Good morning! I'm happy to report that I had my third infusion last week, and my platelets are at 265,000 and seem to be stabilizing. My WBC, RBC, and LDH levels are normal, and my RDW is almost within the normal range as well!
Currently, my regimen is 750mg every two weeks, and I'll continue this indefinitely. Before the trial, my platelets were over 1 million. Over the last three weeks, as my numbers have normalized, I've noticed a significant increase in energy, a decrease in spleen size (I don't get full as quickly when I eat), and reduced brain fog, leading to more clear-headedness.
My next infusion is a week from tomorrow, at which point I will provide another update. I also plan to ask my doctors for the latest information on the trial, especially now that they've been approved to start patients at a higher dose, given the lack of significant side effects observed so far.
I'm very pleased with the results thus far. I try not to get ahead of myself, but I've been through 3 medications in 8 years and haven't seen these numbers since before I was diagnosed. Hoping for regression in my BMB in August, however I know this will take time. Chat soon!
Clinical Trial Exceed ET
Update of Mithradite Trial 
ET/Hydroxycarbamide/ Low JAK2 levels - An update 
Hydroxy Blood Numbers Experiences
