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Interferon
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A Conversation with an MPN Specialist: Interferon: Why and How it Works in MPN Patients
I found this great Youtube video - https://youtu.be/rHnj1Q-T1FE. Fantastic information in the Q&A section as well. Well worth the watch. Answered many questions.
I found this great Youtube video - https://youtu.be/rHnj1Q-T1FE. Fantastic information in the Q&A section as well. Well worth the watch. Answered many questions.
RyanCB
in
MPN Voice
1 year ago
Hello hello friends all the best for 2023.
I'm feeling very low right now a side effect others have experienced on
interferon
. Local GPs are not available for apps till mid January but l have reached out to the hematogist nurse who will gopefully respond soon . Thank you
I'm feeling very low right now a side effect others have experienced on
interferon
. Local GPs are not available for apps till mid January but l have reached out to the hematogist nurse who will gopefully respond soon . Thank you
Hidden
in
MPN Voice
1 year ago
Hairloss
I've discussed with my consultant and I'm planning on changing medication to Anagrelide or
Interferon
, for this reason. Hope I'm making the right decision!
I've discussed with my consultant and I'm planning on changing medication to Anagrelide or
Interferon
, for this reason. Hope I'm making the right decision!
Sivasi
in
MPN Voice
1 year ago
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Hormones?
Anyone out there on birth control or any type of hormone? I think between a phlebotomy I had about a month ago and Besremi have thrown my hormones off. I have been on my cycle almost a month. I am perimenopausal being 41, but been reading a lot about interferons and the affect on menstrual cycles.
Anyone out there on birth control or any type of hormone? I think between a phlebotomy I had about a month ago and Besremi have thrown my hormones off. I have been on my cycle almost a month. I am perimenopausal being 41, but been reading a lot about interferons and the affect on menstrual cycles.
KLCTJC
in
MPN Voice
11 months ago
New treatment
Hi ,started My new treatment yesterday 90mg pegasys
interferon
alpha injection in my stomach still take 1 aspirin aday,my platelets count just below 900 at moment says will take a,few weeks for it to work got few symptoms nothing major so far,going see me once a week for now to take bloods and see Dr
Hi ,started My new treatment yesterday 90mg pegasys
interferon
alpha injection in my stomach still take 1 aspirin aday,my platelets count just below 900 at moment says will take a,few weeks for it to work got few symptoms nothing major so far,going see me once a week for now to take bloods and see Dr
Jody00
in
MPN Voice
1 year ago
Pv and Pegusus interferon
Hello my dears lm struggling with body pain and it's been suggested to me that Ayurveda massage may help. Has anyone had this kind of massage is it OK ?Adiewon
Hello my dears lm struggling with body pain and it's been suggested to me that Ayurveda massage may help. Has anyone had this kind of massage is it OK ?Adiewon
Hidden
in
Women's Health
1 year ago
Starting Pegasys Friday
Currently on Hydroxurea (1500mg per day) and transitioning to
interferon
on Friday. The plan is to still take one pill of Hydrea a day and start with an
interferon
dose of 45mcg.
Currently on Hydroxurea (1500mg per day) and transitioning to
interferon
on Friday. The plan is to still take one pill of Hydrea a day and start with an
interferon
dose of 45mcg.
Zeppelin11
in
MPN Voice
1 year ago
Just saw MPN Specialist | ET+CALR
He agreed that
Interferon
(Pegasys) is the best treatment at this point. I asked him about Besremi and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So Pegasys is fine.
He agreed that
Interferon
(Pegasys) is the best treatment at this point. I asked him about Besremi and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So Pegasys is fine.
Zeppelin11
in
MPN Voice
1 year ago
Peg interferon
Now she wants me take 135mcg of peg
interferon
from the next 3 wks to see if things improve. Has anyone taken that much. What are side effects & idea of recovery time. Am a bit worried to be honest. Thanks Kev
Now she wants me take 135mcg of peg
interferon
from the next 3 wks to see if things improve. Has anyone taken that much. What are side effects & idea of recovery time. Am a bit worried to be honest. Thanks Kev
keviekev
in
MPN Voice
1 year ago
would it matter if
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my
interferon
pegasys injections was delayed by a day or so? have a great Christmas everyone….
hi everyone, we are spending Xmas in Italy for a couple of days, and just wondering…..if our flight back hits and cancellations coming back, would it matter if my
interferon
pegasys injections was delayed by a day or so? have a great Christmas everyone….
Yvette49
in
MPN Voice
1 year ago
Hello friend
Thanks for your insights about
interferon
very much appreciated and l will certainly read about the side effects of both myalgia and arthralgia.
Thanks for your insights about
interferon
very much appreciated and l will certainly read about the side effects of both myalgia and arthralgia.
Hidden
in
MPN Voice
1 year ago
Potential adverse effects of long-term venesection used to treat PV.
I got curious after watching the Richard Silver presentation that was recently posted on the forum. Dr. Silver quoted some potential adverse effects from long-term use of venesection (AKA phlebotomy) to manage PV. I had seen those findings previously in the literature. I have also experienced some
I got curious after watching the Richard Silver presentation that was recently posted on the forum. Dr. Silver quoted some potential adverse effects from long-term use of venesection (AKA phlebotomy) to manage PV. I had seen those findings previously in the literature. I have also experienced some
hunter5582
in
MPN Voice
1 year ago
1st patient enrolled in global Phase 2 trial of daxdilimab for lupus
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
Study to test safety, efficacy of Horizon's lupus nephritis treatment by Steve Bryson PhD | May 18, 2023 A woman speaks with a megaphone in this announcement illustration. A Phase 2 trial evaluating the safety and efficacy of daxdilimab, a potentially first-in-class treatment for people with active
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Phase 2 Trial Tests Daxdilimab as Potential DLE Therapy
Still, they also can worsen certain autoimmune diseases like lupus, whereby high
interferon
is a sign of DLE or SLE activity.
Still, they also can worsen certain autoimmune diseases like lupus, whereby high
interferon
is a sign of DLE or SLE activity.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Ventus to Advance cGAS Inhibitor as New Treatment for Lupus
VENT-03 was designed to inhibit cGAS so as to diminish this damaging activation of the
interferon
pathways. It was developed using ReSOLVE, Ventus’ drug discovery platform.
VENT-03 was designed to inhibit cGAS so as to diminish this damaging activation of the
interferon
pathways. It was developed using ReSOLVE, Ventus’ drug discovery platform.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Medication choices after hydroxyurea
I've posted before about the challenges associated with HU and my own efforts to keep my sensitive digestive tract happy over the last 2 plus years. Unfortunately, this past week was a bit challenging with every possible bad digestive tract issue presenting itself. I'm on the mend but have to accept
I've posted before about the challenges associated with HU and my own efforts to keep my sensitive digestive tract happy over the last 2 plus years. Unfortunately, this past week was a bit challenging with every possible bad digestive tract issue presenting itself. I'm on the mend but have to accept
saltmarsh
in
MPN Voice
1 year ago
A very special interview with Nona Baker Co Chair of MPN Voice & Professor Claire Harrison
In this interview Professor Claire Harrison shares breaking news with up to date results from the MAJIC PV Study. Following a recent media article it also clarifies and reassures the importance of existing, very successful therapies such as Hydroxycarbamide and Interferons, which are used and reviewed
In this interview Professor Claire Harrison shares breaking news with up to date results from the MAJIC PV Study. Following a recent media article it also clarifies and reassures the importance of existing, very successful therapies such as Hydroxycarbamide and Interferons, which are used and reviewed
Debinha
Administrator
in
MPN Voice
1 year ago
Thank You For PegInterferon Rash Info
Stopping
interferon
will clear it up but that's not going to happen. :) Only concern thus far is not sure about getting another biopsy on shin. The dermatologist started the procedure with a pain shot to numb the area. It was extremely painful.
Stopping
interferon
will clear it up but that's not going to happen. :) Only concern thus far is not sure about getting another biopsy on shin. The dermatologist started the procedure with a pain shot to numb the area. It was extremely painful.
Mishie14
in
MPN Voice
1 year ago
Autoject for Copaxone discontinued—ARGH!!
Initially, I chose it because it was the only non-
interferon
medication available, which I thought would allow me to live my most normal life because there would be no flu-like symptoms. AND there was an autoject available, which made giving myself a daily shot possible, in fact a no-brainer.
Initially, I chose it because it was the only non-
interferon
medication available, which I thought would allow me to live my most normal life because there would be no flu-like symptoms. AND there was an autoject available, which made giving myself a daily shot possible, in fact a no-brainer.
MrStripey
in
My MSAA Community
9 months ago
Recombinant Interferon-β in the Treatment of Polycythemia Vera
Treatment with
interferon
(IFN) alpha-2 normalizes elevated blood cell counts within weeks to months. This treatment has been used off-label over the last 30 years. Today, a novel
interferon
alpha-2b formulation (Besremi) is marketed for treatment of the MPN disease polycythemia vera.
Treatment with
interferon
(IFN) alpha-2 normalizes elevated blood cell counts within weeks to months. This treatment has been used off-label over the last 30 years. Today, a novel
interferon
alpha-2b formulation (Besremi) is marketed for treatment of the MPN disease polycythemia vera.
Manouche
in
MPN Voice
1 year ago
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