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Smart Watches and ICD/Pacemakers
Just seen some online articles warning about potential interference but smart watches on icd/pacemakers. I haven't been warned about this by any medical staff at any point, only about the usual with mobile phones and scanners at airports etc. Anyone been advised to avoid smart watches or have any input
Just seen some online articles warning about potential interference but smart watches on icd/pacemakers. I haven't been warned about this by any medical staff at any point, only about the usual with mobile phones and scanners at airports etc. Anyone been advised to avoid smart watches or have any input
Bruce67
in
British Heart Foundation
2 months ago
What's it like getting a crtd / icd shock
Give me the unvarnished truth! 😆I'm 44, very fit, have a very high pain tolerance, want to here honest experiences about people who have had the big shock... Rather than the version from the doctor, who has never experienced it. I've heard it's like being punched in the chest. But punched by who? Mike
Give me the unvarnished truth! 😆I'm 44, very fit, have a very high pain tolerance, want to here honest experiences about people who have had the big shock... Rather than the version from the doctor, who has never experienced it. I've heard it's like being punched in the chest. But punched by who? Mike
Maradona10
in
British Heart Foundation
2 months ago
Guidance needed for decision making of implanting ICD
This year in January, I go the MRI done. My MRI reports are suggesting I have wall thickness of 18mm in mid anteroseptal segment, dyskinetic true apex (apical aneurysm) and LGE in basal to mid anterior and septal segments amounting to >30% total myocardial mass. The faulty gene identified is MYH7. I
This year in January, I go the MRI done. My MRI reports are suggesting I have wall thickness of 18mm in mid anteroseptal segment, dyskinetic true apex (apical aneurysm) and LGE in basal to mid anterior and septal segments amounting to >30% total myocardial mass. The faulty gene identified is MYH7. I
Surbhi28
in
British Heart Foundation
2 months ago
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Slight increase in stiffness after sitting down
Hi, I have been fortunate to get down to 1mg of pred without any flares. I am sticking at 1 for the time being as have a gyne appt Sat morning. ( a hysteroscopy- not with anaesthetic, just to replace a progesterone coil to protect the lining of the womb ) have had it before but looking forwards to getting
Hi, I have been fortunate to get down to 1mg of pred without any flares. I am sticking at 1 for the time being as have a gyne appt Sat morning. ( a hysteroscopy- not with anaesthetic, just to replace a progesterone coil to protect the lining of the womb ) have had it before but looking forwards to getting
Animalover65
in
PMRGCAuk
11 months ago
Recent ICD Fitted
I had an ICD fitted 2 weeks ago . I am still waking up breathless in the early hours most mornings. Has anybody experienced this? Does this settle down as ICD is new?
I had an ICD fitted 2 weeks ago . I am still waking up breathless in the early hours most mornings. Has anybody experienced this? Does this settle down as ICD is new?
ANDYDAMP
in
British Heart Foundation
2 months ago
Difficult to accept
two weeks since ICD fitted , out three times for very short walks and today Imblacked out, hitting my head which is bruised and cut. I am struggling to accept that’s mynheart attack/ failure is a serious as my wife is telling me. Can anyone kindly suggest anything that can help me come to terms with
two weeks since ICD fitted , out three times for very short walks and today Imblacked out, hitting my head which is bruised and cut. I am struggling to accept that’s mynheart attack/ failure is a serious as my wife is telling me. Can anyone kindly suggest anything that can help me come to terms with
JCDBARBRIDGE
in
British Heart Foundation
2 months ago
ICD insertion and went for Heart Transplant
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
MIS_G
in
British Heart Foundation
3 months ago
IV-ICD Lead failure follow up and advice on reducing infection risk #chinkoflight
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8221047/This is a follow up to a post a month ago on lead failure in my recent ICD implant (12/3/24). The EP pacing technicians had picked up a lead problem on the atrial pacing lead 4 weeks ago and three weeks after the device was implanted. On Wednesday
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8221047/This is a follow up to a post a month ago on lead failure in my recent ICD implant (12/3/24). The EP pacing technicians had picked up a lead problem on the atrial pacing lead 4 weeks ago and three weeks after the device was implanted. On Wednesday
Chinkoflight
in
Atrial Fibrillation Support
3 months ago
IV-ICD lead failure update.
IV-ICD intravenous implanted cardioverter defibrillator , in my case two lead with a pacing functionLead failure - a generic term used to describe any sort of lead related problem, broken, loose, cracked etc HTFAGE * Hi this is another missive from me. Hopefully there are some grains of usefulness.
IV-ICD intravenous implanted cardioverter defibrillator , in my case two lead with a pacing functionLead failure - a generic term used to describe any sort of lead related problem, broken, loose, cracked etc HTFAGE * Hi this is another missive from me. Hopefully there are some grains of usefulness.
Chinkoflight
in
British Heart Foundation
3 months ago
Scared
CA 6yrs ago, afib started 3yrs ago, 5 cardioversions, 2 ablations, 3 weeks ago my ICD kicked in again at night, thought it was a dreadful nightmare but it was real. no driving again for 6 months, blood tests, Cardiac MRI next week, 24 hrs heart monitor early June, taken off bisoprolol 20mg now on sotatol
CA 6yrs ago, afib started 3yrs ago, 5 cardioversions, 2 ablations, 3 weeks ago my ICD kicked in again at night, thought it was a dreadful nightmare but it was real. no driving again for 6 months, blood tests, Cardiac MRI next week, 24 hrs heart monitor early June, taken off bisoprolol 20mg now on sotatol
Driver11
in
British Heart Foundation
3 months ago
Persistent afib treatment options, can't tolerate Amiodarone - so many questions...
I'm feeling rather lost at sea, I have so many unknows and questions so I'm sorry if this is a bit messy. Think I'm looking for your experiences and help with what I should ask the cardiologist about/for. BTW we live in the England so NHS. In short... Persistent new onset afib (always bradycardia) since
I'm feeling rather lost at sea, I have so many unknows and questions so I'm sorry if this is a bit messy. Think I'm looking for your experiences and help with what I should ask the cardiologist about/for. BTW we live in the England so NHS. In short... Persistent new onset afib (always bradycardia) since
Efka
in
Atrial Fibrillation Support
3 months ago
How long for the intense pain of an ICD install to ease?
Had my ICD installation this morning. Oh my days, it feels like I have a spear through my shoulder ( or how I imagine that would feel anyway!) Consultant said worst pain lasts a week, please tell me he exaggerated, and it won't be too bad in a few days 🤔
Had my ICD installation this morning. Oh my days, it feels like I have a spear through my shoulder ( or how I imagine that would feel anyway!) Consultant said worst pain lasts a week, please tell me he exaggerated, and it won't be too bad in a few days 🤔
Bruce67
in
British Heart Foundation
3 months ago
recovering after ICD shock - advice about the future
I recently received a shock from my ICD at a mainline station in London and spent 2 nights in hospital. My device went off as I was in tachycardia which was 240-260 beats. My condition had been well controlled, following treatment about 8 years ago. I’ve always been an active person doing weights, cycling
I recently received a shock from my ICD at a mainline station in London and spent 2 nights in hospital. My device went off as I was in tachycardia which was 240-260 beats. My condition had been well controlled, following treatment about 8 years ago. I’ve always been an active person doing weights, cycling
ShaneDullerhit
in
British Heart Foundation
3 months ago
I am 53 and require an ICD
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
I am 53 and require an ICD and scared but also want and need to continue an active life. Currently in Atrial Fibrillation and a degree of heart block. I also have a cardiac Gene that causes issues with conduction and cardiomyopathy. Looking for reassurance and normality and would like to live till at
Pottsgene
in
Heart Rhythm Disorders Support
3 months ago
My Gabapentin Dilemma
Help! I need some advice regarding my Gabapentin treatments. This is my first post so I hope I don’t ramble too much. I’m over 70 years old with RLS for over 30-40 years. Fortunately I don’t have RLS attacks during the day but have them almost every night after I fall asleep. On high doses of Gabapentin
Help! I need some advice regarding my Gabapentin treatments. This is my first post so I hope I don’t ramble too much. I’m over 70 years old with RLS for over 30-40 years. Fortunately I don’t have RLS attacks during the day but have them almost every night after I fall asleep. On high doses of Gabapentin
Sleepless82
in
Restless Legs Syndrome
3 months ago
Endo and Mirena
Hi everyone, I was diagnosed with endometriosis in 2017 but this is the first time I’ve joined anything like this. Feeling really fed up with my symptoms and thought it would be a good idea to link up with fellow endo warriors 🤗. I recently had a Mirena coil fitted in order to stop my periods, with
Hi everyone, I was diagnosed with endometriosis in 2017 but this is the first time I’ve joined anything like this. Feeling really fed up with my symptoms and thought it would be a good idea to link up with fellow endo warriors 🤗. I recently had a Mirena coil fitted in order to stop my periods, with
MonieBL
in
Endometriosis UK
11 months ago
Heart Failure
I've had afib for many years now its become permanent despite 3 ablations I have developed heart failure as well Im on Jardiance for this but I'm worried because I've read that permanent afib with heart failure can cause cardiac arrest does anyone know if that's true as I also have had 2 stents fitted
I've had afib for many years now its become permanent despite 3 ablations I have developed heart failure as well Im on Jardiance for this but I'm worried because I've read that permanent afib with heart failure can cause cardiac arrest does anyone know if that's true as I also have had 2 stents fitted
fairgo45
in
British Heart Foundation
3 months ago
15% Ejection fraction and feel well.
Hi I saw my cardiologist today who told me my EF had dropped from 47% to 15 % in just under 3 years. This was measured by MRI. I am on the normal drugs Apixaban Entresto Dysopiramide. I’m well, still work and walk regularly. Within normal weight range. I have been diagnosed with HOCM for 35 years and
Hi I saw my cardiologist today who told me my EF had dropped from 47% to 15 % in just under 3 years. This was measured by MRI. I am on the normal drugs Apixaban Entresto Dysopiramide. I’m well, still work and walk regularly. Within normal weight range. I have been diagnosed with HOCM for 35 years and
Crochetbaby
in
British Heart Foundation
3 months ago
Ablation/S-ICD Recovery Time - why is it taking so long?
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
Bit of a long one… Hi all, I’m currently recovering from a 4 week hospital stay and struggling with the recovery period. I was admitted for investigation due to a high burden of PVCs which were making me very symptomatic. I had a previous diagnosis of low burden of PVCs, as well as mild dilated cardiomyopathy
AspiringVet
in
Heart Rhythm Disorders Support
3 months ago
hysterectomy?
hello ladies Can I ask those have had a hysterectomy have any of you regretted the decision to have one? I am due to have on next month due to fibroids and heavy bleeding, but my symptoms have drastically improved in the last 9-12 months as I had a Merina coil fitted whilst I have been waiting for
hello ladies Can I ask those have had a hysterectomy have any of you regretted the decision to have one? I am due to have on next month due to fibroids and heavy bleeding, but my symptoms have drastically improved in the last 9-12 months as I had a Merina coil fitted whilst I have been waiting for
Toddyboy12
in
Menopause and Perimenopause Support
11 months ago
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