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Experiences with
Interferon beta-1b
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Hydroxicarbamide to interferon
Morning all. I may have to change from HU after 12 years ( suits me fine but is now possibly causing bcc’s ) to interferon. Has anyone else migrated from hydroxicarbamide to interferon and had any reactions? I think it’s a case of sticking with HU and risking having a face like a road map but feeling
Morning all. I may have to change from HU after 12 years ( suits me fine but is now possibly causing bcc’s ) to interferon. Has anyone else migrated from hydroxicarbamide to interferon and had any reactions? I think it’s a case of sticking with HU and risking having a face like a road map but feeling
Loubprv
Volunteer
in
MPN Voice
3 years ago
Enlarged Spleen
I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good except for a white cell count of 21. However, my “blasts” are at 18%. I am not experiencing any major symptoms except for an enlarged Spleen that currently measures 28 cams, which is large. The Ruxolitinib is not reducing it
I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good except for a white cell count of 21. However, my “blasts” are at 18%. I am not experiencing any major symptoms except for an enlarged Spleen that currently measures 28 cams, which is large. The Ruxolitinib is not reducing it
billybrock
in
MPN Voice
3 years ago
FDA Issues Complete Response Letter for Ropeginterferon Alfa-2b for Polycythemia Vera
The FDA has issued a complete response letter regarding the biologics license application for ropeginterferon alfa-2b-njft for the treatment of patients with polycythemia vera. The FDA has issued a complete response letter (CRL) regarding the biologics license application (BLA) for ropeginterferon alfa
The FDA has issued a complete response letter regarding the biologics license application for ropeginterferon alfa-2b-njft for the treatment of patients with polycythemia vera. The FDA has issued a complete response letter (CRL) regarding the biologics license application (BLA) for ropeginterferon alfa
JT_Marlin
in
MPN Voice
3 years ago
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Question for those taking PEG Interferon
After taking 135mcg of PEG Interferon since January 2020 (just over a year) my Haematocrit level is still high at 48 (all other counts are now OK - Platelets down from over 1000 to 300) My consultant wants to increase dosage to 180mcg for next two months Is anyone else taking this sort of dose .... I
After taking 135mcg of PEG Interferon since January 2020 (just over a year) my Haematocrit level is still high at 48 (all other counts are now OK - Platelets down from over 1000 to 300) My consultant wants to increase dosage to 180mcg for next two months Is anyone else taking this sort of dose .... I
Tylerdog1
in
MPN Voice
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
If you have a form of autoimmune or inflammatory arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from the American College of Rheumatology. Learn more about our FREE COVID-19 Patient Support
If you have a form of autoimmune or inflammatory arthritis or take immunosuppressant medication, chances are you’ve had questions about getting a COVID-19 vaccine. Here are some answers from a new resource from the American College of Rheumatology. Learn more about our FREE COVID-19 Patient Support
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Unnumbered post YOU and I are supposed to get worse 19 Feb 2021
Good morning beloved ms family. I hope everybody is as well as can be expected and it continues for "YOU" As we all know I am a HUGE believer in Disease-Modifying Therapy (DMT)), It is strong medicine, there might be side effects. Learn to cope and avoid them. This is a serious long term illness
Good morning beloved ms family. I hope everybody is as well as can be expected and it continues for "YOU" As we all know I am a HUGE believer in Disease-Modifying Therapy (DMT)), It is strong medicine, there might be side effects. Learn to cope and avoid them. This is a serious long term illness
RoyceNewton
in
My MSAA Community
3 years ago
update after seeing a specialist
Its been awhile so I just wanted to give an update and maybe I can help someone else. I was diagnosed back in September with ET CALR type 1. I was asymptomatic with platelets in the 600's (now 700's) found on a routine blood work up. I saw two local hematologists that I was not comfortable with so
Its been awhile so I just wanted to give an update and maybe I can help someone else. I was diagnosed back in September with ET CALR type 1. I was asymptomatic with platelets in the 600's (now 700's) found on a routine blood work up. I saw two local hematologists that I was not comfortable with so
mother2britton
in
MPN Voice
3 years ago
Treatment options, location.
Does anyone have a definitive list of counties in the UK that prescribe peg interferon on the NHS without having to aquire funding. It's a lottery as to whether you can access this drug depending on where you live. Unfortunately I can't access it here in Merseyside, but if I lived down the road in Cheshire
Does anyone have a definitive list of counties in the UK that prescribe peg interferon on the NHS without having to aquire funding. It's a lottery as to whether you can access this drug depending on where you live. Unfortunately I can't access it here in Merseyside, but if I lived down the road in Cheshire
conno61
in
MPN Voice
3 years ago
Nanoparticles STING tumors (details at 11..LOL), Radioactive bone cement, New Prostate Cancer test could avoid 1/3rd of unnecessary biopsies
Greetings FPC fans. A new nanoparticle drug can stimulate the body's immune system and make it more effective at fighting off tumors through stimulation of the STING system. STING-stimulator of interferon genes is discussed below-part of the innate immune system.... https://en.wikipedia.org/wiki/Stimulator_of_interferon_genes
Greetings FPC fans. A new nanoparticle drug can stimulate the body's immune system and make it more effective at fighting off tumors through stimulation of the STING system. STING-stimulator of interferon genes is discussed below-part of the innate immune system.... https://en.wikipedia.org/wiki/Stimulator_of_interferon_genes
NPfisherman
in
Fight Prostate Cancer
3 years ago
Asthma may heighten flu risk and cause dangerous mutations.
Influenza virus has a high mutation rate, such that within one host different viral variants can emerge. Evidence suggests that influenza virus variants are more prevalent in pregnant and/or obese individuals due to their impaired interferon response. We have recently shown that the non-allergic, paucigranulocytic
Influenza virus has a high mutation rate, such that within one host different viral variants can emerge. Evidence suggests that influenza virus variants are more prevalent in pregnant and/or obese individuals due to their impaired interferon response. We have recently shown that the non-allergic, paucigranulocytic
2greys
in
Lung Conditions Community Forum
3 years ago
Tiredness
Hi all I hope everyone is staying safe and well? Just a question that I hope you might be able to help me with I have ET and on interferon I have been advised recently that my platelets are dropping below where they should be and have since had my peg dropped to fortnightly to see if this helps
Hi all I hope everyone is staying safe and well? Just a question that I hope you might be able to help me with I have ET and on interferon I have been advised recently that my platelets are dropping below where they should be and have since had my peg dropped to fortnightly to see if this helps
Gunner73
in
MPN Voice
3 years ago
Interferon Injection
Hello. Over five weeks ago I have been placed on Interferon Alpha Injections. At this moment I am only taking half the dosage . Then I have to change the needle the following week and use the other half of the dosage. The needle is slightly larger than the normal needle that is in the packet. I have
Hello. Over five weeks ago I have been placed on Interferon Alpha Injections. At this moment I am only taking half the dosage . Then I have to change the needle the following week and use the other half of the dosage. The needle is slightly larger than the normal needle that is in the packet. I have
vegas22
in
MPN Voice
3 years ago
Start interferon or "watch and wait"?
First, thank you to all who have reached out to me this last week since I joined the forum. Your kindness has truly helped me come to terms with all this. I have my first meeting with my MPN specialist coming up soon. He will be giving me the results of the genetic testing to see which driver mutation
First, thank you to all who have reached out to me this last week since I joined the forum. Your kindness has truly helped me come to terms with all this. I have my first meeting with my MPN specialist coming up soon. He will be giving me the results of the genetic testing to see which driver mutation
cmc_ufl
in
MPN Voice
3 years ago
Pain aches interferon
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Dovme
in
Fight MPN
3 years ago
HU versus Interferon - choices, timing of switch and other related decisions
Hello, I am jak 2 positive calr negative person who has polycythemia Vera as well as GCA. Was diagnosed 2 years ago when I had abnormally high platelet count and hemoglobin and am on HU since then ,500 mg everyday of the week. Initially did 3-4 phlebotomies. Currently all blood parameters are perfect
Hello, I am jak 2 positive calr negative person who has polycythemia Vera as well as GCA. Was diagnosed 2 years ago when I had abnormally high platelet count and hemoglobin and am on HU since then ,500 mg everyday of the week. Initially did 3-4 phlebotomies. Currently all blood parameters are perfect
Iwillwin123
in
MPN Voice
3 years ago
Change from Hydroxy to Interferon
Good morning, would love to hear looking from patients who have moved from Hydroxy to Interferon. I am 48 and been on hydroxy for 4 years but my consultant is now suggesting moving over to interferon. I am a bit reluctant to change my treatment and deal with potential new side effects and learn to self
Good morning, would love to hear looking from patients who have moved from Hydroxy to Interferon. I am 48 and been on hydroxy for 4 years but my consultant is now suggesting moving over to interferon. I am a bit reluctant to change my treatment and deal with potential new side effects and learn to self
Belgobrit72
in
MPN Voice
3 years ago
Weekly Pegasys and COVID vaccine
Hi folks Quick question; has anyone had vaccine on weekly interferon injections? If so does it present issues? Apparently people are being asked if they’ve had any injections in the last seven days. Thanks Pete
Hi folks Quick question; has anyone had vaccine on weekly interferon injections? If so does it present issues? Apparently people are being asked if they’ve had any injections in the last seven days. Thanks Pete
PT99
in
MPN Voice
3 years ago
Interferon therapy in the management of myeloproliferative neoplasms
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Manouche
in
MPN Voice
3 years ago
hepatitis Delta
Someone with suprainfection of hepatitis B and D chronic?Is there any treatment available on market or the fight is already lost for me?Feel so sad,the whole world crashed on me..feel so weak.After one year of Pegasys interferon ,i found out that i m in f3 stage of fibrosis,with an 1.47 Fib4score.I feel
Someone with suprainfection of hepatitis B and D chronic?Is there any treatment available on market or the fight is already lost for me?Feel so sad,the whole world crashed on me..feel so weak.After one year of Pegasys interferon ,i found out that i m in f3 stage of fibrosis,with an 1.47 Fib4score.I feel
ionutz79
in
British Liver Trust
3 years ago
Can we prevent, slow or halt, improve symptoms and reduce the severity of Parkinson's?
"Some things from the past are gone but others open a gap to the future and they are the ones I want to rescue." Mario Benedetti Current Neurology, which has made undeniable advances against Parkinson's, tells us that the disease is degenerative and symptoms are getting worse over the years, despite
"Some things from the past are gone but others open a gap to the future and they are the ones I want to rescue." Mario Benedetti Current Neurology, which has made undeniable advances against Parkinson's, tells us that the disease is degenerative and symptoms are getting worse over the years, despite
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
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