Search
Search
About
Log in
Join
Experiences with
Jakafi
Posts
Communities
226 public posts
Filter results
NEW HOPE FOR AML...
Jakafi
therefore works as an Inhibitor (or Blocker) to the Signalling of mutant cells...
Jakafi
therefore works as an Inhibitor (or Blocker) to the Signalling of mutant cells...
socrates_8
in
MPN Voice
5 years ago
Researchers examine the metabolic effects of an oral blood cancer drug ~ RUXOLITINIB (Jakafi)
Post by MPN-MATE Admin » Wed Nov 13, 2019 11:14 am NOV. 12, 2019
Researchers examine the metabolic effects of an oral blood cancer drug...
by The Mount Sinai Hospital Hi guys... This report from the Mount Sinai Hospital is yet to be properly validated. However, many of us may have already read
Post by MPN-MATE Admin » Wed Nov 13, 2019 11:14 am NOV. 12, 2019
Researchers examine the metabolic effects of an oral blood cancer drug...
by The Mount Sinai Hospital Hi guys... This report from the Mount Sinai Hospital is yet to be properly validated. However, many of us may have already read
socrates_8
in
MPN Voice
5 years ago
Shortness of breath
I started anagrelide about 3 weeks ago, in addition to my
Jakafi
I’ve been taking for a while. Any thoughts?
I started anagrelide about 3 weeks ago, in addition to my
Jakafi
I’ve been taking for a while. Any thoughts?
Cja1956
in
MPN Voice
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Jakavi a Janus kinase inhibitor ; does anyone know about this Med for the treatment of CLL
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He is on a clinical trial. It’s approved for myelofibrosis, but now being used for CLL.
LovecuresCLL
in
CLL Support
5 years ago
Myelofibrosis
They want to put me on
JAKAFI
. Anybody else out there in my situation?
They want to put me on
JAKAFI
. Anybody else out there in my situation?
Jerrymohler
in
MPN Voice
5 years ago
Results from hematologist
I was just taking
Jakafi
and baby aspirin as I have PV. My platelets stayed the same, 668,000, but my rdw has increased to 30.4, which seems really high to me. My HGB is about the same at 9.6. So now he is putting me on anagrelide. He still doesn’t want me to take an iron supplement.
I was just taking
Jakafi
and baby aspirin as I have PV. My platelets stayed the same, 668,000, but my rdw has increased to 30.4, which seems really high to me. My HGB is about the same at 9.6. So now he is putting me on anagrelide. He still doesn’t want me to take an iron supplement.
Cja1956
in
MPN Voice
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
Kidney infection and jakafi
I read on line that UTIs are one of the side effects of
jakafi
. Has anyone else ever experienced this?. I’m not taking any other medication right now for my PV. Thanks in advance for any thoughts you may have.
I read on line that UTIs are one of the side effects of
jakafi
. Has anyone else ever experienced this?. I’m not taking any other medication right now for my PV. Thanks in advance for any thoughts you may have.
Cja1956
in
MPN Voice
5 years ago
Options when MF is advanced
I have been transfusion dependant for about 4 years, averaging 2 units about every 4 weeks. In the last six months I have been getting 2 units per week. Can't seem to get my HGB above low eighties and my platelets are around mid forties. Currently can't have iron chellation medication because of low
I have been transfusion dependant for about 4 years, averaging 2 units about every 4 weeks. In the last six months I have been getting 2 units per week. Can't seem to get my HGB above low eighties and my platelets are around mid forties. Currently can't have iron chellation medication because of low
47Robert
in
MPN Voice
5 years ago
Good news!
I also take 20 mgs of
Jakafi
every day. I have ET Jak2 positive and PV. Any thoughts?
I also take 20 mgs of
Jakafi
every day. I have ET Jak2 positive and PV. Any thoughts?
Cja1956
in
MPN Voice
5 years ago
Jakafi
Began
jakafi
3 weeks ago. Platelets went down to 80 and doctor told me to stop
jakafi
. Did that last night and experienced terrible stomach intestinal problems this morning. Has anyone out there had same experience?
Began
jakafi
3 weeks ago. Platelets went down to 80 and doctor told me to stop
jakafi
. Did that last night and experienced terrible stomach intestinal problems this morning. Has anyone out there had same experience?
USSpurdy
in
MPN Voice
5 years ago
Combining Pegasys and ruxolitinib (Jakafi) for MF: has anyone tried it?
Hi. I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the ruxolitinib I’m taking ( was inc to 20mg bd at end December to help the fatigue ( it didn’t) ( now back to 15mg bd) haunts me. I’ve already had one SCC excised from my face, as I’d posted, and a
Hi. I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the ruxolitinib I’m taking ( was inc to 20mg bd at end December to help the fatigue ( it didn’t) ( now back to 15mg bd) haunts me. I’ve already had one SCC excised from my face, as I’d posted, and a
Rachelthepotter
in
MPN Voice
5 years ago
I’ve had Polycythemia Vera for 10 years. Dr. suspects it is turning into Myleofibrosis
I have recently started taking
Jakafi
. I thought my red blood cells and hematocrit would go down, not up, if I truly have Myleofibrosis.
I have recently started taking
Jakafi
. I thought my red blood cells and hematocrit would go down, not up, if I truly have Myleofibrosis.
Cknight6
in
MPN Voice
5 years ago
Immune system compromised?
I’m taking Hydrea and my hemo just increased my
jakafi
a little over a month ago. Does anyone have any opinions on this? My symptoms just seem really confusing.
I’m taking Hydrea and my hemo just increased my
jakafi
a little over a month ago. Does anyone have any opinions on this? My symptoms just seem really confusing.
Cja1956
in
MPN Voice
5 years ago
High AST and alt levels
Does anyone know if this is a side effect of medication like hydroxy or
jakafi
? I am seeing my hematologist tomorrow to discuss it But I was just wondering if anyone else had that happen to them.
Does anyone know if this is a side effect of medication like hydroxy or
jakafi
? I am seeing my hematologist tomorrow to discuss it But I was just wondering if anyone else had that happen to them.
Cja1956
in
MPN Voice
5 years ago
Myelofibrosis - changing dose of rux and epo helps the fatigue
The good news is that I’d discovered that changing my dose of ruxoltinib (
Jakafi
) back to 15 mg bd ( it had been increased to 20mg bd from the new year, and that increase made me gain another 5kg in weight ( gaind that Instarts on rux - most people do, I was told ) and made me even more tired.) and
The good news is that I’d discovered that changing my dose of ruxoltinib (
Jakafi
) back to 15 mg bd ( it had been increased to 20mg bd from the new year, and that increase made me gain another 5kg in weight ( gaind that Instarts on rux - most people do, I was told ) and made me even more tired.) and
Rachelthepotter
in
MPN Voice
5 years ago
Indigestion and Jakavi?
12 weeks into Jakavi treatment I’m now experiencing very uncomfortable indigestion under my left side ribs. Is this a common problem?
12 weeks into Jakavi treatment I’m now experiencing very uncomfortable indigestion under my left side ribs. Is this a common problem?
Patchworklife
in
MPN Voice
5 years ago
Cost of Jakafi
I went to my doctor yesterday and since I’ve had hives and burning of the skin feeling hot he is going to try to switch me to
Jakafi
. The cost is unbelievable and the main assistance program out there said if you’re on Medicare you’re not eligible.
I went to my doctor yesterday and since I’ve had hives and burning of the skin feeling hot he is going to try to switch me to
Jakafi
. The cost is unbelievable and the main assistance program out there said if you’re on Medicare you’re not eligible.
1466
in
MPN Voice
5 years ago
Venesection control
I have discussed
jakafi
with my Haemotology team but they are sticking to hydroxy right now as it’s working on platelets. Although I am still not entirely happy on it as I’m 39 and still worry about the long term risks on it. Any ideas are most welcome. Cheers all Joe
I have discussed
jakafi
with my Haemotology team but they are sticking to hydroxy right now as it’s working on platelets. Although I am still not entirely happy on it as I’m 39 and still worry about the long term risks on it. Any ideas are most welcome. Cheers all Joe
Joerp
in
MPN Voice
5 years ago
I’m still new to this forum
Here I go again! Nine weeks and four days into treatment with Jakavi for MF I am experiencing some headaches, cold night sweating after three hours of sleep as well as weakness when walking and breathlessness. Is this normal?!
Here I go again! Nine weeks and four days into treatment with Jakavi for MF I am experiencing some headaches, cold night sweating after three hours of sleep as well as weakness when walking and breathlessness. Is this normal?!
Patchworklife
in
MPN Voice
5 years ago
1
...
7
8
9
...
12
Next page
10
Filter results
Clear filters
Posted in
All communities
MPN Voice
215 results
Fight MPN
7 results
CLL Support
4 results
Sort by
Most Relevant
Newest