Search
Search
About
Log in
Join
Experiences with
Kasai portoenterostomy
Posts
Communities
47 public posts
Filter results
Biliary atresia
My son has biliary atresia. Had the Kasai procedure at 6 weeks old. He’s now 9 weeks old and his bilirubin level is still elevated. It’s higher than it was before the surgery. He completed 2 different antibiotic but it keeps going up. We thought he was going to be one of those that’d be successful since
My son has biliary atresia. Had the Kasai procedure at 6 weeks old. He’s now 9 weeks old and his bilirubin level is still elevated. It’s higher than it was before the surgery. He completed 2 different antibiotic but it keeps going up. We thought he was going to be one of those that’d be successful since
Jmom17
in
Children's Liver Disease Foundation
6 years ago
6 month son old with BA
am indian, my son was born on 8th feb-17 and kasai procedure operation on 30th march-17. now the doctor is saying, looks the kasai operation is failure and advising go with liver transparent treatment. can you advise, how is success rate of lever transparent...? after LT and child need to take medicine
am indian, my son was born on 8th feb-17 and kasai procedure operation on 30th march-17. now the doctor is saying, looks the kasai operation is failure and advising go with liver transparent treatment. can you advise, how is success rate of lever transparent...? after LT and child need to take medicine
senthilacs1
in
Children's Liver Disease Foundation
7 years ago
Son with BA
Hi, I just joined as we've been out of hospital after our two months old son had the Kasai procedure. The brother of a good friend of mine recommended me this site. He is doing ok. For my husband and I is just getting in the routine of medicines, weighing and just keeping a close eye on his progress.
Hi, I just joined as we've been out of hospital after our two months old son had the Kasai procedure. The brother of a good friend of mine recommended me this site. He is doing ok. For my husband and I is just getting in the routine of medicines, weighing and just keeping a close eye on his progress.
Bentrij82
in
Children's Liver Disease Foundation
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Looking for positive outcome stories after Kasai procedure.
Hi, I'm simply looking for hope ... My son was diagnosed with BA at 51 days and got kasai at 53. Then he had another surgery a week later for an intestinal occlusion. We are now almost 5 weeks post 2nd surgery. He is clinically doing great. He is gaining weight and following his curve only on breastfeeding
Hi, I'm simply looking for hope ... My son was diagnosed with BA at 51 days and got kasai at 53. Then he had another surgery a week later for an intestinal occlusion. We are now almost 5 weeks post 2nd surgery. He is clinically doing great. He is gaining weight and following his curve only on breastfeeding
Gab34
in
Children's Liver Disease Foundation
7 years ago
Born with Biliary Atresia
I was diagnosed with Biliary Atresia 2 months after I was born, I lived in a small town and the doctors there had no idea what was wrong so I was transported to Iowa City, where they informed my parents about the disease, there was a doctor from England who knew a little bit about the disease and
I was diagnosed with Biliary Atresia 2 months after I was born, I lived in a small town and the doctors there had no idea what was wrong so I was transported to Iowa City, where they informed my parents about the disease, there was a doctor from England who knew a little bit about the disease and
courtney1985
in
Children's Liver Disease Foundation
8 years ago
Transplant Waiting List
My daughter was diagnosed with BA in January, She underwent the Kasai procedure in Birmingham, but unfortunatly it has failed. She is now on the transplant waiting list and has been there since late September. I am currently undergoing all the tests to be her live doner, and so far so good. I'm interested
My daughter was diagnosed with BA in January, She underwent the Kasai procedure in Birmingham, but unfortunatly it has failed. She is now on the transplant waiting list and has been there since late September. I am currently undergoing all the tests to be her live doner, and so far so good. I'm interested
mikeandkirst
in
Children's Liver Disease Foundation
10 years ago
My daughter had Kasai procedure some 12 years ago aged 9 months after being diagnosed with colechdocal cyct.
She has been extremely well since but has been "under the weather" for past 3 months, feeling a little nauseous, continual stomach ache and very lethargic. We have rested her from all activities and are doing our best to keep her in school. Visits to doctors has resulted in blood tests, urine test and
She has been extremely well since but has been "under the weather" for past 3 months, feeling a little nauseous, continual stomach ache and very lethargic. We have rested her from all activities and are doing our best to keep her in school. Visits to doctors has resulted in blood tests, urine test and
skinna
in
Children's Liver Disease Foundation
11 years ago
1
2
3
Filter results
Clear filters
Posted in
All communities
Children's Liver Disease Foundation
47 results
Sort by
Most Relevant
Newest