Experiences with

Ketotifen ophthalmic

hi I am wondering if there are any other parents of a child with Mastocytosis Uticaria Pigmentosa? My son was diagnosed at 4 months by great ormond street, given ketotifen, and seemed to “grow out” of it as the suggested he would. But from 14 onwards has really struggled with hives, excema, abdominal

MCAS AND MEDS MCAS strikes again I can't take tablet or liquid levothyroxine as I've had the worst histamine flare even at 25mcg. Been in bed 4 days now crashing headache, body pains, inflammation, dizziness, fatigue all from 1 tiny dose of 25mcg liquid levothyroxine. What can I do ? I desperately

I suffered with long Covid after catching it at 38 weeks pregnant and was later diagnosed with MCAS and put on Ketotifen. I’ve been on it a year and struggle to know if it helps or not as I was diagnosed with PoTS, Hypermobility and underactive thyroid during that time. The latter makes me feel rotten

Hi, Can anyone advise me. I had my first immunologist appointment by telephone recently and the consultant wants me to have a serum tryptase blood test. I've had one before after I had a private consultation with Professor Aziz in London and it came back negative. My question is does anyone know if you

Hello all, I was prescribed Ketotifen by a Neurogastroenterologist in late 2022 but have had no joy in getting my prescription dispensed ever since, with pharmacies telling me it is still out of stock in the UK. I'm aware of this site: https://ukmasto.org/ketotifen/ with current ETA as "expected back

Hi - I'm Kay and I have indolent systemic mastocytosis. I have just been phoning round pharmacies (without success), looking for Ketotifen 1mg tablets as there seem to be supply problems yet again. I've lost track of how many time this has happened and each time I eat into the small stock I had somehow

I suffer from I have multiple health conditions which are mostly related to my bladder (Interstitial Cystitis and Fowlers Syndrome) I have a suprapubic catheter in place and suffer from recurring and severe bladder infections. I am under the care of multiple specialists at different hospitals in London

Soooo, thought I'd give an update. Had my Xolair injections yesterday (was so stressful getting back to the hospital lol), went well and the specialist nurse was lovely. Minimal wheals today although still a lot of itching, but it is progress! On the asthma front though I think the increase of my Ketotifen

I'm new here. I would appreciate some information for my friend who can't eat anything without often having (severe) diarrhea, bloating, pain in the Douglas pouch, gastroparesis. She can' t even have broth without reacting badly. She has Sjögren's, Raynaud's, Lupus, mold issues, neuropathy, vertigo,

Good news medication update! Zaditen (ketotifen) elixir is back in stock. Your pharmacy can obtain it from Alloga UK using the code USP0832. Please let your pharmacy know that code to be sure it can be properly located. This is the strawberry flavoured liquid that does contain alcohol. Zaditen (ketotifen

Currently on 1mg of ketotifen capsules. Can this be upped to higher dose? It helps but doesn't last long .

Hello hope today is better day . I joined this forum to ask few questions really I will give little background . I am 30 I have been unwell abt 8 years on Thursday my daughter 8th bday it is scary in both she will be 8 and I will have been unwell for 8 years no magic cure or relief in sight so far

We have been told by Sanofi that Nalcrom will be out of stock until the week commencing November 23, 2020. We have been in touch with the Department of Health and Social Care to inform them of the problem, and indeed they have spoken about it this morning with their team and will contact the pharmacies

Intal Some people with mast cell diseases use the sodium cromoglycate inhaler, Intal. The producer, Sanofi, confirmed today that it is out of stock but is expected back in late October. Ketotifen Tablets The tablets should now be available to be purchased from Alloga by your pharmacy, however, the identification

The licensed ketotifen tablets (Zaditen) should now be available in the UK again. Your pharmacist should contact Alloga directly if they cannot get a supply from their usual wholesalers. The liquid continues to be available only by importing the unlicensed products from elsewhere in Europe. Please

Saying sorry for my Grammatical error! I am from bangladesh Hello all kindly help me. From last two year my life is fully horrible .can not run normal life. I don't know actually what's wrong with me... I am 24 years student work at online professional that means freelancer.. I working here from

Eosinophilic (E-o-sin-o-fil-ik) Disorders Information. We encountered the world of EGID via Reflux symptoms initially. My whole family on my Dad's side had always suffered Gastro Oesophogeal Reflux to some extent (myself included) along with plenty of allergies, autoimmune problems and supposed IBS

Hello Hope you are all keeping well... I was just wondering, has anyone been prescribed Ketotifen 1mg and taken it twice daily? I've just started taking it today and for some reason, feel really drowsy and not aware of my surroundings, I am struggling to keep awake and getting really worried about it