A 2nd Webinar for MPN patients relating to gover... - MPN Voice

MPN Voice

10,708 members14,824 posts

A 2nd Webinar for MPN patients relating to government guidance on COVID-19. Friday 22nd May 2020 – 3 pm

Mazcd profile image
MazcdPartnerMPNVoice
11 Replies

MPN Voice is once again, working with Leukaemia Care to share the government guidance on COVID-19 and how this relates to MPN patients. We will be joined by consultant haematologists Professor Claire Harrison and Professor Adam Mead, Dr Donal McLornan (a specialist in stem cell transplants) and clinical nurse specialist Claire Woodley.

This is our 2nd webinar and will have different information to the webinar held on 29th April

You will also have an opportunity to raise your questions to the panellists.

When: Friday 22nd May 2020

Time: 3:00 PM (BST London)

Topic: MPN and Coronavirus (COVID-19)

Register for the webinar: (click on this link) us02web.zoom.us/webinar/reg...

After registering, you will receive a confirmation email containing information about joining the webinar on the day.

This webinar is available to everyone, regardless of location, just be aware of the time difference in your country.

Not sure what a webinar is and how to join? Click on the link for information about webinars

mpnvoice.org.uk/documents/C...

The webinar can also be viewed, live, on the MPN Voice Facebook page en-gb.facebook.com/MPNVoice/

and also on the Leukaemia Care Facebook page

facebook.com/LeukaemiaCare/

it will also record automatically and will remain on both pages so it can be viewed at any time. A video of the webinar will also be available on the MPN Voice website to be viewed at any time.

We would like to thank Leukaemia Care for their support, help and assistance with this webinar.

Written by
Mazcd profile image
Mazcd
Partner
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Dovme profile image
Dovme

Great have registered

Phelpsy profile image
Phelpsy

Thanks Maz

Hope you & your family are well .

I’ve Registered. Thanks x

Mazcd profile image
MazcdPartnerMPNVoice in reply to Phelpsy

Yes thank you Pam all good here, hope all ok with you and your family. Maz x

MPort profile image
MPort

Thanks Mazcd. I appreciate these very much. I have registered. Mairead

BeckyDing profile image
BeckyDing

Thank you - I have registered

PeterET profile image
PeterET

Excellent! Thanks Maz.

Dovme profile image
Dovme

Thanks again very interesting especially re research and treatments

Look forward to more webinars maybe on some other areas related to MPNs

LINA11 profile image
LINA11

Hi

I was unable to dial on today due to work commitments. Did they happen to say when the recording would be released?

Many thanks

Vtr1000 profile image
Vtr1000 in reply to LINA11

Hi Lina11, I was able to view it on the MPN Facebook last night.

socrates_8 profile image
socrates_8

Hey Maz... :-)

Please thank everyone for having made this very useful update on CVC-19 and especially so for people w/ MPNs etc...

It is wonderful thing for so many whose minds might, or rather should be slightly placed at ease, after viewing this footage.

Incredibly kind of all the participants to provide their time and expertise, it's a real pity that we do not have such dedication available to the MPN community here 'Down Under' in Oz...

Especially interested in learning more about the Oxford vaccine Dr Adam Mead spoke of, sounds quite promising...

Best wishes all...

Thanks again... 8-)

Steve

Mazcd profile image
MazcdPartnerMPNVoice

Hi all, for those of you who missed the webinar you can watch it either on our a Facebook page or on our website

mpnvoice.org.uk/coronavirus...

Best wishes, Maz

Not what you're looking for?

You may also like...

ET symptoms

Hi, hoping someone on this forum may be able to assist in obtaining peer reviewed information that...

A month into Pegasys, Australia …

An Update 😃 Now a couple of weeks later and all is well. I saw my haematologist and we were both...

Tilt Table Test

Well, on Thursday I had a Tilt Table test and it was positive. My blood pressure rose to 185/110...

Pegasys - possibly closer to slowing progression than anything else?

Hopefully this is not an irresponsible header since may raise false hopes, especially for those who...

Diet Advice for ET please

I was diagnosed three years ago with ET and started on hydroxycarbamide. The doctor told me very...