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Post Treatment and Perimenopause
I'm confused with some symptoms I've been suffering with over the last 6 months and am wondering if these could be perimenopausal symptoms rather than
Leukaemia
symptoms.
I'm confused with some symptoms I've been suffering with over the last 6 months and am wondering if these could be perimenopausal symptoms rather than
Leukaemia
symptoms.
TM1972
in
Leukaemia Support
3 years ago
Hairy cell - 3 weeks after chemo
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
So here I am 3 weeks after my cladribine subcutaneous chemo finished. Am having weekly blood tests, had a phone chat with my haematologist this morning who is happy the way my platelets and neutrophiles are recovering - plats up to 138 and neuts 0.6, both doubled from a week ago. The main problem is
frankmok
in
Leukaemia Support
3 years ago
CLL and Night Sweats
I have been on W&W for 1-1/2 years. Lymph % is 69.7, Lymph # 10.26 and WBC at 14.73. Just started having night sweats. What does one do? I am waiting on response from my doc but thought I would get feedback here. Thank you all for caring!
I have been on W&W for 1-1/2 years. Lymph % is 69.7, Lymph # 10.26 and WBC at 14.73. Just started having night sweats. What does one do? I am waiting on response from my doc but thought I would get feedback here. Thank you all for caring!
CBME
in
CLL Support
3 years ago
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Newly approved drug effective against lung cancer caused by genetic mutation
The new drug sotorasib reduces tumor size and shows promise in improving survival among patients with lung tumors caused by a specific DNA mutation, according to results of a global phase 2 clinical trial. The drug is designed to shut down the effects of the mutation, which is found in about 13% of patients
The new drug sotorasib reduces tumor size and shows promise in improving survival among patients with lung tumors caused by a specific DNA mutation, according to results of a global phase 2 clinical trial. The drug is designed to shut down the effects of the mutation, which is found in about 13% of patients
2greys
in
Lung Conditions Community Forum
3 years ago
How do I safely live my life with CLL if my antibody test results are one of three scenarios?
I am a stage zero CLL patient of 5 years awaiting the results of my antibody test ordered by my oncologist due to the recent news that CLL patients are often not getting as many antibodies produced as hoped resulting from their CoVid vaccines. I had 2 doses Moderna (Feb and March). I have been very
I am a stage zero CLL patient of 5 years awaiting the results of my antibody test ordered by my oncologist due to the recent news that CLL patients are often not getting as many antibodies produced as hoped resulting from their CoVid vaccines. I had 2 doses Moderna (Feb and March). I have been very
learning2021
in
CLL Support
3 years ago
Inflammatory Pathophysiology as a Contributor to MPN
« Clinical evidence that JAK2 inhibition by ruxolitinib in MF neither reliably reduces malignant clonal burden nor eliminates cytokine elevations, suggests targeting cytokine mediated signaling as a therapeutic strategy, which is being pursued in new clinical trials » « The clearly prominent role of
« Clinical evidence that JAK2 inhibition by ruxolitinib in MF neither reliably reduces malignant clonal burden nor eliminates cytokine elevations, suggests targeting cytokine mediated signaling as a therapeutic strategy, which is being pursued in new clinical trials » « The clearly prominent role of
Manouche
in
MPN Voice
3 years ago
Webinar - The role of specialist nurses in leukaemia
Specialist for
Leukaemia
& MPN - Belfast City Hospital, Belfast Health and Social Care Trust Catherine Langton , Myeloid Specialist Nurse, Leeds Teaching Hospitals NHS Trust
Specialist for
Leukaemia
& MPN - Belfast City Hospital, Belfast Health and Social Care Trust Catherine Langton , Myeloid Specialist Nurse, Leeds Teaching Hospitals NHS Trust
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Husband with CLL - struggling with no energy, motivation and depression. Help.
Hi all, New member seeking support here. My husband was diagnosed with CLL about 6 years ago when his WBC was at 24000. We chose naturopathic therapy (vit C infusions, colon hydrotherapy and hyperbaric oxygen treatments). After several months with no symptoms, he stopped treatments and continued his
Hi all, New member seeking support here. My husband was diagnosed with CLL about 6 years ago when his WBC was at 24000. We chose naturopathic therapy (vit C infusions, colon hydrotherapy and hyperbaric oxygen treatments). After several months with no symptoms, he stopped treatments and continued his
qtrhorsechic
in
CLL Support
3 years ago
Worried about mums blood test results.
My mum has had a high platelet count for around 8/9 years now. She was referred to a hematologist who thought she had essential thrombocythemia, her platelets were high, her red cells low and white within normal range! However she had a blood test done a week ago and her white cells were 100,000 , her
My mum has had a high platelet count for around 8/9 years now. She was referred to a hematologist who thought she had essential thrombocythemia, her platelets were high, her red cells low and white within normal range! However she had a blood test done a week ago and her white cells were 100,000 , her
Mummytonoah15
in
CLL Support
3 years ago
Richter Transformation Update 21-06-2021
Hello everyone. I would like to update the information of our Ricther Transformation group. A month and a half ago, a 42-year-old patient died. He had been transforming Ricther for nine months and was very aggressive. He had it spread all over his body. He was treated with R-Chop and in the middle
Hello everyone. I would like to update the information of our Ricther Transformation group. A month and a half ago, a 42-year-old patient died. He had been transforming Ricther for nine months and was very aggressive. He had it spread all over his body. He was treated with R-Chop and in the middle
Priss69
in
CLL Support
3 years ago
Blood test
Can anyone tell me please my latest bloods showed my MCV. 107 MCHC 310 My Haematologist wants to check them again but is waiting till my next appointment in 4 months. Feeling worried
Can anyone tell me please my latest bloods showed my MCV. 107 MCHC 310 My Haematologist wants to check them again but is waiting till my next appointment in 4 months. Feeling worried
SusieG60
in
MPN Voice
3 years ago
Awake worrying? Stop it. You deserve a free online 2nd Opinion from a CLL expert: CLL Society's Expert Access™ Program. Apply today:)
Awake worrying? If you are not seeing a CLL expert and worry is keeping you awake because you are less than confident in the treatment your current provider recommends, or you are facing a treatment decision and have received conflicting advice, CLL Society's Expert Access Program™ might be for you
Awake worrying? If you are not seeing a CLL expert and worry is keeping you awake because you are less than confident in the treatment your current provider recommends, or you are facing a treatment decision and have received conflicting advice, CLL Society's Expert Access Program™ might be for you
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Living Well With CML - Webinar 4.30pm Wednesday 21st April.
amp=1 The aim of this webinar is to support chronic myeloid
leukaemia
(CML) patients to live well with their condition. The panel will explore challenges and opportunities that can impact on quality of life. What are the most important to aid living well with CML?
amp=1 The aim of this webinar is to support chronic myeloid
leukaemia
(CML) patients to live well with their condition. The panel will explore challenges and opportunities that can impact on quality of life. What are the most important to aid living well with CML?
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
High Jak2 burden with Tet2 mutation
I was diagnosed with P-vera a few months ago. My bone marrow biopsy showed I have the Jak2 v617f mution at 88% allele burden, this sounds very high to me. I also have a Tet2 mutation at 25% allele burden. Anyone else have high burden like this. My Doctor has down played the 88% burden, but my reading
I was diagnosed with P-vera a few months ago. My bone marrow biopsy showed I have the Jak2 v617f mution at 88% allele burden, this sounds very high to me. I also have a Tet2 mutation at 25% allele burden. Anyone else have high burden like this. My Doctor has down played the 88% burden, but my reading
Flynn2107
in
MPN Voice
3 years ago
Antibodies
I decided to do my second antibody test sooner rather than later as I’m meeting up with family over half term. Apparently a result greater than 0.8 U/mL means that antibodies are detected. My result came back at 24 U/mL! That is despite a dose of 20 mg Ruxolitinib twice daily and advanced post ET MF.
I decided to do my second antibody test sooner rather than later as I’m meeting up with family over half term. Apparently a result greater than 0.8 U/mL means that antibodies are detected. My result came back at 24 U/mL! That is despite a dose of 20 mg Ruxolitinib twice daily and advanced post ET MF.
beetle
in
MPN Voice
3 years ago
Proximal onycholysis
Just wondering if anyone taking hydroxyurea or ruxolitinib has had any nail problems. Two of my fingernails (thumb and ring finger) started with bruises under the cuticles and then white areas around the base of the nail which have actually started to peel off. I went to a dermatologist this morning
Just wondering if anyone taking hydroxyurea or ruxolitinib has had any nail problems. Two of my fingernails (thumb and ring finger) started with bruises under the cuticles and then white areas around the base of the nail which have actually started to peel off. I went to a dermatologist this morning
Buggerbear
in
MPN Voice
3 years ago
Questions for Dr.
Tomorrow husband has his first appointments with both
leukaemia
dept and hematologist since his MF diagnosis. (after a year of prefibrotic MF) Are there any specific questions he should be asking? Thank you so much!
Tomorrow husband has his first appointments with both
leukaemia
dept and hematologist since his MF diagnosis. (after a year of prefibrotic MF) Are there any specific questions he should be asking? Thank you so much!
TM76
in
MPN Voice
3 years ago
No Antibodies after Vaccine
Just got my results back for Covid Antibodies after Vaccination. It was Negative with a reported level of less than 0.4(U/mL). I took two doses of Pfizer, 8 weeks apart. I've been on Ibrutinib for CLL for 7 months now, and the first vaccine dose was 3 months after starting treatment. Really peed off
Just got my results back for Covid Antibodies after Vaccination. It was Negative with a reported level of less than 0.4(U/mL). I took two doses of Pfizer, 8 weeks apart. I've been on Ibrutinib for CLL for 7 months now, and the first vaccine dose was 3 months after starting treatment. Really peed off
MovingForward4423
in
CLL Support
3 years ago
AbbVie Pharm--positive phase 3 for CLL!
Hey, all, see this article about AbbVie pharma! AbbVie Sees Continued Positive Results for Leukemia Treatment 7:05 am ET June 11, 2021 (Dow Jones) Print By Chris Wack AbbVie said it saw continued positive results from a four-year follow-up analysis of its Phase 3 CLL14 trial. The pharmaceutical company
Hey, all, see this article about AbbVie pharma! AbbVie Sees Continued Positive Results for Leukemia Treatment 7:05 am ET June 11, 2021 (Dow Jones) Print By Chris Wack AbbVie said it saw continued positive results from a four-year follow-up analysis of its Phase 3 CLL14 trial. The pharmaceutical company
Vlaminck
in
CLL Support
3 years ago
Re vaccine and outcome for CLL you might find this interesting
Today, the first results of a key study on vaccine responses in
leukaemia
patients has been published in the Lancet journal. This work focused solely on chronic lymphocytic
leukaemia
patients; this is a type of incurable blood cancer that affects B-lymphocytes.
Today, the first results of a key study on vaccine responses in
leukaemia
patients has been published in the Lancet journal. This work focused solely on chronic lymphocytic
leukaemia
patients; this is a type of incurable blood cancer that affects B-lymphocytes.
Lookintomyeyes
in
CLL Support
3 years ago
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