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Experiences with
Idiopathic thrombocytopenic purpura (ITP)
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Communities
5 public communities
JIA-at-NRAS
392 members
This community is for anyone affected by the condition, Juvenile Idiopathic Arthritis (JIA). It is run by the National Rheumatoid Arthritis Society (NRAS) and HealthUnlocked and exists to help you find support and information from other people living with or affected by JIA. This is an independent, patient led, forum so please take time to read our community guidelines which you can read under ‘Pinned Posts’. NRAS are a UK based charity providing support, information, and advocacy for people with juvenile idiopathic arthritis and rheumatoid arthritis, their families, friends, and carers. Our vision is for everyone with JIA (Juvenile Idiopathic Arthritis) and RA (Rheumatoid Arthritis) to be able to live their life to the full. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines: 0800 298 7650 or email helpline@nras.org.uk Free information booklets are available for download or to order as hardcopy from our online shop, visit www.jia.org.uk/shop to get your copies of JIA Explained, Managing JIA in schools, Medicines in Juvenile Idiopathic Arthritis.
NRAS
36,995 members
Welcome to the community for people with rheumatoid arthritis (RA). This is run by the National Rheumatoid Arthritis Society (NRAS) and exists to help you find support and information from other people living with RA. You may be newly diagnosed or have had RA for some time or you might not have a diagnosis yet - everyone is welcome! NRAS also support people with juvenile idiopathic arthritis (JIA) and other forms of inflammatory arthritis. NRAS is a UK based charity providing support, information and advocacy for people with rheumatoid arthritis and juvenile idiopathic arthritis, their families, friends and carers. Our vision is for everyone with RA to be able to live the life they want to. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines. We also have a huge range of free information booklets available to order or download from our website.
ITP Support Association
4,118 members
Registered UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views expressed are those of individuals & not the ITP Support Association. The content on the ITP Support Association Healthunlocked Group does not replace the relationship between you and doctors or other healthcare professionals NOR the advice you receive from them. Joining or following this Healthunlocked Group or any of the social network platforms made available by the ITP Support Association does not mean that this makes such followers of any of these social network platforms a MEMBER of the ITP Support Association itself. Membership of the Association can be arranged separately via the main ITP Support Association website at www.itpsupport.org.uk
Vasculitis UK
7,826 members
Vasculitis UK is the UK's number one Vasculitis charity, run by people with Vasculitis for people with Vasculitis. We promote a national network of support groups, have a website, social media resources and a near 24 hour helpline that all help the trust to achieve its aims; offering support to sufferers, their families and friends both at home and abroad by providing information, advice and the means to contact each other. We work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of Vasculitis. We raise awareness of Vasculitis among medical professions and the general population. We encourage and support the formation and development of local independant Vasculitis support groups. We raise funds in order to support research into the causes and effects of vasculitis, into improvements in the diagnosis of vasculitis and into the treatment of people suffering from all the different types of vasculitis.
Lung Conditions Community Forum
55,843 members
Welcome to Asthma + Lung UK's Lung conditions community forum which is a place for you to share your experience and hear from other people to support you with whatever question you have about lung conditions. There are over 50,000 members on the forum so chances are, someone has been where you are.