Update appointment : Hi all, Been on 90mg pegasys... - MPN Voice

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Update appointment

Jody00 profile image
7 Replies

Hi all,

Been on 90mg pegasys interferon alpha 4 weeks now ,no side effects apart from a little cold tired after I've inject myself,after few days a do feel good in myself,my tinglings are still here in my feet not such much in my hands comes and goes,still get slightly headaches which I take paracetamols and still get wozzy feeling ever so often ,a do get likd a flutterings in bottom of my stomach what never had before?,Had my appointment 27th January my platelets gone down to 545 from 812 ,Hb 141 gone up bit more than what normal is 131, WBC gone down to 5.4 normal around 8.8 after a week 2 days started on pegasys interferon ,my next appointment on the 13th of February if all well then next appointment be in a month time .

Thankyou

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Jody00
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7 Replies
hunter5582 profile image
hunter5582

That is a nice PLT response n a very short time. It sounds like you are tolerating the 90mcg dose with some minor side effects. Wishing you success in this stage of your journey. Looking forward to the next report of your progress.

Jody00 profile image
Jody00 in reply tohunter5582

Thankyou again hunter xx

Exeter21 profile image
Exeter21

sounds good Jody . I had to reduce my dose as had bad headaches but feel this drug is good & easier than tablets as Hydroxy creased my digestive tract & body hated it.

Interferon I get really cold I can almost feel the change an hour after injection . 24 hrs very shivery then ok 👍. I do get those strange fluttering s you mention which seem to reduce as the drug is in body longer . I will ask the cause on my next blood checks . Julia 👌

Jody00 profile image
Jody00

Hi

Yes I get very similar to what u are experiencing and am glad now u feeling better on this drug now u have reduce your dose.My appointment is on the 13th I am going to ask the question aswell I will let u know if anything by it comes out,like u it just could be till we get used too has our stomachs not been injected before so could be soo but I will let u know .xx

Mirror368 profile image
Mirror368

Seems that I have read a lot of people start on 45 mcg weekly and some 45 mcg every two weeks before increasing dosage.

Please keep updating us as a lot of us taking HU are very interested in Pegasys experiences.

Best wishes, Eileen

Jody00 profile image
Jody00

Thankyou I've just posted an update but yew this does makes sense to Mr what u have just replied. Xx

Jody00 profile image
Jody00

A mean me sorry its my keypad on my phone

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