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Ibrutinib
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Hemoglobin
Dx in 2013 and have been treated with
Ibrutinib
then Venetoclax. Overall I have done well but over the last year my Hg has begun a slow trend of decrease, now in 11s. I realize that is not at all dangerous but I do get winded with any vigorous activity or when I travel to the mountains.
Dx in 2013 and have been treated with
Ibrutinib
then Venetoclax. Overall I have done well but over the last year my Hg has begun a slow trend of decrease, now in 11s. I realize that is not at all dangerous but I do get winded with any vigorous activity or when I travel to the mountains.
Fant1924
in
CLL Support
3 years ago
Trouble Getting Insurance Approval for Ibrutinib in the US?
Has anyone else had trouble getting Medicare (part D through WellCare) to approve their prescription for
Ibrutinib
? I was prescribed it 3 weeks ago and I am still trying to get it approved. Thanks!
Has anyone else had trouble getting Medicare (part D through WellCare) to approve their prescription for
Ibrutinib
? I was prescribed it 3 weeks ago and I am still trying to get it approved. Thanks!
NPBonsai
in
CLL Support
3 years ago
Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.
A update on my very surprising results when combining
Ibrutinib
+ Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-
ibrutinib
-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks.
A update on my very surprising results when combining
Ibrutinib
+ Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-
ibrutinib
-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks.
UniversallyPersonal
in
CLL Support
3 years ago
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Ibrutinib
Anyone on
ibrutinib
been told the covid vaccine won't help them. Been on
ibrutinib
for 7 months and haematologist said I could have the vaccine but it wouldn't help me. Just interested. Thanks.
Anyone on
ibrutinib
been told the covid vaccine won't help them. Been on
ibrutinib
for 7 months and haematologist said I could have the vaccine but it wouldn't help me. Just interested. Thanks.
Denzel42
in
CLL Support
3 years ago
Ibrutinib – Results after 10 Months
Hi All I just wanted to provide a brief update on my results on
Ibrutinib
after 10 months of treatment for those starting
Ibrutinib
. I’m 61, living in Canada and my markers are 11q and 13q deletions and unmutated LgHV. To summarize,
Ibrutinib
continues to be working really well for me so far.
Hi All I just wanted to provide a brief update on my results on
Ibrutinib
after 10 months of treatment for those starting
Ibrutinib
. I’m 61, living in Canada and my markers are 11q and 13q deletions and unmutated LgHV. To summarize,
Ibrutinib
continues to be working really well for me so far.
Lakeviewg
in
CLL Support
3 years ago
Acalabrutinib exhibits comparable efficacy, superior safety to ibrutinib for CLL (finally!)
[/i] [i] [/i] [i]The trial also met a key secondary endpoint for safety, showing patients treated with Calquence had statistically significantly lower incidence of atrial fibrillation compared to patients treated with
ibrutinib
.
[/i] [i] [/i] [i]The trial also met a key secondary endpoint for safety, showing patients treated with Calquence had statistically significantly lower incidence of atrial fibrillation compared to patients treated with
ibrutinib
.
avzuclav
in
CLL Support
3 years ago
All about Waldenstrum Macroglobulinemia and ibrutinib
I am on
ibrutinib
for 2 months for Waldenstrum macroglobulinemia
I am on
ibrutinib
for 2 months for Waldenstrum macroglobulinemia
topgpsingh
in
CLL Support
3 years ago
2 questions 😊
Anyone got dental fragility & chipping on Venetoclax &
Ibrutinib
?
Anyone got dental fragility & chipping on Venetoclax &
Ibrutinib
?
Sepsur
in
CLL Support
3 years ago
Bladder Cancer with CLL
CLL since 2012 (
Ibrutinib
5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
CLL since 2012 (
Ibrutinib
5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
fish61
in
CLL Support
3 years ago
Ibrutinib 30 months doing well,last months HTC & Hb have risen 2 the limit. jak2 tests (-) had phlebotomy, any other with both MPN-CLL ?
CLL and MPN
CLL and MPN
antonb
in
CLL Support
3 years ago
Ibrutinib and Immunoglobulins
Wonder if
ibrutinib
helps to increase immunoglobulins. May 2020 started
ibrutinib
and IGG was 425, now IGG 451
Wonder if
ibrutinib
helps to increase immunoglobulins. May 2020 started
ibrutinib
and IGG was 425, now IGG 451
Davidcara
in
CLL Support
3 years ago
Diagnosed 9/20 and needing treatment already
The two options for treatment were: 1)
Ibrutinib
or 2) obinatumab and venetoclax. My questions are: 1) are those two treatment modalities the only ones available for me and 2) are they the best options for someone with my risk factors and 3) should I get a 2nd opinion? Thanks for your input.
The two options for treatment were: 1)
Ibrutinib
or 2) obinatumab and venetoclax. My questions are: 1) are those two treatment modalities the only ones available for me and 2) are they the best options for someone with my risk factors and 3) should I get a 2nd opinion? Thanks for your input.
Bajabarb
in
CLL Support
3 years ago
Aftermath of horrible pimply rash on skull with Ibrutinib
I now have to stay on this permanently whilst taking
Ibrutinib
. I am not sure how that is for the body but I am very relieved that a solution was found. You may not know Polaramine since this is France after all, but it says it is 'Maléate de dexchlorphéniramine'.
I now have to stay on this permanently whilst taking
Ibrutinib
. I am not sure how that is for the body but I am very relieved that a solution was found. You may not know Polaramine since this is France after all, but it says it is 'Maléate de dexchlorphéniramine'.
Provence
in
CLL Support
3 years ago
Reconnecting with people who have tested positive for Covid
Hello I was diagnosed with Cll in 2015 and started on
Ibrutinib
in 2018 with good results for the CLL but some side effects I can live with.
Hello I was diagnosed with Cll in 2015 and started on
Ibrutinib
in 2018 with good results for the CLL but some side effects I can live with.
jagger5
in
Lymphoma Canada
3 years ago
Self-introduction
Kaiser doctor predicts single-drug regimen of
Ibrutinib
will be best choice, when the time comes. Of course I'm very keen on keeping up with the most recent alternatives and possible clinical trials for Phase 0 patients, of brand-new possibilities, especially novel combinations.
Kaiser doctor predicts single-drug regimen of
Ibrutinib
will be best choice, when the time comes. Of course I'm very keen on keeping up with the most recent alternatives and possible clinical trials for Phase 0 patients, of brand-new possibilities, especially novel combinations.
Felixgratus
in
CLL Support
3 years ago
ibrutinib, acalabrutinib, covid, vaccine
https://www.clinicaloptions.com/infectious-disease/programs/covid-and-cll/faq-module/faq/page-1
https://www.clinicaloptions.com/infectious-disease/programs/covid-and-cll/faq-module/faq/page-1
Mik_
in
CLL Support
3 years ago
Health Canada approves Ibrutinib plus Rituximab for First Line Treatment of Patients with Chronic Lymphocytic Leukemia (CLL)
[/i] https://www.newswire.ca/news-releases/health-canada-approves-imbruvica-r-
ibrutinib
-plus-rituximab-for-the-treatment-of-patients-with-chronic-lymphocytic-leukemia-cll--834973397.html Now it's just a matter of waiting for provincial funding... Neil
[/i] https://www.newswire.ca/news-releases/health-canada-approves-imbruvica-r-
ibrutinib
-plus-rituximab-for-the-treatment-of-patients-with-chronic-lymphocytic-leukemia-cll--834973397.html Now it's just a matter of waiting for provincial funding... Neil
AussieNeil
Administrator
in
CLL Support
3 years ago
Acalabrutinib Plus Obinutuzumab Prolongs Progression Free Survival Compared to Other Targeted Agents in Chronic Lymphocytic Leukaemia (CLL)
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to
ibrutinib
-obinutuzumab and venetoclax-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
[i]First-line acalabrutinib plus obinutuzumab prolongs progression-free survival (PFS) compared to
ibrutinib
-obinutuzumab and venetoclax-obinutuzumab for patients with chronic lymphocytic leukemia (CLL), according to a study published in Clinical Lymphoma, Myeloma, & Leukemia (2020 Oct 29;S2152-2650(
AussieNeil
Administrator
in
CLL Support
3 years ago
Richter Transformation - Update
A curious fact is that all the people who have been diagnosed with Ricther, took at the time of the transformation Venetoclax 80% and the rest
Ibrutinib
being 20% Pseudo Ricther and the rest Ricther.
A curious fact is that all the people who have been diagnosed with Ricther, took at the time of the transformation Venetoclax 80% and the rest
Ibrutinib
being 20% Pseudo Ricther and the rest Ricther.
Priss69
in
CLL Support
3 years ago
Tinnitus and CLL
I have CLL for years (diagnosed in 2010) and I’m on treatment with
Ibrutinib
. My numbers are steadily improving but the tinnitus gets worse. It becomes really annoying now. I looking for advice if anything can be done to improve it?
I have CLL for years (diagnosed in 2010) and I’m on treatment with
Ibrutinib
. My numbers are steadily improving but the tinnitus gets worse. It becomes really annoying now. I looking for advice if anything can be done to improve it?
Temida
in
CLL Support
3 years ago
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