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Experiences with
Interferon
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Cataract surgery?
Is there a problem with eye surgery while taking
Interferon
? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Is there a problem with eye surgery while taking
Interferon
? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
3 months ago
Allele Burden JAK 2
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
shiftzz
in
MPN Voice
7 days ago
Treatment Change, question
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
Swim360
in
MPN Voice
1 month ago
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ET, platelets and stroke risk
I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-
interferon
.
I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-
interferon
.
Ginevra
in
MPN Voice
4 months ago
Still undecided about Inteferon
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
jodary
in
MPN Voice
1 month ago
Pegasus - how long to work
For those taking it, I just wondered what your experience was when first taking Pegasus
Interferon
. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started
interferon
injections). Red and white also elevated. White only just though.
For those taking it, I just wondered what your experience was when first taking Pegasus
Interferon
. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started
interferon
injections). Red and white also elevated. White only just though.
Fivecatsandcounting
in
MPN Voice
5 months ago
Best treatment for Post PV/MF ?
Ruxolitinib or
interferon
? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
Ruxolitinib or
interferon
? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
MCW22
in
MPN Voice
3 months ago
Beta-2 microglobulin
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with
interferon
? If yes, has been confirmed by MD that it is caused by
interferon
? Thank you in advance for your answers.
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with
interferon
? If yes, has been confirmed by MD that it is caused by
interferon
? Thank you in advance for your answers.
Dane12
in
MPN Voice
7 months ago
supplements with essential thrombocyethemia
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated
interferon
for a number of years.
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated
interferon
for a number of years.
BeckyDing
in
MPN Voice
6 days ago
Mithridate trial
I started peg
interferon
in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing venesection every 6 weeks .
I started peg
interferon
in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing venesection every 6 weeks .
Blonde25
in
MPN Voice
15 days ago
Probiotics.
Can anyone tell me if I can take probiotics with
interferon
. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
Can anyone tell me if I can take probiotics with
interferon
. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
lindyloulou
in
MPN Voice
5 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
MazzaP74
in
Fight MPN
7 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
MazzaP74
in
MPN Voice
7 months ago
Bloods unstable
I've been told to increase my
interferon
from 90 micrograms to 135 micrograms and to take the higher dose every other week until I've used up my 90 microgram dose that I have left.
I've been told to increase my
interferon
from 90 micrograms to 135 micrograms and to take the higher dose every other week until I've used up my 90 microgram dose that I have left.
Blonde25
in
MPN Voice
6 months ago
Interferon effects
I thought
interferon
achieves full potential in 48 weeks ? Or I misread and it meant 4 to 8 weeks ? Thank you
I thought
interferon
achieves full potential in 48 weeks ? Or I misread and it meant 4 to 8 weeks ? Thank you
kamiilos
in
MPN Voice
7 months ago
Approved or Trials of RBC lowering drugs?
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
jon1972
in
MPN Voice
2 months ago
Hyperthyroid update
I was put on carbi for 18months after which, nothing until after almost a year of
interferon
injections for ET ( MPN) in 2021. I had not realised before or even put two and two together.
I was put on carbi for 18months after which, nothing until after almost a year of
interferon
injections for ET ( MPN) in 2021. I had not realised before or even put two and two together.
LadyAbash
in
Thyroid UK
4 months ago
Starting dose for pegasys?
My illness is showing symptoms of masked PV and we are now starting pegasys
interferon
, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
My illness is showing symptoms of masked PV and we are now starting pegasys
interferon
, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
Ninete
in
MPN Voice
19 days ago
ET + Anagrelide
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
Zeppelin11
in
MPN Voice
24 days ago
Interferon and Hypothyroidism
What I am worried about is if on
interferon
and they are monitoring my thyroid and my result changes but is still in their range they will say it’s normal and I won’t be feeling well. And I wont know if it’s the
interferon
or my thyroid.
What I am worried about is if on
interferon
and they are monitoring my thyroid and my result changes but is still in their range they will say it’s normal and I won’t be feeling well. And I wont know if it’s the
interferon
or my thyroid.
jodary
in
MPN Voice
6 months ago
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