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ASH 2020 | Timing of driver mutations and clonal dynamics in MPNs: a new paradigm for blood cancer development
Post by MPN-MATE Admin » Fri Dec 18, 2020 12:27 am Evening all... This short You Tube is full of some very interesting theories, and one in particular that I know to be factual in my own case... ... that I have had my MPN for many years before diagnosis. Fascinating insight to be coming from a Specialist
Post by MPN-MATE Admin » Fri Dec 18, 2020 12:27 am Evening all... This short You Tube is full of some very interesting theories, and one in particular that I know to be factual in my own case... ... that I have had my MPN for many years before diagnosis. Fascinating insight to be coming from a Specialist
socrates_8
in
MPN Voice
4 years ago
A webinar for patients - practical workshop 'Coping with Fatigue' Oct 28th at 4pm
Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y
Leukaemia
Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing fatigue.
Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y
Leukaemia
Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing fatigue.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
RUXCOVID study (NCT04362137) ~ FAILED TO BENEFIT
Post by MPN-MATE Admin » Wed Dec 16, 2020 10:41 pm [i]Ruxolitinib fails to provide clinical benefit in patients with COVID-19-related cytokine storm[/i] [i]By Gizem Karakuleli Dec 15, 2020[/i] Evening all... :D Personally, I have found the commercial aspects of Big Pharma's race to earn the Prize
Post by MPN-MATE Admin » Wed Dec 16, 2020 10:41 pm [i]Ruxolitinib fails to provide clinical benefit in patients with COVID-19-related cytokine storm[/i] [i]By Gizem Karakuleli Dec 15, 2020[/i] Evening all... :D Personally, I have found the commercial aspects of Big Pharma's race to earn the Prize
socrates_8
in
MPN Voice
4 years ago
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PNEUMONIA
Hello, my fellow CLL (Chronic Lymphocyte
Leukaemia
) patients.
Hello, my fellow CLL (Chronic Lymphocyte
Leukaemia
) patients.
Mick491
in
CLL Support
4 years ago
An Explosion of Options for MPNs Forthcoming
« The Virtual ASH Meeting was just held in early December. It demonstrated that although we missed the in-person interactions, the progress in the world of hematology was exceptional! Forward progress for Myeloproliferative neoplasms (myelofibrosis (MF), polycythemia vera (PV), and essential thrombocythemia
« The Virtual ASH Meeting was just held in early December. It demonstrated that although we missed the in-person interactions, the progress in the world of hematology was exceptional! Forward progress for Myeloproliferative neoplasms (myelofibrosis (MF), polycythemia vera (PV), and essential thrombocythemia
Manouche
in
MPN Voice
4 years ago
Good end to a bad year... My MRD Results are in!
As many of you know, I enrolled in a clinical trial for experimental treatment with the goal to reduce MRD to zero. (Minimal (or Measurable) residual disease Description:Minimal residual disease is the name given to small numbers of leukaemic cells that remain in the person during treatment, or after
As many of you know, I enrolled in a clinical trial for experimental treatment with the goal to reduce MRD to zero. (Minimal (or Measurable) residual disease Description:Minimal residual disease is the name given to small numbers of leukaemic cells that remain in the person during treatment, or after
MikeHoff
in
CLL Support
4 years ago
RUXOLITINIB & Pulmonary Hypertension (PH)
Post by MPN-MATE Admin » Mon Dec 14, 2020 9:34 am Morning all... :D Lately, or perhaps I should have said, more recently while cycling... I have noticed days when my heart rate really blows out past previous maximums... Some days, I would feel in awesome ability after a ride, but then others, (&
Post by MPN-MATE Admin » Mon Dec 14, 2020 9:34 am Morning all... :D Lately, or perhaps I should have said, more recently while cycling... I have noticed days when my heart rate really blows out past previous maximums... Some days, I would feel in awesome ability after a ride, but then others, (&
socrates_8
in
MPN Voice
4 years ago
Picture of blast cell
I took this picture from a cat who had leukemia. Their blood cells are identical to ours. As you can see the blast cell is huge compared to the other white blood cells. That is because it is immature and has been released from the bone marrow too soon. Blasts should not be seen circulating in the blood
I took this picture from a cat who had leukemia. Their blood cells are identical to ours. As you can see the blast cell is huge compared to the other white blood cells. That is because it is immature and has been released from the bone marrow too soon. Blasts should not be seen circulating in the blood
clubdino
in
MPN Voice
4 years ago
Pot Belly
Hi Does anyone have a problem with a pot belly. I have found recently that my trousers are tight and I am sure my spleen is not the cause. I have MF on Ruxolitinib 5mg 2 per day, eprex injections once a week and zario 3 times a week.
Hi Does anyone have a problem with a pot belly. I have found recently that my trousers are tight and I am sure my spleen is not the cause. I have MF on Ruxolitinib 5mg 2 per day, eprex injections once a week and zario 3 times a week.
WeeHarry
in
MPN Voice
4 years ago
CLL and Roundup lawsuit
For those living in the U.S. there's a time sensitive deadline—12/31/2020, I think—to initiate a new legal action brewing against the makers of Roundup for people who have, or have had, CLL. Check out this site: https://justicecounts.com/roundup/roundup-settlement-amounts/ Even more importantly, here's
For those living in the U.S. there's a time sensitive deadline—12/31/2020, I think—to initiate a new legal action brewing against the makers of Roundup for people who have, or have had, CLL. Check out this site: https://justicecounts.com/roundup/roundup-settlement-amounts/ Even more importantly, here's
Pogee
in
CLL Support
4 years ago
A webinar for patients - practical workshop 'Coping with Fatigue' Oct 28th at 4pm
Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y
Leukaemia
Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing fatigue.
Please join us for this participative webinar Register > http://bit.ly/FatigueWebinar https://pic.twitter.com/44DMhhS46y
Leukaemia
Care are co – hosting this webinar with Lymphoma Action to support patients with understanding and managing fatigue.
HAIRBEAR_UK
Founder Admin
in
CLL Support
4 years ago
AOP Orphan announces 5-year results on BESREMi® in PV at the ASH Annual Meeting 2020
Besremi showed clear advantages in efficacy and safety/tolerability versus best-available-treatment (mostly hydroxyurea) in this long-term treatment analysis in the randomized-controlled setting. * Freedom of phlebotomy with hematocrit below 45% was achieved in 81.8% of patients receiving Besremi vs
Besremi showed clear advantages in efficacy and safety/tolerability versus best-available-treatment (mostly hydroxyurea) in this long-term treatment analysis in the randomized-controlled setting. * Freedom of phlebotomy with hematocrit below 45% was achieved in 81.8% of patients receiving Besremi vs
Manouche
in
MPN Voice
4 years ago
Interferon in Polycythemia Vera (PV) Yields Improved Myelofibrosis-Free and Overall Survival
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV myelofibrosis, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV myelofibrosis, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
Manouche
in
MPN Voice
4 years ago
Obinutuzumab and Venetoclax cleared for use in UK
https://www.dailymail.co.uk/health/article-8973227/Thousands-
leukaemia
-sufferers-spared-chemotherapy-thanks-new-two-one-treatment.html Anyway, it looks encouraging that the NHS, if I've read this right, are improving their treatment.
https://www.dailymail.co.uk/health/article-8973227/Thousands-
leukaemia
-sufferers-spared-chemotherapy-thanks-new-two-one-treatment.html Anyway, it looks encouraging that the NHS, if I've read this right, are improving their treatment.
Research123
in
CLL Support
4 years ago
Acalabrutinib Plus Obinutuzumab Prolongs Progression Free Survival Compared to Other Targeted Agents in Chronic Lymphocytic Leukaemia (CLL)
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to ibrutinib-obinutuzumab and venetoclax-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to ibrutinib-obinutuzumab and venetoclax-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
AussieNeil
Partner
in
CLL Support
4 years ago
Inconclusive results from BMB
My bone narrow biopsy results were inconclusive. Positive in Jak 2. Negative tests results for lymphoma and leukemia. Red blood cell, white blood cell and platelets are all high. They cannot determine what exact disorder I have. As a result, there has been no recommendation on what to do with medication
My bone narrow biopsy results were inconclusive. Positive in Jak 2. Negative tests results for lymphoma and leukemia. Red blood cell, white blood cell and platelets are all high. They cannot determine what exact disorder I have. As a result, there has been no recommendation on what to do with medication
margaritampn
in
MPN Voice
4 years ago
Update for UK FLAIR CLL Study Participants who have come to the end of 6 years of Ibrutininb treatment.
"FLAIR and STATIC trial update
Background: The development of ibrutinib has had a major positive impact for patients with chronic lymphocytic
leukaemia
(CLL).
"FLAIR and STATIC trial update
Background: The development of ibrutinib has had a major positive impact for patients with chronic lymphocytic
leukaemia
(CLL).
Jm954
in
Leukaemia Support
4 years ago
"It will change everything" - two scientific blockbusters we'll all benefit from
Mainly of interest to geeks, but of import to everyone. Blockbuster # 1: CRISPR-Cas9 Within weeks we expect to have several effective vaccines against the coronavirus, vaccines made from scratch and rushed to market within 12 months. Hitherto, such a development schedule for a new vaccine was unthinkable
Mainly of interest to geeks, but of import to everyone. Blockbuster # 1: CRISPR-Cas9 Within weeks we expect to have several effective vaccines against the coronavirus, vaccines made from scratch and rushed to market within 12 months. Hitherto, such a development schedule for a new vaccine was unthinkable
bennevisplace
in
CLL Support
4 years ago
Is there a link between PV and Alopecia areata (AA)?
Hi, Back in Summer 2019 I was diagnosed with Alopecia areata (AA). Then in Feb 2020 a blood test picked up high red blood cells / haemoglobin and haematocrits. In October just gone I was told I almost certainly have PV despite being negative for JAK2. (I have low EPO too). I see my consultant later
Hi, Back in Summer 2019 I was diagnosed with Alopecia areata (AA). Then in Feb 2020 a blood test picked up high red blood cells / haemoglobin and haematocrits. In October just gone I was told I almost certainly have PV despite being negative for JAK2. (I have low EPO too). I see my consultant later
Lettie_WP
in
MPN Voice
4 years ago
Help deciding about Transplant
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
I was diagnosed with Primary MF aged 49, 6 years ago. I am well managed on Ruxolitinib 30 mg daily, Aspirin and Acyclovir. My consuhas recently referred me to a transplant construct discuss a possible transplant. I am trying make my decision, which I am finding so difficult. As I am well controlled
Cazbolac
in
MPN Voice
4 years ago
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