Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,259 public posts
Filter results
Webinar - CLL treatment a changing landscape
When: Jun 29, 2020 11:00AM We invite you to Join us for an upcoming webinar on chronic lymphocytic
leukaemia
(CLL) treatment.
When: Jun 29, 2020 11:00AM We invite you to Join us for an upcoming webinar on chronic lymphocytic
leukaemia
(CLL) treatment.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Anyone know of links between MPN’s and working on military radars?
Hi, I got diagnosed in April this year with ET with Jak2 mutation. Up until the discovery I was fit and healthy. I understood that MPN’s were rare and weren’t related to lifestyle choices. But I had a sudden moment of “what if” whilst at work today. I’ve served over 14 years in the RAF as a comms
Hi, I got diagnosed in April this year with ET with Jak2 mutation. Up until the discovery I was fit and healthy. I understood that MPN’s were rare and weren’t related to lifestyle choices. But I had a sudden moment of “what if” whilst at work today. I’ve served over 14 years in the RAF as a comms
MadamCholet1
in
MPN Voice
4 years ago
On the possible use of mushrooms and natural supplements, and their potential benefits, with citations
The following post provides information and NON-MEDICAL advice I've come across that I'll be presenting to my oncologist tomorrow. I thought it might be of value for others among us to consider, to further research (I provide citations), to comment on, and/or to speak to their doctor(s) and oncologist
The following post provides information and NON-MEDICAL advice I've come across that I'll be presenting to my oncologist tomorrow. I thought it might be of value for others among us to consider, to further research (I provide citations), to comment on, and/or to speak to their doctor(s) and oncologist
Pogee
in
CLL Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
SF3B1 Mutations
We've had a couple of members mention that they are positive for SF3B1 Mutations so I thought it would be worth a short simplified post about it. SF3B1 are predominantly sub clonal genetic events in CLL and are not unique to CLL as they are also found in other haematological disease such as myelodysplastic
We've had a couple of members mention that they are positive for SF3B1 Mutations so I thought it would be worth a short simplified post about it. SF3B1 are predominantly sub clonal genetic events in CLL and are not unique to CLL as they are also found in other haematological disease such as myelodysplastic
Jm954
Administrator
in
CLL Support
4 years ago
FCR oral versus iv
Hi I have read that cyclophosphamide and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
Hi I have read that cyclophosphamide and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
CarpeDiem03
in
CLL Support
4 years ago
Worried About Your CLL? A CLL EXPERT PHYSICIAN CAN GIVE YOU A 2nd OPINION ONLINE AT NO COST TO YOU! (Applies to USA Residents only)
https://cllsociety.org/cll-society-expert-access/ CLL Society Expert Access™ Program ( Unfortunately this is available to USA Residents only - Sorry) - We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Access to a CLL expert provides proven
https://cllsociety.org/cll-society-expert-access/ CLL Society Expert Access™ Program ( Unfortunately this is available to USA Residents only - Sorry) - We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Access to a CLL expert provides proven
lankisterguy
Volunteer
in
CLL Support
4 years ago
Published today: COVID-19 UK CLL patient experience survey 3 interim report
We are pleased to share latest results and info graphics of answers to survey 3 in this series of surveys by the collaboration of CLL patients with the UK CLL Forum, CLL Support and
Leukaemia
Care .. This report also compares noticeable change since survey 2.
We are pleased to share latest results and info graphics of answers to survey 3 in this series of surveys by the collaboration of CLL patients with the UK CLL Forum, CLL Support and
Leukaemia
Care .. This report also compares noticeable change since survey 2.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Haematocrit
Hi all I haven't posted for a while but am interested how many have a high red blood count (HCT) when diagnosed with ET or MF Thanks in advance Graham
Hi all I haven't posted for a while but am interested how many have a high red blood count (HCT) when diagnosed with ET or MF Thanks in advance Graham
Graham7694
in
MPN Voice
4 years ago
Painful hands
I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have been many) seem to have unpleasant side effects. My Rhemy now wants me to try Rituximab which I am scared to try but will probably end up having
I have had Lupus SLE for 16 years. My main problems are skin related. At the moment I am not on any medication as all of the ones I have tried ( and there have been many) seem to have unpleasant side effects. My Rhemy now wants me to try Rituximab which I am scared to try but will probably end up having
littlemissp
in
LUPUS UK
4 years ago
Immunophenotyping
Hi, just got my result from immunophenotying said it show classic 5 of 5 for CLL do not know what that means diagnosed with SLL in December 2016. have had doubling of lymphocytes and WBC since March this year and also some night sweat very easily fatigued, should be starting Acalabrutinib shortly seeing
Hi, just got my result from immunophenotying said it show classic 5 of 5 for CLL do not know what that means diagnosed with SLL in December 2016. have had doubling of lymphocytes and WBC since March this year and also some night sweat very easily fatigued, should be starting Acalabrutinib shortly seeing
jaybrjod
in
CLL Support
4 years ago
UK webinar - CLL treatment a changing landscape
Posted on behalf of HAIRBEAR_UK When: Jun 29, 2020 11:00 AM London We invite you to Join us for an upcoming webinar on chronic lymphocytic
leukaemia
(CLL) treatment.
Posted on behalf of HAIRBEAR_UK When: Jun 29, 2020 11:00 AM London We invite you to Join us for an upcoming webinar on chronic lymphocytic
leukaemia
(CLL) treatment.
Jm954
Administrator
in
CLL Support
4 years ago
We are mutating SARS-CoV-2, but it is evolving back.
Scientists investigating the evolution of the virus that causes Covid19 say that its mutation seems to be directed by human proteins that degrade it, but natural selection of the virus enables it to bounce back. The findings could help in the design of vaccines against the virus. All organisms mutate
Scientists investigating the evolution of the virus that causes Covid19 say that its mutation seems to be directed by human proteins that degrade it, but natural selection of the virus enables it to bounce back. The findings could help in the design of vaccines against the virus. All organisms mutate
2greys
in
Lung Conditions Community Forum
4 years ago
Atypical cases of necrotizing sweet syndrome in patients with myelodysplastic syndrome and acute myeloid leukaemia
In approx. 15-20% of SWEET'S SYNDROME patients, their condition can be triggered by CANCER, one of the commonest being myelodyplastic syndromes which can progress to acute myeloid
leukaemia
.
In approx. 15-20% of SWEET'S SYNDROME patients, their condition can be triggered by CANCER, one of the commonest being myelodyplastic syndromes which can progress to acute myeloid
leukaemia
.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
COVID-19 vaccine has hefty response in nonhuman primates
A replicating RNA vaccine, formulated with a lipid-based nanoparticle emulsion that goes by the acronym LION, produces antibodies against the COVID-19 coronavirus in mice and primates with a single immunization. These antibodies potently neutralize the virus. The effects occurred within two weeks after
A replicating RNA vaccine, formulated with a lipid-based nanoparticle emulsion that goes by the acronym LION, produces antibodies against the COVID-19 coronavirus in mice and primates with a single immunization. These antibodies potently neutralize the virus. The effects occurred within two weeks after
2greys
in
Lung Conditions Community Forum
4 years ago
11.30 today join the Welsh experts to discuss shielding in Wales
Good Morning 🔴 Today we are hosting a Wales
leukaemia
patients' shielding update and Q&A at 11:30am. Welsh patients and experts will discuss shielding in Wales.
Good Morning 🔴 Today we are hosting a Wales
leukaemia
patients' shielding update and Q&A at 11:30am. Welsh patients and experts will discuss shielding in Wales.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Shielding in the different UK countries for people with blood cancers – FAQs
Our guide on shielding and physical distancing has been updated by our Advocacy team to include the latest changes to the shielding guidance in each of the UK countries by the governments. https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/shielding-for-people-with-blood-cancers-faqs
Our guide on shielding and physical distancing has been updated by our Advocacy team to include the latest changes to the shielding guidance in each of the UK countries by the governments. https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/shielding-for-people-with-blood-cancers-faqs
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
4 years ago
Blood results in CBC
Hi All, I wrote two months ago that my blood work had returned to normal after two abnormal and a tentative dx of CLL. Well, this month it is abnormal again. I am so confused. The receptionist said they never diagnose until at least six months of blood results.
Hi All, I wrote two months ago that my blood work had returned to normal after two abnormal and a tentative dx of CLL. Well, this month it is abnormal again. I am so confused. The receptionist said they never diagnose until at least six months of blood results.
gustave
in
CLL Support
4 years ago
Free Prescription home deliveries appear to have been stopped by Boots
Since the start of lockdown my local Boots pharmacy has been efficiently delivering my prescriptions to my front door. Latest was sent my GP to them 2 weeks ago. I rang today and was told as the Government had stopped support for the vulnerable, they has stopped free deliveries. The very nice manager
Since the start of lockdown my local Boots pharmacy has been efficiently delivering my prescriptions to my front door. Latest was sent my GP to them 2 weeks ago. I rang today and was told as the Government had stopped support for the vulnerable, they has stopped free deliveries. The very nice manager
Harvist
in
CLL Support
4 years ago
11.30 today join the Welsh experts to discuss shielding in Wales
Good Morning all 🔴 Today we are hosting a Wales
leukaemia
patients' shielding update and Q&A at 11:30am. Welsh patients and experts will discuss shielding in Wales.
Good Morning all 🔴 Today we are hosting a Wales
leukaemia
patients' shielding update and Q&A at 11:30am. Welsh patients and experts will discuss shielding in Wales.
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
SLL/CLL Numbers
Thanks for all of you with your previous replies. As you know I have been diagnosed last month with SLL/CLL and now I have all my test results. I hope you can share your experience with similar results to mine and dice me with what to expect: 1) CBC all numbers are within the normal range 2) Flow
Thanks for all of you with your previous replies. As you know I have been diagnosed last month with SLL/CLL and now I have all my test results. I hope you can share your experience with similar results to mine and dice me with what to expect: 1) CBC all numbers are within the normal range 2) Flow
Egypt58
in
CLL Support
4 years ago
1
...
58
59
60
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1797 results
MPN Voice
823 results
Leukaemia CARE
268 results
View top 10 communities
Sort by
Most Relevant
Newest