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Ibrutinib
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Secondary cancer?
Been on
Ibrutinib
and venetoclax for 4 months and doing very well. My wbc is down but just had a mammogram and need more testing as something suspicious has shown up. Just curious. Thanks
Been on
Ibrutinib
and venetoclax for 4 months and doing very well. My wbc is down but just had a mammogram and need more testing as something suspicious has shown up. Just curious. Thanks
Ninagram
in
CLL America Support
6 years ago
Ibrutinib and NHSE current position.
Every consultant/clinician stated the best treatment for me is
Ibrutinib
.
Every consultant/clinician stated the best treatment for me is
Ibrutinib
.
Mick491
in
CLL Support
6 years ago
Blood Orange and Ibrutinib
Do you think these are ok to have when I’m on
Ibrutinib
? I’d only be using the maximum of two per day and not near the time I take my
Ibrutinib
at 10.30pm. Thank you. Cindy.
Do you think these are ok to have when I’m on
Ibrutinib
? I’d only be using the maximum of two per day and not near the time I take my
Ibrutinib
at 10.30pm. Thank you. Cindy.
Cindy1462
in
CLL Support
6 years ago
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Ibrutinib shelf life
I’ve recently started taking
Ibrutinib
. I have tried to find out the shelf life. My pill bottle is labeled manufactured 09/16,
I’ve recently started taking
Ibrutinib
. I have tried to find out the shelf life. My pill bottle is labeled manufactured 09/16,
Brassy
in
CLL Support
6 years ago
Waldenstroms - reduced dosage Ibrutinib
Or does this suggest that
IBrutinib
no longer effective?
Or does this suggest that
IBrutinib
no longer effective?
dbro1951
in
Non Hodgkin's Lymphoma Friends
6 years ago
Deciding on CLL Therapy and When to Treat- ONCLive Video discussion Drs. Wierda, Lamanna, Ma, Davids, Coutre
Whereas if they’re unmutated, perhaps, right now we have
ibrutinib
commercially available. And in the older patients, for tolerability reasons, you might easily just choose
ibrutinib
.
Whereas if they’re unmutated, perhaps, right now we have
ibrutinib
commercially available. And in the older patients, for tolerability reasons, you might easily just choose
ibrutinib
.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Ibrutinib petition
Hi again all and firstly an apology for the repeat plea for help. Its about the petition to get NHSE to follow the original guidelines laid down by NICE so people like me who need this drug now can be prescribed. Whilst I realise most on this site have already signed as of now we have 5576 signatures
Hi again all and firstly an apology for the repeat plea for help. Its about the petition to get NHSE to follow the original guidelines laid down by NICE so people like me who need this drug now can be prescribed. Whilst I realise most on this site have already signed as of now we have 5576 signatures
Mick491
in
CLL Support
6 years ago
New 17P- w questions about EGCG and normal 2nd 17th chromosome
. $12-15K for
Ibrutinib
and Venetoclax. While it's hard to imagine that a concentrated green tea extract might be the missing link, it certainly seemed to be pointing the needle the right direction for me. Does anyone know what happened to the EGCG trials?
. $12-15K for
Ibrutinib
and Venetoclax. While it's hard to imagine that a concentrated green tea extract might be the missing link, it certainly seemed to be pointing the needle the right direction for me. Does anyone know what happened to the EGCG trials?
TJG_CLL17P-
in
CLL Support
6 years ago
CLLSA and Leukaemia Care Joint Response to NHS England regarding Ibrutinib Prescribing as per NICE TA
guidance for
ibrutinib
use prevents patients failing Idelalisib from treatment with
ibrutinib
unless the patient fails due to Idelalisib related toxicity within six months of commencement of treatment.
guidance for
ibrutinib
use prevents patients failing Idelalisib from treatment with
ibrutinib
unless the patient fails due to Idelalisib related toxicity within six months of commencement of treatment.
Jm954
Administrator
in
CLL Support
6 years ago
Swelling on arms
I get swellings on my arms and wonder if they are serious. i have been taking
ibrutinib
for 2 months and have improved in all other ways.
I get swellings on my arms and wonder if they are serious. i have been taking
ibrutinib
for 2 months and have improved in all other ways.
FranceMary
in
CLL Support
6 years ago
Dr. Wiestner on Combos and fixed duration ibrutinib (he doesn't like the idea) and a webinar with Dr. Byrd and me
Next big decision is whether to stop my
ibrutinib
after 7 years, but since I am MRD - , what is is treating? It’s my security blanket, but all drugs have risks. Stay strong. We are all in this together. Brian http://cllsociety.org
Next big decision is whether to stop my
ibrutinib
after 7 years, but since I am MRD - , what is is treating? It’s my security blanket, but all drugs have risks. Stay strong. We are all in this together. Brian http://cllsociety.org
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
NHSE Response to CLLSA Freedom of Information Request regarding restriction of Ibrutinib (not following NICE guidance)
In addition, David Innes is meeting with Professor Peter Clarke, Chair of the Chemotherapy Group for NHS England to discuss the
Ibrutinib
issue on Friday 13th July 2018.
Work is still going on to address this issue and CLLSA will not stop until the guidance is changed.
In addition, David Innes is meeting with Professor Peter Clarke, Chair of the Chemotherapy Group for NHS England to discuss the
Ibrutinib
issue on Friday 13th July 2018.
Work is still going on to address this issue and CLLSA will not stop until the guidance is changed.
Jm954
Administrator
in
CLL Support
6 years ago
Surgery with CLL
Stopped
Ibrutinib
– fingers crossed. Days -4 to -2. OK-ish except for strong pain in chest related to tumour. Day -1. Woke up with medium pain under arms where I had previous lymph problems pre-
Ibrutinib
.
Stopped
Ibrutinib
– fingers crossed. Days -4 to -2. OK-ish except for strong pain in chest related to tumour. Day -1. Woke up with medium pain under arms where I had previous lymph problems pre-
Ibrutinib
.
BSMI
in
CLL Support
6 years ago
Dry Sore Mouth
A quick question: I have been taking
Ibrutinib
for 4 weeks and had no major adverse side effects other than a very dry sore mouth. Has anyone else had the same problem? And any tips to alleviate this? Best wishes to all. Jeff
A quick question: I have been taking
Ibrutinib
for 4 weeks and had no major adverse side effects other than a very dry sore mouth. Has anyone else had the same problem? And any tips to alleviate this? Best wishes to all. Jeff
jaypax
in
CLL Support
6 years ago
Duvelisib or not?
I am on the CAPTIVATE trial combining
Ibrutinib
and Venetoclax and it seems to me that adding something like Duvelisib would go after another pathway to neutralize whatever could be left of the CLL.
I am on the CAPTIVATE trial combining
Ibrutinib
and Venetoclax and it seems to me that adding something like Duvelisib would go after another pathway to neutralize whatever could be left of the CLL.
lamboman
in
CLL Support
6 years ago
Ibrutinib response from NHSE to Vernon Coaker MP
NHS England funds
ibrutinib
in line with the National Institute for Health and Care Excellence (NICE) guidance.
NHS England funds
ibrutinib
in line with the National Institute for Health and Care Excellence (NICE) guidance.
Mick491
in
CLL Support
6 years ago
Hives after coming off ibrutinib
Husband has been off
ibrutinib
for 2 weeks woke this morning with face swollen and hives all over. Big and itchy. Dr said he felt it has nothing to do with stopping imbruvica. Has anyone else experienced this. I feel certain it related. Thanks for feedback
Husband has been off
ibrutinib
for 2 weeks woke this morning with face swollen and hives all over. Big and itchy. Dr said he felt it has nothing to do with stopping imbruvica. Has anyone else experienced this. I feel certain it related. Thanks for feedback
NIBROC51
in
CLL Support
6 years ago
Atrial Fibrillation, and stroke.
AF and
Ibrutinib
. Does anyone know of studies about lower doses of
Ibrutinib
in the U.K. to prevent AF and bleeding Thanks
AF and
Ibrutinib
. Does anyone know of studies about lower doses of
Ibrutinib
in the U.K. to prevent AF and bleeding Thanks
unun
in
CLL Support
6 years ago
Treatment Started
Has anyone else had the same issues I had with
Ibrutinib
and any feedback on Venaflaxin would be greatly appreciated. John.
Has anyone else had the same issues I had with
Ibrutinib
and any feedback on Venaflaxin would be greatly appreciated. John.
Jollyboyjohn
in
CLL Support
6 years ago
What predicts atrial fibrillation in ibrutinib users?
Here is an interesting clinical paper that explores predictors of atrial fibrillation in users of
ibrutinib
I believe this is exactly the kind of study that we n need to see more of in this disease. In other disease areas this is the kind of thing that happens a lot.
Here is an interesting clinical paper that explores predictors of atrial fibrillation in users of
ibrutinib
I believe this is exactly the kind of study that we n need to see more of in this disease. In other disease areas this is the kind of thing that happens a lot.
AdrianUK
in
CLL Support
6 years ago
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