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Kasai portoenterostomy
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My long journey into parenthood (Biliary Atresia, multiple miscarriages, IVF)
Hi, my name is Christine and I want to share my long journey into parenthood. I was born with Biliary Atresia as an infant and had a successful Kasai Procedure that prolonged my liver until I was 25. I eventually needed two separate liver transplants to recover as an adult (my husband first donated
Hi, my name is Christine and I want to share my long journey into parenthood. I was born with Biliary Atresia as an infant and had a successful Kasai Procedure that prolonged my liver until I was 25. I eventually needed two separate liver transplants to recover as an adult (my husband first donated
Christine20200
in
Children's Liver Disease Foundation
4 years ago
biliary atresia
Hello everyone,my daughter is 6 months old,has biliary atresia,awaiting liver biopsy results ,what can be done to keep the baby from feeling weak,we found out that she has a problem when she was 2 months,doctors said she is too old for a kasai procedure
Hello everyone,my daughter is 6 months old,has biliary atresia,awaiting liver biopsy results ,what can be done to keep the baby from feeling weak,we found out that she has a problem when she was 2 months,doctors said she is too old for a kasai procedure
ZOO1
in
Children's Liver Disease Foundation
4 years ago
Bilirubin vs alk phosphatase
Hi, My son had his kasai when he at 54 weeks. He's already 1 month post kasai yesterday, now hes poop turn out into a bright yellow sometimes greenish yellow . Today hes had his 1st lft blood test 1month after kasai. What im worried about, last his total bilirubin is 180 before he had his kasai procedure
Hi, My son had his kasai when he at 54 weeks. He's already 1 month post kasai yesterday, now hes poop turn out into a bright yellow sometimes greenish yellow . Today hes had his 1st lft blood test 1month after kasai. What im worried about, last his total bilirubin is 180 before he had his kasai procedure
Mumzylizzie
in
Children's Liver Disease Foundation
5 years ago
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Biliary atresia going abroad
My daughter had kasai procedure end of June this year for biliary atresia and we are looking at going abroad to lanzarote next year (june) for a week. She will be just over 1 when we go. Have you been abroad with biliary atresia and what did you do or how did you deal with it? I am just worried if something
My daughter had kasai procedure end of June this year for biliary atresia and we are looking at going abroad to lanzarote next year (june) for a week. She will be just over 1 when we go. Have you been abroad with biliary atresia and what did you do or how did you deal with it? I am just worried if something
BA0619
in
Children's Liver Disease Foundation
5 years ago
After kasai
After some advice.... My daughter had the kasai procedure last week and obviously I am now poo paranoid. She had 3 dark green poos after surgery but now they are very pale again? Is this normal? Do we just have to wait and see what happens in the next week or so or should they be dark already?
After some advice.... My daughter had the kasai procedure last week and obviously I am now poo paranoid. She had 3 dark green poos after surgery but now they are very pale again? Is this normal? Do we just have to wait and see what happens in the next week or so or should they be dark already?
Annabishop
in
Children's Liver Disease Foundation
5 years ago
frequent fever after kasai procedure
hi friends, my daughter had kasai at her 2 months of age. now she is in six month. After operation, she frequently got fever. but her bile ranges only 1.4 -1.6 after operation. very recently her stomach becomes bulges. kindly give some suggestions to overcome this.
hi friends, my daughter had kasai at her 2 months of age. now she is in six month. After operation, she frequently got fever. but her bile ranges only 1.4 -1.6 after operation. very recently her stomach becomes bulges. kindly give some suggestions to overcome this.
Mariappancm
in
Children's Liver Disease Foundation
5 years ago
kasai Procedure
hi, Anyone who done KAsai from Pakistan/asia.
hi, Anyone who done KAsai from Pakistan/asia.
kamranzaheer
in
Children's Liver Disease Foundation
6 years ago
Biliary atresia/ KASAI PROCEDURE post op management in 8 weeks old baby
Hello.my daughter of 8 weeks had biliary atresia diagnosed 10 days ago.she underwent KASAI procedure 8 days ago. Any body can share his/her experience regarding this condition/procedure and post operative life. Looking forward for your replies
Hello.my daughter of 8 weeks had biliary atresia diagnosed 10 days ago.she underwent KASAI procedure 8 days ago. Any body can share his/her experience regarding this condition/procedure and post operative life. Looking forward for your replies
Drmirzaali
in
Children's Liver Disease Foundation
6 years ago
New biliary atresia family, looking for support and community
On September 7th my 11 week old son has the Hida scan and on September 10th he had the Kasai procedure. Aside from this being the most devastating NIGHTMARE our family has ever been though, this is hurting us financially, and mentally. I'm deeply tramatized and I just want my son to be ok and to be a
On September 7th my 11 week old son has the Hida scan and on September 10th he had the Kasai procedure. Aside from this being the most devastating NIGHTMARE our family has ever been though, this is hurting us financially, and mentally. I'm deeply tramatized and I just want my son to be ok and to be a
Mothercrunchy
in
Children's Liver Disease Foundation
6 years ago
Post kasai procedure
My son had done kasai procedure when he was 77 days old and now he is 114 days old but his stool colour is white so please advise me Sorry for my previouse posts
My son had done kasai procedure when he was 77 days old and now he is 114 days old but his stool colour is white so please advise me Sorry for my previouse posts
vijaykoli
in
Children's Liver Disease Foundation
6 years ago
Post kasai procedure
My son had done kasai procedure when he was 77 days old and now he is 114 year old but his stool colour is white so please advise me
My son had done kasai procedure when he was 77 days old and now he is 114 year old but his stool colour is white so please advise me
vijaykoli
in
Children's Liver Disease Foundation
6 years ago
Post kasai procedure
Hi, My son had done kasai procedure when he was 77 days old and now he is 114 but his stool colour is white so please advise me
Hi, My son had done kasai procedure when he was 77 days old and now he is 114 but his stool colour is white so please advise me
vijaykoli
in
Children's Liver Disease Foundation
6 years ago
How soon to know if Kasai procedure was successful
My cousin’s baby has BA- the doctors knew something was wrong when she was 2 days old and she was transferred to Children’s hospital where the BA was confirmed. she had the Kasai procedure when she was 2 weeks old- and now she is 2 weeks status post procedure. Everything Seemed to be doing well at first
My cousin’s baby has BA- the doctors knew something was wrong when she was 2 days old and she was transferred to Children’s hospital where the BA was confirmed. she had the Kasai procedure when she was 2 weeks old- and now she is 2 weeks status post procedure. Everything Seemed to be doing well at first
Angie46
in
Children's Liver Disease Foundation
6 years ago
kasai procedure
Hi All, My 6 weeks daughter has done kasai procedure due to biliary atresia. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
Hi All, My 6 weeks daughter has done kasai procedure due to biliary atresia. Ultimately she has to go for liver transplant (sooner or later). Is there any place in world where lever can donate for small kids.
kamranzaheer
in
Children's Liver Disease Foundation
6 years ago
Biliary Atresia- Kasai
Hi, my daughter was diagnosed with BA at 6+ weeks & had the Kasai procedure done at 7+ weeks. We have been in the hospital now 2+ weeks post op. Her liver labs do look better, more color in the poop too... greenish yellow, more or less but never acholic. A major concern is the fluid draining out of
Hi, my daughter was diagnosed with BA at 6+ weeks & had the Kasai procedure done at 7+ weeks. We have been in the hospital now 2+ weeks post op. Her liver labs do look better, more color in the poop too... greenish yellow, more or less but never acholic. A major concern is the fluid draining out of
Pencek
in
Children's Liver Disease Foundation
6 years ago
After Kasai Procedure
Hi, my son was operated 02/06/18. He have shown no physical signs of improvement or signs of getting worse. His bilirubin and LFT are still high and he was just evaluated to see if he is a good candidate for a transplant everything checked out fine. I was wondering If there was anybody child who liver
Hi, my son was operated 02/06/18. He have shown no physical signs of improvement or signs of getting worse. His bilirubin and LFT are still high and he was just evaluated to see if he is a good candidate for a transplant everything checked out fine. I was wondering If there was anybody child who liver
Twiin
in
Children's Liver Disease Foundation
6 years ago
Liver Functions Test Are Out Of Range
Hi Everyone My daughter is 16 years old and was diagnosed with Biliary Atresia as a baby unfortunately the
Kasai
Portoenterostomy
was unsuccessful and she had a liver transplant at the Birmingham Children's Hospital in year 2004.
Hi Everyone My daughter is 16 years old and was diagnosed with Biliary Atresia as a baby unfortunately the
Kasai
Portoenterostomy
was unsuccessful and she had a liver transplant at the Birmingham Children's Hospital in year 2004.
Passion123456
in
Children's Liver Disease Foundation
6 years ago
Some questions about BA for parents who’ve already been down this path...
Does anyone know if indirect sunlight will help the jaundice clear a bit more after kasai procedure? I know there’s 2 separate jaundice issues but was wondering if the indirect sunlight would do any good. Did any of your babies get diagnosed with an infection that may have been the culprit for the disease
Does anyone know if indirect sunlight will help the jaundice clear a bit more after kasai procedure? I know there’s 2 separate jaundice issues but was wondering if the indirect sunlight would do any good. Did any of your babies get diagnosed with an infection that may have been the culprit for the disease
Heyladydee
in
Children's Liver Disease Foundation
6 years ago
Cholangitis post Kasai
Hello, my daughter is recovering from cholangitis. She had her kasai procedure; three months ago. Everything went well, her bilirubin was within normal range. Now the jaundice is coming back back. Her bilirubin and liver test keeps going up. Any similar experience or advice will be very helpful.
Hello, my daughter is recovering from cholangitis. She had her kasai procedure; three months ago. Everything went well, her bilirubin was within normal range. Now the jaundice is coming back back. Her bilirubin and liver test keeps going up. Any similar experience or advice will be very helpful.
Hope-faith
in
Children's Liver Disease Foundation
6 years ago
BA - Kasai Procedure at age of 10 Weeks
Hello im from Pakistan and my first son/baby has liver issue Biliary Atresia. Doctors has done kasai procedure at age of 2 Months and 15 days almost at age of 10 weeks. I dont know if they has done very late or still its okay. 3 days before they did the kasai procedure (19/02/2018) And still we dont
Hello im from Pakistan and my first son/baby has liver issue Biliary Atresia. Doctors has done kasai procedure at age of 2 Months and 15 days almost at age of 10 weeks. I dont know if they has done very late or still its okay. 3 days before they did the kasai procedure (19/02/2018) And still we dont
NafeesEU
in
Children's Liver Disease Foundation
6 years ago
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