Corporation, the manufacturer of the novel pegylated interferon. https
The FDA has accepted a Biologics License Application (BLA) for ropeginterferon alfa-2b (P1101) for use as a treatment for patients with polycythemia vera (PV) in the absence of symptomatic splenomegaly, according to PharmaEssentia Corporation, the manufacturer of the novel pegylated interferon. https
Manouche
in
MPN Voice
4 years ago
Richter's transformation???
I posted a related question a few days ago but I am increasingly concerned about a Richter's transformation so altering it a bit to see if anyone can shed more light... Cll diagnosed 2012 Bendamustine/Gazyva 2015 IGg steadily declining, now at 74 September 2019: atypical lymphoid proliferation resulting
I posted a related question a few days ago but I am increasingly concerned about a Richter's transformation so altering it a bit to see if anyone can shed more light... Cll diagnosed 2012 Bendamustine/Gazyva 2015 IGg steadily declining, now at 74 September 2019: atypical lymphoid proliferation resulting
CoCoLuna11
in
CLL Support
4 years ago
Video - COVID-19 and CLL – update for patients
Leukaemia
Care hosted this webinar in collaboration with CLL Support. Panellists: Dr Piers Patten, of Kings College London and Marc Auckland, Chair of Trustees at CLL Support and CLL patient. Chair - Charlotte Martin
Leukaemia
Care Advocacy Manager.
Leukaemia
Care hosted this webinar in collaboration with CLL Support. Panellists: Dr Piers Patten, of Kings College London and Marc Auckland, Chair of Trustees at CLL Support and CLL patient. Chair - Charlotte Martin
Leukaemia
Care Advocacy Manager.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
A 2nd Webinar for MPN patients relating to government guidance on COVID-19. Friday 22nd May 2020 – 3 pm
We would like to thank
Leukaemia
Care for their support, help and assistance with this webinar.
We would like to thank
Leukaemia
Care for their support, help and assistance with this webinar.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
New to Chronic leukemia
Hi all. I'm new to all this and hoping to connect with ppl that understand what I'm going thru. I lost my right leg to bone lesion, failed bone transplants and osteomyelitis. Doc have always bee looking for in your face cancer cause. Everything with me has been borderline. It's been confusing for all
Hi all. I'm new to all this and hoping to connect with ppl that understand what I'm going thru. I lost my right leg to bone lesion, failed bone transplants and osteomyelitis. Doc have always bee looking for in your face cancer cause. Everything with me has been borderline. It's been confusing for all
Wowo23
in
CLL Support
4 years ago
Atypical lymphoid proliferation - colon, and neck?
Hi, I haven't posted here yet. I was diagnosed with CLL at age 43 in 2012 (13Q, Unmutated) and was treated in 2015 with Bendamustine/Gazyva. I had a routine colonoscopy Fall 2019 and had a 3.7 cm lymphoid infiltrate in colon. I had a terminal ileum and right colon resection and after a long wait on
Hi, I haven't posted here yet. I was diagnosed with CLL at age 43 in 2012 (13Q, Unmutated) and was treated in 2015 with Bendamustine/Gazyva. I had a routine colonoscopy Fall 2019 and had a 3.7 cm lymphoid infiltrate in colon. I had a terminal ileum and right colon resection and after a long wait on
CoCoLuna11
in
CLL Support
4 years ago
The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View
Post by MPN-MATE Admin » Sat May 30, 2020 10:24 am Last Post for today before I go for a very fresh cycle ... :D This Post is about an article that has endeavoured to look at MPNs through the /Lens' of the MPN patient. Best wishes Steve
[i]The Myeloproliferative Neoplasm Landscape: A Patient’s
Post by MPN-MATE Admin » Sat May 30, 2020 10:24 am Last Post for today before I go for a very fresh cycle ... :D This Post is about an article that has endeavoured to look at MPNs through the /Lens' of the MPN patient. Best wishes Steve
[i]The Myeloproliferative Neoplasm Landscape: A Patient’s
socrates_8
in
MPN Voice
4 years ago
Webinar - Coronavirus and acute leukaemia
Leukaemia
Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust.
Leukaemia
Care will be joined by Dr Amit Patel, consultant in cellular therapies and stem cell transplantation, haematology and transplant unit from the Christie NHS foundation trust.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Ruxolitinib and Covid-19 - Trial
The Times has an article today regarding a trial in London. I remember there was a post here - ? April - saying it was one of the many drugs being looked at, but I certainly hadn't seen anything else since. I imagine those of us who are on it will wonder whether that might already be a benefit to us
The Times has an article today regarding a trial in London. I remember there was a post here - ? April - saying it was one of the many drugs being looked at, but I certainly hadn't seen anything else since. I imagine those of us who are on it will wonder whether that might already be a benefit to us
Hidden
in
MPN Voice
4 years ago
How To Know When You are Getting Old.
I was given a tea towel as a gift which featured the following............ I hope you enjoy reading it as much as I did. Actually many things are very true and I wasn't offended and found it hilarious! Everything hurts! What doesn't hurt doesn't work, The gleam in your eye is the sun shining on your
I was given a tea towel as a gift which featured the following............ I hope you enjoy reading it as much as I did. Actually many things are very true and I wasn't offended and found it hilarious! Everything hurts! What doesn't hurt doesn't work, The gleam in your eye is the sun shining on your
RoadRunner44
in
Lung Conditions Community Forum
4 years ago
My Life... What A Mess
Before the lockdown I lost my father to
leukaemia
and I still haven’t felt as devastated as I want to he was an older man I suppose 74 at the time but I’m only 22 and he was my whole world my best friend and in all honesty his memory has faded into the background in my mind I don’t think about him every
Before the lockdown I lost my father to
leukaemia
and I still haven’t felt as devastated as I want to he was an older man I suppose 74 at the time but I’m only 22 and he was my whole world my best friend and in all honesty his memory has faded into the background in my mind I don’t think about him every
Meyer_Gdmnx
in
Anxiety and Depression Support
4 years ago
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